
Bendy Bodies with the Hypermobility MD
By Bendy Bodies with the Hypermobility MD

Bendy Bodies with the Hypermobility MDApr 12, 2020

68. Fostering Hope for Hypermobility with Cortney Gensemer, PhD, Victoria Daylor, and Linda Bluestein, MD
Symptomatic joint hypermobility can be difficult to understand and can present in so many different ways. Recently, Victoria Daylor, Dr. Cortney Gensemer, Dr. Russell Norris, and Dr. Linda Bluestein published a CME two-part series titled “Hope for Hypermobility - An Integrative Approach to Treating Symptomatic Joint Hypermobility”. We were able to sit down with Dr. Gensemer, Ms. Daylor, and Dr. Bluestein to discuss their research and the results.
They share how the collaboration came about and the developmental process they went through. The co-authors reveal their intentions behind the articles, and three things they want people to know about symptomatic joint hypermobility (SJH).
The panel of guests discuss what they see for the future of joint hypermobility and related conditions, and stress the importance of properly done research. Written to be accessible both for people with SJH and medical professionals, these articles may well be a defining reference for many people in the future!
With limited time free access to Part 1 and Part 2 of this peer reviewed series, you will want to dive into these papers and share with others as soon as possible!
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#Hypermobility #ChronicPain #ConnectiveTissueDisorder #JointSupport #MedicalResearch #JointPain #SymptomManagement #Healthcare #PatientEducation #DoctorPatientRelationship #HopeForHypermobility #KnowledgeIsPower #Education #Scientist #WomenInStem #DisabledInStem

67. Destigmatizing Eating Disorders with Dr. Jennifer Gaudiani
Eating disorders are complicated and not uncommon in artistic athletes. Common comorbidities of symptomatic joint hypermobility (SJH), like mast cell activation disorder (MCAD) or gastroparesis, may contribute to disordered eating, which can spiral into an eating disorder. For years, eating disorders have been stigmatized and dismissed by many in the health community.
To discuss this difficult topic, Bendy Bodies sat down with Dr. Jennifer Gaudiani, MD, CEDS-S, FAED, and founder of the Gaudiani Clinic for Eating Disorders.
Dr. Gaudiani shares how she became so passionate about caring for this complex population and the importance of understanding her patient’s stories. She talks about why there’s such a stigma around eating disorders and how she’s working to change that.
We discuss why this topic is so important for those with SJH and cover possible eating disorder mimickers. We break down definitions and explore possible predictors of eating disorders.
Dr. Gaudiani shares the aspects of treatment that she has found vital, and offers tips on how to speak to someone you suspect may have an eating disorder. Finally, she reveals ways to find experts for getting the help needed for an eating disorder. Learn more about the Gaudiani Clinic here.
For physicians, dance teachers, coaches, and anyone struggling with an eating disorder, this episode is a valuable look at a difficult topic.
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#MentalHealth #BodyPositive #Nutritionist #DoctorsOfIG #IntuitiveEating #EDWarriors #Recovery #SportsNutrition #ChronicIllness #EatingDisorders #PlantBasedNutrition #MentalHealthMatters #NutritionMatters #InvisibleIllness #AntiDiet #AntiDietCulture

66. Codifying upper cervical instability with Leslie Russek, DPT, PhD
Upper cervical instability (UCI) occurs quite commonly in the mild form and more rarely in the severe form in those with symptomatic generalized joint hypermobility (S-GJH). Both can be impactful and are frequently missed. An international team of physical / physiotherapy clinicians and a S-GJH expert rheumatologist recently published expert consensus recommendations for screening, assessing and managing patients with UCI associated with S-GJH. Bendy Bodies sat down with first author, Leslie Russek, DPT, PhD, to discuss this important paper.
Hypermobility (too much range of motion) is different from instability (difficulty controlling motion at the joints). UCI, upper cervical instability, means that the muscles and nerves lack the ability to appropriately control movement at the joint and sense where the joint is in space. When UCI is severe it can be debilitating. Except in the most extreme forms of UCI, conservative (ie: non-surgical) therapies are usually considered first. Improving joint stability is the goal and Dr. Russek explains what patient factors are important to consider in determining treatment strategy.
Dr. Russek explains the difference between “highly suggestive” and “common” symptoms as well as musculoskeletal UCI vs neurological UCI. She describes the three levels of irritability and how those should be approached in clinical practice. Yellow and red flags in the history and the physical examination are addressed.
Whether you are someone who suspects upper cervical instability or treats them, this is an episode you will not want to miss.
Learn more here.
Hashtags: #CervicalSpineInstability #EhlersDanlosSyndrome #ChronicIllness #SpineInstability #ZebraSurvivor #ChronicPain #CervicalSpinalFusion #InvisibleIllness #Hypermobility #SpineHealth #hEDS #EDSawareness #ChronicPainWarrior #SpineFusion #ButYouDontLookSick #Instability #HSD

65. Finding Balance with Jenelle Manzi
How do you push yourself to the edge of your limits, but not over them?
We asked Jenelle Manzi, a professional dancer with New York City Ballet, this very question.
Jenelle shares her stories of growing up dancing with EDS. She describes her journey as a young professional, figuring out how to work with a chronic illness, and talks through her early injuries and what she learned from them.
Jenelle opens up about hitting a wall with her EDS, and how she took time to get her health under control and figure out what works for her. She shares how her health journey inspired her to start her company Get Golden, and goes deep into her methods for staying at an elite performance level while maintaining long-term health.
Learn more about Jenelle here.
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#EDSawareness #BalletWithEDS #ChronicIllnessWarrior #EhlersDanlosSyndrome #DancerWithEDS #SpoonieBallet #DisabilityInclusion #HealthJourney #InvisibleDisability #BalletDancer #DisabilityAdvocate #BalletInspiration #ChronicPainLife #HealthStory #EDSsupport #hEDS

64. Demystifying Chiropractic Care with Dr. Carrie Skony
Chiropractic care has been around for over 100 years, but many people don’t quite know what it entails. Artistic athletes may be told to add regular chiropractic visits to their regimen to help relieve pain without really understanding why.
How does a method best known for joint manipulation work for those with hypermobile bodies? Is it a valid treatment option? And what exactly is it, anyway?
Dr. Carrie Skony is a certified chiropractic sports physician and owner of Perform Active Wellness Dance Medicine. Specializing in dancers, Dr. Skony sees many hypermobile bodies and sat to talk with us about how people with hypermobility may (or may not) benefit from seeing a chiropractor
Dr. Skony defines chiropractic care for us, outlining the broad spectrum of options that fall under its umbrella. She covers what sort of issues may cause people to seek out chiropractic care, different kinds of chiropractic care people may encounter, as well as common misconceptions about chiropractors.
Dr. Skony cautions against indiscriminate joint manipulation, and describes how she changes her treatment approach when working with someone with symptomatic hypermobility.
She talks through her method of working with dancers through a variety of modalities, including hands-on treatments, strengthening exercises, and more.
Common comorbidities in hypermobile patients and how that may change Dr. Skony’s treatment approaches are explained, and she offers tips on how to find a good chiropractor in your own area. Finally, she shares her desire to educate dance instructors on working with hypermobility for future generations of dancers.
If you’ve been skeptical of chiropractic care, unsure of what it is, or a huge fan of it, this episode goes deep on the topic in an easy-to-understand way.
Learn more about Dr. Skony here.
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#Chiro #ChiropracticCare #Adjustment #JointManipulation #Hypermobility #Hypermobile #hEDS #EDS #Modalities #LowBackPain #Chiropractors #Subluxation #Dislocation #JointInstability #ChiropracticAdjustment #Headaches #Doctor #ChronicIllness

