By Tim Nelson
Cause2CureApr 17, 2020
Meagan Houpt Shares All Sides of Her HLHS Story
Daniel's 550-mile Hike with HLHS
We end today's episode with practical and powerful questions about genetics, research, and the future for adults with HLHS.
Share Daniel’s incredible story on social media
Learn more about our research at hlhsconsortium.org
Text 833.222.0186 for research and podcast updates
Kelly DiMaggio on Mental Health, Exercise and Finding Your Soulmate
Kelly is an adult with half a heart, living life to the fullest. On today's episode, Kelly shares her thoughts on the power of exercise, how adults with HLHS have pushed the comfort level of many physicians and what changes she wants to see in the CHD community. Kelly has not only cultivated these insights from her personal experiences with HLHS, but from her husband who recently learned that he also has CHD.
Visit https://www.lovinglately.com/ to read Kelly's blog.
Visit https://www.hlhsconsortium.org/ to learn more about the HLHS Consortium.
Jessica Lindberg: Give Yourself Grace
On today’s episode, I have a very authentic and transparent conversation with Jessica Lindberg. Jessica is an entrepreneur, a heart advocate, a writer/speaker and a proud mother of four boys. Her empowering message will leave you feeling HEART STRONG. To learn more about the Ethan M. Lindberg Foundation visit https://www.ethanlindberg.com/ To learn more about the HLHS Consortium visit https://www.hlhsconsortium.org/
Greg Olsen: Find Your Role
Receptions for Research is an official member of the HLHS Consortium. The HLHS Consortium aims to accelerate the transformation of research and development into cell-based therapies that can benefit the lives of people living with CHD. Visit www.hlhsconsortium.org/ to learn more about our clinical trials. Visit receptionsforresearch.org/ to learn more about the Olsen family’s mission and purchase an awesome “Halve a Heart” T-shirt.
Bella and Erin Borkowski
Part 2: Meg (Roswick) Didier
On today’s episode, Meg (Roswick) Didier and I discuss the next set of milestones that Meg has tackled and is currently encountering: a career, marriage and starting a family. Meg also asks me a very important question: what is the HLHS Program doing for her and other adults with HLHS? Follow Meg on Facebook at Meghan Roswick-HLHS to learn more about her journey. Text Cause2Cure to 833-222-0186 for more updates from the HLHS Program.
Part 1: Meg (Roswick) Didier
Gabrielle Wanek's Advice to CHD Families: Trust Your Kids!
Today I have the privilege of hosting a very important guest, Gabrielle Wanek. Gabrielle is not only the inspiration for the Wanek Family Program for HLHS, but an inspiration for all young adults and families affected by CHD. Her stories and advice will empower you to trust and encourage your heart warrior as they become thriving adults.
My Interpretation of “Where Focus Goes, Energy Flows”
Thanks, Gene Lunger for the great interview!
Dr. Frank Cetta's Opinions on Second Opinions
On today's episode, Dr. Frank Cetta of Mayo Clinic will discuss his thoughts about second opinions. We will be asking many physicians about their thoughts on this very important topic. I am excited to have Dr. Cetta kick off the series; the analogy he uses truly expresses his commitment to putting the patient first!
A Heart Dad's Advice: Be Present
Marc Stoll is my mentor, friend, a member of the external advisory board for the HLHS Program and most importantly, he is the father of a heart champion-Nathaniel. Marc has brought intense insight and focus to the HLHS Program. Now, he shares his perspective on hope, being present and gaining control. This is an episode you do not want to miss.
CHOP 2020: Opening Plenary Session
Did you know that Fontan circulation has been solved for over 100 million years? My TED style talk at CHOP 2020 analyzes the species that has figured it out + shares HLHS Consortium research updates. Follow along with the slides posted on https://www.linkedin.com/in/tim-nelson-cause2cure
Our goal is to be the best collaborative partner for the CHD community. Our competition is CHD.