63. Shining Your Light with Gigi Robinson
Living with a chronic illness like Ehlers-Danlos Syndrome (EDS) can be demoralizing. You may not have access to the care you need, loved ones do not get it, and loneliness can be a reality for so many people.
Gigi Robinson was diagnosed with EDS at 11 years old, and one of the lucky ones to receive support and care from a very early age. Even so, heading off to college and needing to advocate for herself was a difficult transition. As she moved into adulthood, her natural passion for learning turned into a desire to help others who experience some of the same issues. She quickly became an outspoken advocate for Gen Z in particular, but for anyone struggling with chronic illness, body image issues, and more. She used her platform as a Sports Illustrated swimsuit model to shine light on EDS and body dysmorphia. Now a successful podcast host and powerful social influencer, Gigi speaks around the globe on these topics, educating and encouraging people.
Bendy Bodies recently caught up with Gigi and chatted about her life as an advocate with a chronic illness.
Gigi shares her early experiences with EDS, her diagnosis, and how she learned to advocate for herself in a school setting. Gigi opens up about being a swimsuit model while advocating for body positivity, and describes her passion for speaking up for Gen Z.
Gigi dives into her mental health advocacy, reveals her tips for pacing herself in her daily life, and offers advice to caregivers of people with chronic illnesses, as well as encouragement to those struggling with a chronic illness.
An inspiring and uplifting story of positivity and encouragement, Gigi’s conversation is sure to inspire others to look within themselves for strength and ways to shine their own lights for others.
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#ChronicIllness #Advocate #hEDS #EhlersDanlos #MentalHealth #BodyImage #DisabledModel #BodyDysmorphia #Hypermobility #RepresentationMatters #BodyPositivity #GenZ #InclusiveFashion #AbilityNotDisability

62. Deconstructing Head Pain with Rudrani Banik, MD
Headaches and migraines are common in many chronic illnesses, and people with hypermobility often struggle with chronic head pain for a variety of reasons. But what is the difference between migraine and other types of headache? How do you get properly evaluated? What are the best treatments?
Bendy Bodies spoke with neuro-ophthalmologist Rudrani Banik, MD in an effort to understand this complex topic. A fellowship-trained neuro-ophthalmologist certified in functional medicine, Dr. Banik specializes in headaches and migraines and has worked with many patients with Ehlers-Danlos syndromes and other connective tissue disorders.
Dr. Banik describes how she integrates her vast training to evaluate and treat her patients. She explains the difference between headache and migraine, and shares the criteria for a migraine diagnosis.
Dr. Banik talks through common causes of tension headaches as well as triggers for migraines, and suggests steps that are often helpful for migraines. She offers tips on how to get proper care, talking through her pharmacologic and nutritional supplement approaches. She reveals common lifestyle choices that may greatly impact headaches and migraines covering conditions like idiopathic intracranial hypertension, CSF leak, Chiari malformation as well as vestibular, ocular, and abdominal migraine.
For doctors, physical therapists, and anyone suffering from chronic head pain, this episode contains lots of concrete tips and suggestions for finding a path to relief.
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#Headaches #Migraine #hEDS #ConnectiveTissueDisorder #JointHypermobility #ChronicIllness #MigraineRelief #ChronicPainAwareness #HeadacheRelief #MigraineNutrition #Neuro #Diagnosis

61. Getting Back Up Again with Keeya Steel
Life with multiple chronic illnesses is physically and mentally challenging. Feelings of exhaustion and emotional fatigue crowd in with physical symptoms and can be overwhelming in your daily life.
How do you find balance? How do you find a way forward and regain joy in your life?
We posed these questions to Keeya Steel, founder of the popular Hells Bells and Mast Cells on social media. As someone who lives with POTS (postural orthostatic tachycardia syndrome), MCAS (mast cell activation syndrome), and hEDS (hypermobile Ehlers-Danlos Syndrome), she is all too experienced at trying to find that balance.
Keeya shares her journey through a childhood peppered with “you’re making this up” accusations, as well as her diagnoses as an adult that brought relief and despair in equal measures.
Keeya speaks openly about how humor helped her find her way forward through some dark days, and her decision to share that humor with the world. She shares her emotional journey to accepting her chronic illnesses and disabilities.
Keeya also explains the online course she created with Dr. Linda Bluestein on optimizing medical appointments with complex illness, and why she wanted to share that course with others. Keeya reveals tips on getting the most out of doctor’s appointments and discusses her experiences with finding new medical professionals.
“In the end,” Keeya says, “I want people to be more open to hope and future joy.”
An inspiring episode for us all so don’t miss it!
More information about Keeya can be found on her website.
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#Hope #Resilience #Disabled #ChronicIllness #DespiteTheOdds #PotsSyndrome #MastCells #EhlersDanlos #hEDS #Advocacy #ChronicIllnessCommunity #MedicalProfessionals #MedicalGaslighting #ChronicIllnessSupport #Accessibility

60. Strengthening Precision with Monica Lorenzo, MS, ATC
Dance injuries can be career ending especially for those with joint hypermobility. Competition dance or precision performance can introduce a whole new set of challenges, whether it’s dancing as part of a team, competitive cheer, or synchronized swimming. Controlling hypermobility and matching lines requires strength, specific coaching, and proprioceptive awareness that’s not always second nature to the performer.
We spoke with Monica Lorenzo, the first NBA entertainment athletic trainer who pioneered sports medicine for these performing artists. Monica has worked with many dance teams including the Rockettes, the Knicks City Dancers and the Golden State Warriors Dance Team.
Monica shares her own journey from dancer to athletic trainer and describes the differences between precision dance and other forms of dance. She explains why precision dance may be challenging for the hypermobile dancer, and shares her strategies for staying healthy over a long performance season.
Monica reveals how she prepares dancers for working on less-than-ideal surfaces, and offers advice on how dancers might prepare for a career in precision dance. Finally, she shares her secret of how she builds individual programs within a group training setting.
Full of helpful advice for artists, athletic trainers, coaches, and more, you won’t want to miss this episode.
More information about Monica can be found at https://romofit.com/.
Check out these episodes about fatigue we mentioned during this conversation:
OR
Listen to the episodes about fatigue we discussed:
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#Rockettes #KnicksCityDancers #Knicks #GSWarriors #nba #dancers #DanceTeam #AthleticTrainer #SportsMedicine #Performance
#BendyBuddy #DancerLife #DanceDance #JenniferMilner #HypermobilityMD #Bendy

59. Preparing for Competitions: A Round Table with Kristin Koskinen RDN, Linda Bluestein MD, and Jennifer Milner NCPT
For most artistic athletes, competition is a part of life. Whether you’re a dancer, skater, gymnast, or cheerleader chances are you’re competing at some point.
Competitions can be grueling, multi-day events consisting of 14-hour days, multiple performances, and little access to fresh whole foods. So how do you prepare for a competition, and what can you do during the event to make sure you are at the top of your game and come out of it injury-free?
We decided to approach this topic from a multi-disciplinary angle, so Jennifer, Dr. Bluestein, and resident Bendy Bodies nutrition expert, Kristin Koskinen, all sat down for a round table discussion on this important topic.
We talk through a timeline of preparation before the big event, and ways to make sure you’re heading into your competition as healthy and prepared as possible. Nutrition, training, sleep, and more are discussed as we sketch out the ways to make the most of your preparation time.
Kristin offers practical advice on ways to fuel healthily during the competition, often without access to refrigerators or even a true meal break. Dr. Bluestein shares ways to be prepared for any issues that might come up physically, and Jennifer reveals her top competition-day tips.
Finally, we look at the importance of recovering after a competition. How we replenish our body’s nutrients, ways to approach constructive rest and gradual return to training, and more are shared as we offer ways to be the healthiest competitive artist you can be.
Share this with parents of young artistic athletes, bookmark for yourself as a competitor, and pass it on to studio owners, coaches, physical therapists, and more!
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#CompetitionDay #PreparingForCompetitions #Nutrition #NutritionalTips #HealthyFoodAdvice #Nutrients #NutritionEducation #Sleep #SleepTips #SleepHealth #TrainingAdvice #TrainingDay

58. Preparing for Surgery with Linda Bluestein, MD
Hypermobility disorders can lead to health complications that may require surgery. Joint hypermobility and associated conditions can present complications for surgery, anesthesia, and more. If you’re anticipating surgery, how can you, your surgeon and anesthesia care team be as prepared as possible for those hypermobile “quirks”?
Bendy Bodies founder Dr. Linda Bluestein spent years in the operating room as a top anesthesiologist. We asked her for advice on this often-overlooked aspect of dealing with symptomatic joint hypermobility.
Dr. Bluestein discusses the possible medication reactions that often accompany connective tissue disorders and associated conditions. She talks about ways to prepare for the pre-operative assessment, and outlines what medical conditions should be shared in advance with the anesthesia team.
Dr. Bluestein explains the different types of anesthesia and why that information is important, and shares her observations about people with joint hypermobility and their potential complications.
Finally, Dr. Bluestein offers suggestions for how to share your concerns with the surgery team, from limb positioning to avoid dislocations, cervical spine and jaw problems that may influence airway management and so much more.
Whether you’re part of a surgical team or preparing to undergo your own surgery, you’ll find helpful advice here to prepare you for next steps.
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#Anesthesia #AnesthesiaLife Anesthesiologist #LocalAnesthetic #LocalAnesthesia #hypermobilitytreatment #mobility #ehlersdanlos #spinalstabilization #butyoudontlooksick #hypermobilitypain #spooniesupport #hypermobilityrehabilitation #hypermobilityspectrum #bendy #invisibledisability #JenniferMilner #hypermobilitysyndrome #hypermobilityhacks #HypermobilityMD #chronicconditions
For an even deeper dive, read this peer-reviewed journal article co authored by Dr. Bluestein and Dr. Pradeep Chopra:
Perioperative Care in Patients with Ehlers Danlos Syndromes
https://www.scirp.org/journal/Paperabs.aspx?PaperID=97524

57. Alleviating Anxiety with Jo-Anne La Flèche
Dance and other performing arts are, by nature, stressful. Stress can easily develop into anxiety, which is exponentially more common in the hypermobile population than the general population.
How can you distinguish between stress and anxiety? What can you do to manage your anxiety? When is it time to seek outside help?
We asked these questions and more of Jo-Anne La Flèche, a clinical and dance psychologist with a Masters in Somatics.
Jo-Anne defines the difference between stress and anxiety, and discusses factors that may contribute to anxiety, both within a person and in their external circumstances. She breaks down how a dance environment might foster anxiety and shares ways to self-manage that anxiety.
Self-care practices are offered as ways to lower anxiety, as well as seeing the value in recognizing things you can’t control. Jo-Anne lists signs that may indicate a dancer should seek help in managing their mental health and suggests ways to find the right therapist for you.
Finally, Jo-Anne shares her thoughts on why it’s important to have an identity outside of dance.
For all artists or even anyone struggling with anxiety, this episode is not to be missed.
Click to access informational papers written by Jo-Anne under the auspices of the Dance/USA Task Force on Dancer Health on anxiety and depression.

56. Optimizing Immunity with Kristin Koskinen, RDN
As the weather changes and schedules become busier, staying healthy can feel like a huge challenge. Artistic athletes may struggle to keep their bodies at optimal performance level, and fighting off infectious illnesses may seem like an uphill battle.
How can we naturally strengthen our immune system, supporting its function for optimum success? We posed this question to Kristin Koskinen, RDN and Bendy Bodies team member, in this episode.
Kristin shares why dancers and other performing artists with hypermobility and/or a connective tissue disorder like the Ehlers-Danlos syndromes should care about immunity and nutrition in general. She explains how the foods we eat impact our immune system, and how investing efforts to fuel well now can have a big impact on our health down the road.
Kristin walks us through her process for building a healthy, supportive diet for her clients, talking through her suggestions for planning wide varieties of foods, as well as efficient shortcuts when time is an issue. She discusses the possible effects of sugar on the immune system, and how to deal with the emotional component of foods during the holidays.
Kristen looks at the impact of alcohol on the immune system and talks about the microbiome’s role. She shares her expert view on nutritional supplements including probiotics, and offers lots of encouraging tips for managing busy seasons while striving for healthy nutrition.
This episode breaks down what can be a stressful and complicated subject in encouraging and manageable ways for all bendy bodies.
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#JenniferMilner #HypermobilityMD #Bendy #BendyBuddy #Immunity #Bloating #DietitiansOfIG #Glucose #Gut #Supplement #ChronicDisease #ChronicIllness #InvisibleDisability #Infection #AlwaysOptimal #AutoImmune #NutritionForDancers #DanceNutrition #OptimalNutrition #NutrientDeficiencies

55. Cultivating Resiliency with Jazz Bynum
As a young dancer, Jazz Bynum enjoyed the benefits of being “bendy”. Later, she experienced more than her fair share of injuries but it wasn’t clear how these could be connected. A diagnosis of hypermobile Ehlers-Danlos Syndrome (hEDS) gave Jazz the information necessary to build the resiliency and strength she needs as a professional dancer with Ballet West.
Jazz chats with Bendy Bodies about navigating her dance career while addressing her body’s unique needs with hEDS. Jazz discusses her diagnosis and what led her to seek one, and shares how her diagnosis changed how she seeks treatment.
Jazz speaks openly about her decision to reveal her hEDS publicly, documenting her latest injury and nearly year-long recovery process on social media. She shares her maintenance routine outside of dance, and the lessons she’s learned about her body and her hEDS during her rehabilitation. Finally, Jazz encourages other dancers on their own journeys, addressing the importance of finding people who will support and advocate for you.
An inspiring story of cultivating your own resilience through injuries, this podcast is full of encouragement and motivation for everyone struggling to move forward in spite of obstacles.
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#BendyBuddy #Bendy #EhlersDanlos #Dancer #ZebraStrong #ChronicIllness #spoonie #Zebra #Disease #ArtisticAthlete #Disability #EDS #JointStability
#Bendy #hypermobile #HypermobilitySpectrum
#BendyBallerina #BendyBallet #Ballet #Movement

54. Managing Mast Cell Pain with Linda Bluestein, MD
Mast cell disorders are prevalent in the hypermobile population, but can often go undiagnosed. Persistent pain can be initiated and perpetuated by mast cells, which have also been referred to as “gatekeepers of pain”. How can someone who suspects mast cell issues go about seeking relief for mast cell-related pain? How can medical professionals accurately seek to diagnose and treat mast cell pain?
For this conversation, we put Bendy Bodies founder, Linda Bluestein, MD, in the hot seat. With her many years as a practicing anesthesiologist and her long career treating people with hypermobility disorders, she’s been in a unique position to research, diagnose, and treat these complex conditions.
Dr. Bluestein defines mast cell disorders and ways they may present. She explains why people with hypermobility should be aware of mast cell disorders, and reveals the prevalence of pain associated with mast cell issues.
Dr. Bluestein shares her techniques for evaluating pain in a patient, and offers advice on treating pain in a patient with mast cell issues. She suggests ways to communicate with a medical professional about your own pain, and shares her wish list of ways she would address mast cell disorders on a large scale.
With practical advice for both medical practitioners looking to improve patient care, and hypermobile people searching for ways to mitigate their own chronic pain, this episode is filled with tips and insight into a complex problem.
Additional notes:
Excipients: All medications have excipients (“inactive” ingredients in medications that may cause problems in susceptible people). Mast cell disorder testing: Tryptase is just one mediator that is important to check (both at baseline and within four hours of a flare). I provide lab slips to my patients that they can take in for testing as needed. Tryptase levels can be helpful (especially if they are elevated) but a normal level does not rule out a mast cell problem. Pain sources: People with EDS and comorbidities (like mast cell disorders) can have all the types of pain. These include nociceptive (coming from actual or potential tissue damage), neuropathic (problem within the nervous system) and nociplastic (dysfunction of how pain signals are processed). Want to maximize your medical appointments? Check out this course created by Dr. Bluestein and Keeya Steel, founder of Hells Bells and Mast Cells. Visit our website for more information about becoming a client or patient..
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#BendyBuddy #HypermobilityMD #JenniferMilner #MastCell #Disease #ChronicDisease #Hypermobile #Histamine #FoodIntolerance #ChronicPain #ButYouDontLookSick #MCAS #MastCellActivation #ComplexIllness #EhlersDanlos #DoctorsOfIG #ChronicIllnessSupport #LowHistamine #Histaminintoleranz #MastCellActivationSyndrome

53. Creating a New Hypermobility Screening Tool with Aiko Callahan, DPT, and Stephanie Greenspan, DPT
Hypermobility is far more prevalent in dancers, circus performers and other aesthetic athletes. While some hypermobile artistic athletes have asymptomatic joint hypermobility, others have symptoms due to an underlying hypermobility or connective tissue disorder.
How can a physical therapist or physician assess the bendy artist, beyond tools like the Beighton Score, and see what the artist might need by way of support?
Aiko Callahan and Stephanie Greenspan, both DPTs who work a lot with dancers, circus artists and other bendy bodies, wondered this same thing. They worked with Annie Squires, DPT to publish “Management of Hypermobility in Aesthetic Performing Artists: A Review” and create a fabulous new tool, the Hypermobility Screening Tool.
The two physical therapists talk through their process and how they assess new patients. They reveal screening questions to ask hypermobile artists to best understand the artist’s needs. Some areas include performer identity, scheduling issues, and self-management.
The two lay out the guidelines they’ve put together for a physical exam and tests they use to screen for joint stability. They discuss the importance of a team approach for the hypermobile artist, and ways to help the artist grow their own support team.
Finally, Aiko and Stephanie share their Hypermobility Screening Tool used to assess the presence of other systemic issues often seen in those with hypermobility. A self-reporting screening tool, this questionnaire is designed to efficiently gather information to aid the medical professional to determine what next steps might be most appropriate.
A tool that could be used by medical professionals, trainers looking to help their clients find support, or even hypermobile individuals looking for ways to communicate their issues more clearly, the screening tool is an important step forward in streamlining care for people with hypermobility disorders.
For more information about Stephanie, visit ArtleticScience.com. Aiko can be reached at AikoCallahanPT@gmail.com. AOPT members can access the full article here. (link the word here if possible) https://www.orthopt.org/content/publications. Non members can contact sklinski@orthopt.org to discuss other options. You can also click here to dowload a sample of the Hypermobility Screening Tool: Hypermobility Screening Tool Sample PDF.
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#BendyBuddy #Hypermobility #Hypermobile #Screening #EhlersDanlos #ConnectiveTissue #EhlersDanlosSyndrome #HypermobilitySpectrum #PhysicalTherapy #Acrobats #JointPain #Flexible #Aerial #Acrobatics #CircusArtist #Dance #DancerLife #DanceDance #Ballet #BalletLife #Mobility #JenniferMilner #HypermobilityMD #Bendy

52. Unlocking Jaw Pain with Leslie Russek, DPT, PhD
Jaw pain affects a relatively large percentage of the general population, but is even more problematic for those on the hypermobility spectrum. It’s not often something we think of addressing, however, until it’s clamoring for our attention.
Leslie Russek, DPT, PhD is a practicing orthopedic physical therapist specializing in hypermobility syndromes, Ehlers-Danlos syndromes, fibromyalgia, headaches, and chronic pain. She speaks with Bendy Bodies about temporomandibular disorder (TMD) and jaw pain sharing her wisdom on this topic.
Dr. Russek describes the temporomandibular joint (TMJ) and why hypermobile people should be aware of this commonly misunderstood joint. She illuminates the link between TMD and proprioception, as well as how muscles outside the jaw can cause jaw problems.
We learn strategies for mouth breathing, a possible contributor to TMD, hear practical actions for reducing jaw pain, and learn about the link between the jaw and issues such as headaches or tooth pain.
Finally, Dr. Russek walks us through her steps for finding a healthy resting position, and talks through the Rocabado 6x6 exercise program for TMD.
With practical pointers on addressing jaw pain and dysfunction, this episode is helpful for every bendy body with or without jaw pain.
Visit this webpage for handouts and more information about Dr. Russek.
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#JawPain #TMD #BendyBuddy #PhysicalTherapy #PhysicalTherapist #Hypermobile #Hypermobility #JointPain #Temporomandibular #LockJaw #ToothPain #ChronicPain #TmjDisorder #HypermobilityMD #JenniferMilner #Bendy

51. Moving fearlessly with Jeannie DiBon
Hypermobile athletes and artists are often excellent movers - until they hit “the wall”. Sometimes you hit a point where even basic movements become a struggle.
How can you continue moving without increasing your pain?
Bendy Bodies discusses this important topic during pain awareness month with Jeannie Di Bon, a movement therapist who literally wrote the book on moving pain-free with hypermobility!
Jeannie talks about steps people can take if they’re struggling to add movement into their everyday life. She shares why movement is crucial for people with hypermobility and how she works to improve joint stability in the body.
Jeannie offers insight into how deconditioning can happen so quickly and discusses why alignment reeducation is so important. She discusses how to reprogram your posture and shares ways to improve proprioception.
Jeannie describes her Integral Movement Method and how it can be incorporated into day-to-day life. And she shares information on her Zebra Club, the importance of having a supportive community around you, and her education courses for dance educators, trainers, and more.
Finally, Jeannie stresses the importance of the nervous system being engaged in the movement education process, and reinforces the need to listen to your body and move accordingly.
An episode for every Bendy Body, this discussion is full of practical tips and encouragement.
To learn more about Jeannie, visit: https://jeanniedibon.com/
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#EhlersDanlos #ZebraStrong #Bendy #BendyBody #Spoonie #Movement #Hypermobile #PainAwarenessMonth #PainCounts #LifeWithPain #Hypermobility #Posture #JointPain #JointStability #MovementEducation #ZebraClub #DiBon #JenniferMilner
#HypermobilityMD #BendyBuddy

50. Pushing Limits with Jen Crane, DPT
As a physical therapist for circus artists and dancers, Dr. Jen Crane regularly treats artistic athletes with hypermobility.
As a circus artist and former dancer who is also diagnosed with hypermobile Ehlers-Danlos Syndrome (hEDS), Jen Crane intimately understands the struggles of these athletes.
How does a hypermobile artist use that hypermobility to its full advantage - the long, gorgeous, bendy lines and movement patterns - while still remaining healthy and not pressing the body beyond its limits?
Dr. Crane discusses this tightrope walk with Bendy Bodies.
She shares her own diagnosis journey as an artist and a medical professional. She discusses how she helps artistic athletes reconcile ther connective tissue disorders with their need to push their bodies to the limits. And she talks about training in a healthy way.
Dr. Crane covers how she assists artists with their personal risk vs benefit analysis, and examines predictive variables she may see in people who might have a more successful career. She reflects on the sacrifices artists might need to make, and shares what it’s like to have the hard conversations with artists pushing themselves too much.
Dr. Crane discusses the importance of finding a coach or healthcare provider who understands hypermobility, and how to find one. She breaks down current trends she sees in the medical world with hypermobility, and advocates for people to do what they love to do while taking care of their physical health.
For anyone who works with hypermobile artistic athletes,or for any hypermobile artist who wonders how to find that safe boundary for themselves.
#Podcast #Contortion #FlexibilityTraining #Bendy #CircusLife #CircusEveryDamnDay #CircusCircus #CircusInspiration #Aerial #Aerialist #AerialistOfIG
#Ballet #BalletDancer #BalletLife #DancersLife #DanceLife #DancersWorld #ZebraStrong
#BendyBack #BendyFeet #EhlersDanlosSyndrome #hEDS #Hypermobility #HypermobilitySpectrumDisorder
#hEDS #EhlersDanlos #EhlersDanlosAthlete #EhlersDanlosSyndromeAwarenessMonth #BalletWhisperer #HypermobilityMD

49. Pioneering a Path with Bonnie Moore Southgate
As an elite ballet dancer, Bonnie Moore Southgate danced as a soloist first with American Ballet Theatre, then with the Royal Ballet. Struggling with injuries and pain for years, Bonnie retired from dance and eventually was diagnosed with Ehlers-Danlos Syndrome. Her journey to find treatments and pain relief led to her second career as a neurokinetic therapist, massage therapist, and Pilates trainer.
Bonnie specializes in working with hypermobility as well as elite athletes, and she sat down to share her dance experience with Bendy Bodies.
Bonnie shares her amazing story of dancing through a brilliant career, starting with winning the Prix de Lausanne, being invited to work with Mikhail Baryshnikov at ABT, and working her way to soloist at the Royal Ballet. She is open about her injuries throughout her career, and how they shaped the choices she made during rehearsals and performance opportunities.
Bonnie discusses how her EDS manifested itself while she was still a young dancer, her reasons for seeking an EDS diagnosis and how it shaped her choices. She shares her first steps into Pilates and injury rehabilitation when dance medicine was still in its infancy, and why she trained as a Pilates instructor before becoming a sports and corrective exercise specialist. She also discusses her experience with cranial sacral therapy.
Finally, Bonnie looks at how far dance medicine has come in supporting dancer health and career longevity, and shares what she wants teachers and choreographers to know about working with dancers with EDS or hypermobility disorders.
#ehlersdanlos #balletwhisperer #hypermobiledancers #zebrastrong #podcast #hypermobilitymd #dancer #hsd #bendy #ballet #balletdancer #keepmoving #hyperextension #hypermobility #dance #jennifermilner #dancelife #arabesque #balletteacher #ballerina #technique #pointe #pointework #balletlife

48. Supporting the Foot and Ankle with Andrea Zujko, DPT
Hypermobility can help the artist create aesthetically pleasing lines with one of the most obvious locations involving the foot.
And while many artists envy the banana feet that sometimes accompany excessive ranges of motion, having hypermobile feet and ankles can just as often bring complications.
Andrea Zujko, a physical therapist who works regularly with dancers from New York City Ballet and from all over the world, takes the opportunity to chat with Bendy Bodies about some of the common difficulties that flexible feet may face.
Andrea discusses ankle sprains, and why they may need more recovery time than you might think. She explains the importance of an ankle bone called the talus and shares wisdom on maintaining its healthy range of motion.
Andrea looks at stress fractures and how they can occur in artistic athletes, and explains the importance of evaluating the entire body when addressing foot and ankle problems. We discuss bunions in bendy feet, and Andrea shares secrets for working with bunions.
Finally, Andrea discusses common tendon issues seen in hypermobile artists, the importance of strength conditioning, and techniques for controlled stretching.
Proving that a small area can have a big effect on the rest of the body, this discussion is one to be listened to several times over.
#ankle #Ballet #DancerFeet #BalletFeet #BalletDancer #HypermobileFeet #DanceTraining #DancersOfInsta #BalletTeacher #DanceInjuries #BalletLife #hypermobility #hypermobiledisorders #hypermobilitymd #BendyBodies #bendybodiespodcast #hypermobilitydisorders #bodiesinmotion #JenniferMilner

47. Exploring the Link between Joint Hypermobility and Neurodivergency with Jessica Eccles, MRCPsych, PhD
Evidence shows that neurodivergency occurs at a higher rate amongst people with hypermobility disorders. And we know that anxiety is also prevalent in the hypermobile population. When we look at neurodivergency, hypermobility, anxiety, and dysautonomia, we see hints of lines drawn between them. Might science soon be able to connect the dots?
Jessica Eccles, senior clinical academic psychiatrist at Brighton and Sussex Medical School, and specialist in brain-body neuroscience, returns to speak with Bendy Bodies about neurodivergency, hypermobility, and possible links with anxiety and the autonomic nervous system.
In February 2022, Dr. Eccles published the peer reviewed journal article, "Joint hypermobility links neurodivergence to dysautonomia and pain". She discusses the fascinating results of her research, and explains why neurodivergency, dysautonomia, and pain appear to be connected via joint hypermobility.
Dr. Eccles shares her findings of higher levels of musculoskeletal symptoms in the study’s neurodivergent population vs the comparison group, and wonders if this may be a potential reason why people with neurodivergency experience more health symptoms.
She explains the importance of raising awareness of the link between joint hypermobility and neurodivergency in the medical community, and discusses how anxiety is linked to joint hypermobility and possibly autonomic nervous system dysfunction.
Dr. Eccles shares her work on the ADAPT program, a program aimed at reducing anxiety with a combined brain-body approach in hypermobile people. Still in its early stages, the program (Altering Dynamics of Autonomic Processing Therapy) has fascinating implications.
Finally, Dr. Eccles reveals her current research projects and shares her hopes for future research.
An incredible, accessible discussion by one of the top researchers in this field, this is an episode not to be missed.
#neurodivergency #BendyBrain #dysautonomia #AutonomicNervousSystem #anxiety #ActuallyAutistic #adhd #ADHDAwareness #ASD #AutisticPride #DisabilityInclusion #RedInstead #AutismAcceptance #AutismAwareness #neurodivergent #AutisticAdults #neurodiversity #autistic #autism #BendyBodies #BendyBodiesPodcast #JenniferMilner #ZebraStrong #hypermobility #HypermobilityDisorders

46. Fueling Against Fatigue with Kristin Koskinen, RDN
People with hypermobility often struggle with fatigue. They want more energy, and know that exercise and adequate sleep can help. But what is the role of nutrition in combating fatigue?
Bendy Bodies team member, Kristin Koskinen, RDN, chats with us on how what we eat can influence how we feel. She explores the role nutrition can play in fatigue, and how executive function may contribute to nutritional deficits.
Kristin discusses how to “control what you can control”, and reveals tips on how to get the most out of every mealtime. She looks at the role of sugar as both a necessary fuel and a possible contributor to fatigue, and explores the possible consequences of restrictive or fad diets on energy levels.
Kristin highlights the importance of zinc, B vitamins, and folic acid in supporting a body’s energy levels. She offers ways to figure out what foods might be contributing to fatigue, and shares what role vitamins and supplements may play in fatigue.
Kristin breaks down the difference between stimulants and fuel, and how caffeine may actually end up working against you. Finally, Kristin gives guidance on how to find a nutrition specialist to help you on your own food journey.
For anyone struggling with fatigue, this episode is packed with great advice.
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#DanceNutrition #NutritionForDancers #dietitian #FoodRules #NutritionCoach #RDN #DietitianApproved #DietitiansOfInstagram
#AntiinflammatoryDiet #ChronicFatigue #ChronicIllness #hypermobility #NourishYourBody
#KristinKoskinenRDN #HypermobilityMD #JenniferMilner

45. Understanding Fatigue with Alan Pocinki, MD
Fatigue is common in people with chronic disease. Pain, fatigue, and depression can feed into each other and become a vicious cycle that’s difficult to break. Combating fatigue can be particularly difficult for those with bendy bodies and comorbidities.
Alan Pocinki, MD, specialist in hypermobility and related autonomic and sleep disorders, speaks with Bendy Bodies on this complicated subject.
Dr. Pocinki shares his “eureka” moment in linking the chronic fatigue syndrome population with the hypermobile population. He defines fatigue and how it’s different from sleepiness, and describes the underlying causes of fatigue in hypermobility spectrum disorders, outlining the way an overactive sympathetic nervous system can mimic a panic attack.
Dr. Pocinki explains how autonomic dysfunction can be both the cause and effect of fatigue, and the role of sleep continuity. He discusses the concept of budgeting your energy and explores the role of anxiety in hypermobility spectrum disorders. Dr. Pocinki describes his approach to treating patients with fatigue, reveals the role hormones may play in fatigue, and shares his hopes for future research in fatigue and hypermobility.
You will not want to miss this episode if you are struggling with fatigue or are a medical professional looking to better serve your hypermobile population.
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#fatigue #ButYouDontLookSick #ChronicIllness #Hypermobility #EhlersDanlosSyndromes #EhlersDanlos #SleepDisorder #dysautonomia #AutonomicDysfunction #anxiety
#BendyBodies #BendyBodiesPodcast #JenniferMilner #HypermobilityMD

44. Navigating Pregnancy with Shanda Dorff, MD
Pregnancy can be a time of new physical challenges, and hypermobility may make the season even more complex. Hormones can change tissue elasticity and the body may struggle to adapt.
Dr. Shanda Dorff began working with connective tissue disorders in 2008 and has helped countless women through pregnancies and beyond. She imparts her hard-learned wisdom to Bendy Bodies on this complicated subject.
Dr. Dorff shares important considerations for someone with connective tissue disorders to consider in a pregnancy, and discusses higher-risk issues with various types of Ehlers-Danlos syndromes. She lists things to watch for during pregnancy, and gives advice on how to prepare for possible complications during a delivery.
Dr. Dorff offers things to do - and avoid - during the post-partum weeks, as well as exercise considerations for hypermobile athletes during and after pregnancy.
Finally, she reveals possible considerations for breastfeeding when hypermobile, and suggests ways to find specialists to help someone navigate a “bendy” pregnancy.
For any bendy body considering pregnancy, as well as all healthcare providers, this episode shares decades of hard-won expertise with our listeners.
Resources:
https://hiddenstripes.com/ (Disjointed Book)
https://www.complexcaresmn.com/ (Dr. Dorff's clinic)
https://pubmed.ncbi.nlm.nih.gov/32148151/ (Drs. Dorff and Afrin article, Mast cell activation syndrome in pregnancy, delivery, postpartum and lactation: a narrative review)
https://www.scirp.org/html/2-1920604_97524.htm#%23%23 (Drs. Chopra and Bluestein article Perioperative Care in Patients with Ehlers Danlos Syndromes)
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#pregnancy #pregnant #podcast #EhlersDanlossyndromes #EhlersDanlos #BendyBodies #BendyBodiesPodcast
#highriskpregnancy #zebrastrong #heds #hypermobile #connectivetissuedisorder #JenniferMilner #HypermobilityMD

43. Supporting Artistic Athletes with Selina Shah, MD
Selina Shah, MD, has herself been a competitive swimmer and gymnast, as well as a professional salsa and Bollywood dancer. She’s served as team physician for both Team USA figure skating and artistic swimming, and sits down to talk with us about maintaining your health in a team setting.
Dr. Shah looks at why hypermobility can be a tremendous asset in some athletic fields, and hugely problematic in others. She explores the process of natural selection for artistic athletes and the secret to success at the elite level.
Looking at injuries that are common in hypermobile artistic athletes, Dr. Shah explains why it’s never too soon to address an issue. She discusses misconceptions about stubborn tendon problems in bendy bodies as well as what procedures to consider and which ones to avoid.
Dr. Shah shares ways for hypermobile athletes to communicate with a team doctor and trainer about their specific needs, and how to advocate for yourself in a team setting. Finally, she opens up about what research she’d like to see for hypermobile artistic athletes in the future.
To learn more about Dr. Shah, visit her website selinashah.com/.
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#podcast #iceskating #gymnast #BendyBodies #artisticswimming #OlympicAthlete #hypermobileathlete
#rhythmicgymnastics #bendy
#HypermobilityMD #JenniferMilner #BodiesinMotion #BendyBodiesPodcast
#HypermobilityDisorders #Hypermobility #HypermobilitySpectrum

42. Pursuing a Diagnosis with Linda Bluestein, MD
Hypermobility disorders can be difficult to diagnose, with no one clear path forward. Without an obvious road to walk, people with chronic pain who suspect hypermobility disorders may feel defeated and overwhelmed, struggling to find the help they need.
In this episode, Bendy Bodies founder Linda Bluestein, MD opens up about her own journey getting an EDS diagnosis and starting her work as a hypermobility specialist.
Dr. Bluestein breaks down the different types of connective tissue disorders and how they might be diagnosed. She discusses reasons medical professionals might encourage someone to seek a diagnosis, and theorizes on why they might discourage it.
She gives advice on where to start this journey, and discusses the importance of having even just one medical professional in your corner. As well, she suggests types of specialists who might have knowledge of connective tissue disorders, and outlines steps people can take to prepare for a doctor’s visit.
Dr. Bluestein offers compassionate advice to people who hear “no” a lot, and cautions against confirmation bias. She busts some harmful myths around connective tissue diagnoses and reveals some of the pitfalls a person might encounter in their pursuit of a diagnosis.
Full of advice from a medical expert in hypermobility, this is an episode for anyone feeling defeated or looking to confirm a diagnosis.
#ButYouDontLookSick #ChronicPain #bendybodies #BendyBodiesPodcast #ehlersdanlossyndrome #ConnectiveTissue #ZebraStrong #collagen #diagnosis #physiciansofinstagram #EhlersDanlos #hypermobility #hypermobilitymd #bodiesinmotion

41. Changing the Face of EDS with Camille Schrier, Miss America 2020
People struggling with a chronic illness often feel overwhelmed at the idea of pursuing a passion. Health issues may seem insurmountable when trying to go after your dream, and you may feel hopeless and alone on your journey.
Camille Schrier, Miss America 2020, was diagnosed with Classical Ehlers-Danlos Syndrome at age 11, at the same time she was discovering her love of nature and science. For her, a diagnosis helped her understand all the “crazy” things happening to her body and gave her comfort.
Camille walks us through her diagnostic odyssey, explaining the signs of EDS she saw in herself and the twists and turns that came up along the way. She shares her journey to the Miss America title, and her concerns about serving as Miss America with a chronic illness.
Camille discusses the importance of advocating for yourself and having providers who listen. She speaks honestly about her struggles with an eating disorder, her journey through mental health issues, and her fights with misdiagnoses.
Sharing how her own struggles have made her more compassionate towards others, Camille describes how she is using her platform to spread her Social Impact Initiative, “Mind Your Meds - Drug Safety and Abuse Prevention From Pediatrics to Geriatrics”.
You won't want to miss this inspiring interview.
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#dysautonomia #ehlersdanlossyndrome #hypermobility #invisibleillness #hypermobilitymd #balletwhisperer #zebra #ehlersdanlos #zebrastrong #spoonie #chronicillness #chronicpain #camilleshrier #missamerica #JenniferMilner
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40. Understanding Overstretching with Jennifer Milner, NCPT
What is overstretching, and why should we talk about it?
As the artistic world seems to demand ever more extreme ranges of motion from its dancers and athletes, many people turn to overstretching as a way to stay competitive, forcing an artificial hypermobility in some joints.
Dr. Linda Bluestein interviews Bendy Bodies’ own Jennifer Milner, NCPT, on the subject of overstretching and forced hypermobility. Jennifer discusses why a joint might be hypermobile, and what issues she sees in the hypermobile population versus the non-hypermobile population.
Jennifer explores overstretching, how it affects the body, and some issues that may arise because of it. She explains the difference between dynamic and static stretching, and when each type may be appropriate.
Jennifer looks at the practice of overstretching in dance studios and shares alternatives to overstretching for achieving flexibility in a healthy way.
Finally, Jennifer offers suggestions on how to find resources to help you increase your flexibility safely, both online and in person, and confides what she wishes every dancer knew about flexibility.
Whether you are an artist, a parent, a studio owner, or a health practitioner, this is an episode you won’t want to miss. Full of helpful advice and practical tips!
#flexibility #flexible #ballet #ballerina #stretching #stretch #pointe #splits #pointeshoes #bendy #balletdancer #gymnast #gymnastics #instadance #instaballet #backbend #worldwideballet #dancer #contortion #poledance #oversplits #overstretching #split #acrobatics #zebra #hypermobilitymd #bendybodies #JenniferMilner #balletwhisperer

39. Rethinking Rhythmic Gymnastics with Vita Bachman
Artistic athletes often push their flexibility to the limit, both for competitive and aesthetic reasons. Nowhere are limits tested more than in rhythmic gymnastics where hypermobility tends to be the norm.
Vita Bachman, former international Ukrainian rhythmic gymnast and now a highly respected coach, speaks openly with Bendy Bodies about her experience in the world of rhythmic gymnastics, both as an athlete and as a coach.
Vita discusses how the sport has changed since she competed, and what factors influence how she coaches today. She discusses the pitfall in “chasing the points” of competitive rhythmic gymnastics, and why she continually seeks out the best methods for training her students even when these methods differ from what she was taught as a competitor.
Living with her own career-related medical problems, Vita strives to be a coach that trains competitive but healthy athletes, both physically and mentally. She shares the hopes she has for the future of rhythmic gymnastics, as well as the hurdles she finds in trying to change certain aspects. She discusses her concerns with social media, confides what she’d like parents to know when shepherding their children through extreme stretching, and shares her own approach to training flexibility in a long-term, healthier way
A rare, inside look at one of the most demanding sports for bendy bodies out there!
#rhythmicgymnastics #rhythmicgymnasts #vitabachman #beyondlimitsrg #hypermobility #overstretching #bodiesinmotion #hypermobilitymd #jennifermilner #oversplits #safestretching #bendybodies #bendybodiespodcast #hypermobile
Her website is www.beyondlimitsrg.com

38. Refusing Limits with Allysa Seely
Chronic illness can make your life feel filled with insurmountable obstacles. Pursuing your dreams, even in the face of health issues, may feel hopeless. But moving forward, even in small increments, you can accomplish great things.
Just ask gold medalist Allysa Seely.
Allysa grew up as a dancer and competitive athlete before health issues tried to sideline her. She spent three years advocating for herself as a teen and young adult, fighting to be listened to, before finally being diagnosed with Ehlers-Danlos Syndrome (EDS), Chiari Malformation, Basilar Invagination, Postural Orthostatic Tachycardia Syndrome (POTS), and more.
Allysa refused to let her diagnoses define her, and has become a two-time gold-medal winning paratriathlete at the 2016 and 2020 Paralympics. She shares how she’s been able to compete at such a high level with multiple chronic illnesses, and opens up about her hard journey in college to get a diagnosis.
Allysa confides that she used all her “you can’t”s as fuel to move her forward in pursuit of her dream. She discusses her difficult decision about her amputation, and shares her tips for getting through hard days.
Allysa’s story, and how she turned challenge into triumph in her life, is inspiring and encouraging for everyone living with chronic illness. As Allysa shows, there really are no limits. An inspiring and encouraging interview for anyone struggling with limitations or hardship.
#TriAllysa #paraolympics #USAparatriathalon #triathalon #paratriathlete #amputation #EhlersDanlossyndromes #EhlersDanlos #ChiariMalformation #Chiari #POTS #bendybodies #bendybodiespodcast #hypermobilitymd #JenniferMilner

37. Advocating for Yourself with Aidan Leslie
Navigating medical care can be a daunting task at the best of times, but when you have a chronic disorder that is largely an invisible illness, you may find yourself bewildered and frustrated trying to get the care you need. Often, a diagnosis like Hypermobile Ehlers-Danlos syndrome or hypermobility spectrum disorder can come with co-morbidities such as POTS (Postural Orthostatic Tachycardia syndrome), MALS (Median Arcuate Ligament syndrome), MCAS (Mast Cell Activation syndrome), and more.
And with multiple diagnoses comes multiple doctors’ visits.
Bendy Bodies chats with our own wellness ambassador, Aidan Leslie, a retired dancer who has been living with an hEDS diagnosis for the past five years and spending her fair share of time in doctors’ offices.
Aidan opens up about the bumpy road of her own health journey. She talks about hitting the “EDS wall” and fighting to take control of her life back. Aidan speaks frankly about her experience navigating the medical world, both as a minor and as someone with an invisible illness. Aidan offers tips on how to prepare for medical appointments and suggestions for “how to push back against the push-back”.
And just as Aidan is willing to share her side of the medical experience, Bendy Bodies founder Dr. Linda Bluestein joins in to give advice from her side of the stethoscope.
Dr. Bluestein describes a medical one-sheet and how to build one for your medical care, and shares what she wants teen patients specifically to know about advocating for your own health. Dr. Bluestein discusses options you might have if you feel unseen or unheard in an appointment, and suggests ways to connect with a doctor during an appointment.
Filled with excellent insight from both sides of the prescription pad, this episode is one you’ll want to listen to with a notepad handy.
#spoonie #chronicillness #ehlersdanlossyndrome #ehlersdanlos #hypermobility #chronicpain #pots #heds #ehlersdanlossyndromes #mcas #invisibleillness #hypermobilitysyndrome #hypermobilityspectrumdisorders #zebrastrong #bendybodies #BendyBodiesPodcast #JenniferMilner #balletwhisperer #hypermobilitymd

36. Needling for Pain with Mandy Blackmon, DPT
What exactly is dry needling? How is it different from acupuncture? What sort of issues might it be used for?
Dry needling can be a vital part of an artistic athlete’s healthcare, but sometimes can be misunderstood. Mandy Blackmon, DPT, head physical therapist for Atlanta Ballet's company dancers also serves as an instructor in the Dry Needling Series for Myopain Seminars since 2014.
Mandy explains why she considers dry needling to be a highly effective tool for treating the hypermobile population, and how people with hypermobility can react differently to dry needling. She offers advice on where to start when faced with people with multi-systemic issues, and reveals why dry needling is like rebooting a computer!
Mandy tells us how to find a dry-needling practitioner, and what information to share with that professional, as well as outlining situations where dry needling might not be appropriate.
Whether you’re new to dry needling or use it as a regular part of your health maintenance toolbox, there’s a lot to learn from this excellent discussion.
To learn more about Dr. Blackmon and Myopain Seminars:
https://www.atlantadancemedicine.com/
https://www.myopainseminars.com/resources/blog/
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#dryneedling #dancemedicine #hypermobility #hypermobile #dancephysicaltherapy #chronicpain #ehlersdanlossyndrome #fibromyalgia #ehlersdanlos #heds #hypermobility #zebrastrong #BendyBodies #zebra #chronicpainwarrior #JenniferMilner #balletwhisperer #hypermobilityMD #BendyBodiesPodcast

35. Reeducating Mast Cells with Anne Maitland, MD, PhD
Mast cells: interesting and mysterious. You can’t be born without them, but they don’t show up in blood tests. They’re found throughout the body and can affect multiple systems in vastly different ways. What makes them misbehave?
We spoke with renowned Allergy and Immunology physician, Anne Maitland, MD, about the role of mast cells in the body, what happens when they go “off script”, and what we can do about it.
Dr. Maitland explains that mast cells are necessary for recognizing and healing tissue injury, and make a decision on how to react. But what if your mast cells perceive the situation incorrectly? What if they perceive a five-alarm fire when it’s just an overcooked, smoky dinner? The mast cells react disproportionately to the perceived threat, and the over-reaction manifests itself throughout the body.
She discusses how misbehaving mast cells manifest differently in different systems; she talks through examples of mast cell disorders; and she lists three questions to ask yourself as you try to figure out: are your mast cells misbehaving?
Dr. Maitland describes the challenges people with mast cell disorders face in getting properly diagnosed and treated, and outlines her approach to treating mast cell disorders. And finally, Dr. Maitland likens the hypermobile patient to a Maserati, and explains why proper maintenance is important sooner rather than later.
A deep dive into all things mast cell-related, this episode is full of wisdom you won’t want to miss!
Visit these links for more information about the books mentioned by Dr. Maitland.
https://originwellnesscolorado.com/passport
#Mastcellactivationsyndrome #Mastcellactivationdisorder #Mastcelldisease #MastCell #Hypermobilityspectrumdisorder #Hypermobilityspectrumdisorders #Ehlersdanlossyndromes #Doublejointed #heds #ehlersdanlosawareness #BendyBodies #hypermobilityMD #BendyBodiesPodcast #JenniferMilner
For more information about Dr. Maitland, visit https://clinicalparadigms.com/ or https://chiarinsc.com/patient/
For more information about Dr. Linda Bluestein, visit https://www.hypermobilitymd.com/
For more information about Jennifer Milner, visit https://www.jennifer-milner.com/

34. Highlighting GI Disorders with Leonard Weinstock, M.D.
People with hypermobility disorders have a higher prevalence of GI problems than the general population. Dr. Leonard Weinstock, board-certified gastroenterologist with expertise in Ehlers-Danlos syndromes (EDS) and related disorders, sits down with Bendy Bodies to discuss this very topic.
Dr. Weinstock discusses the “unhappy triad" of EDS, postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS) and how MCAS may actually be at the heart of EDS. He lists ways to be evaluated for GI disorders and speculates that 10-17% of the general population may have undiagnosed MCAS. He stresses the importance of a multi-disciplinary approach to treatment and thinking outside the box.
We look at gastroparesis and small bowel intestinal overgrowth (SIBO) and their links to hEDS and hypermobility spectrum disorder (HSD), and Dr. Weinstock outlines the prevalence of median arcuate ligament syndrome (MALS) in people with MCAS or POTS. He elaborates on his prescribing practices with low-dose naltrexone (LDN) to help increase endorphin production and reduce inflammation, and lists vitamins and diet changes that can be effective in people with MCAS.
As one of the authors of "Covid-19 hyperinflammation and post-Covid-19 illness may be rooted in mast cell activation syndrome", Dr. Weinstock discusses the possible link between long-COVID 19 illness and MCAS. And finally, he shares suggestions on what to do if you’re having difficulty finding a GI specialist who understands complicated disorders like EDS and MCAS.
For anyone dealing with GI issues, as well as physicians looking to understand the connection between hypermobility and GI disorders, this is a timely and important podcast.
www.gidoctor.net/provider/leonard-weinstock-md
pubmed.ncbi.nlm.nih.gov/32328892/
pubmed.ncbi.nlm.nih.gov/32920235/
www.researchgate.net/publication/338327834_Perioperative_Care_in_Patients_with_Ehlers_Danlos_Syndromes
#Podcast #LeonardWeinstockMD #GIdisorders #EDS #zebrastrong #MCAS #MALS #POTS #SIBO #hEDS #autoimmunedisorders
#BendyBodies #BendyBodiespodcast #hypermobilitymd #lindabluesteinmd #jennifermilner #bodiesinmotion #balletwhisperer #hypermobility #mastcelldisease #mastcelldisorder #EhlersDanlos #EDSAwarenessMonth

33. Conquering the Wall: A Round Table Discussion
Do you live with a hypermobility disorder?
Whether you have a connective tissue disorder like Ehlers-Danlos syndrome or Marfan syndrome, or a hypermobility spectrum disorder, you are not alone. These conditions affect millions of people worldwide and disproportionately impact performing artists such as dancers, gymnasts, circus artists, and more. What do these have in common? Bodies that rely on aesthetics as well as maintaining peak performance. So how do you continue forward as your condition poses challenges to what you want to do?
And when your health derails your career plans, how do you recover from that?
We sat down with several athletic artists living with EDS, to hear their stories. We chatted with Marimba Gold-Watts, a former dancer and now Pilates trainer and teacher at Alvin Ailey; Mariana J. Plick, a circus artist; Kyle Thompson, a former elite baseball player and competitive cheerleader; and Cailey Brandon, a former dancer and now Pilates trainer.
Our panelists discuss the early days, when things were “easy”, and the point at which it became difficult. They share how their hypermobility disorders may have gone undiagnosed for a long time, lending itself to seemingly random and frustrating multiple injuries. Many identified with “hitting the EDS wall”, and the sharp turn their health seemed to take at that point.
We hear emotional stories, and lots of wisdom for other people also struggling with hypermobility disorders. The panelists also shared their hope, reflecting on ways that their disorders have made them even stronger right now, and revealed what advice they would offer to their younger selves if they had the chance.
Filled with “Oh my goodness, me too!” moments, as well as words of gut-level truth, this is an episode filled with bravery. You won’t want to miss it.
#hypermobility #heds #zebrastrong #hypermobilitydisorders #ehlersdanlossyndrome #hypermobileathletes #hypermobileartists #hypermobiledancers #hypermobilitymd #bendybodies #bendybodiespodcast #bodiesinmotion #jennifermilner

32. Embracing Neurodivergency with Jessica Eccles, MD
Jessica Eccles, MD, senior clinical academic psychiatrist at Brighton and Sussex Medical School, and specialist in brain-body neuroscience, recently spoke with Bendy Bodies about these neurological conditions that include dyslexia, autism, ADHD, dyspraxia, and dyscalculia. Dr. Eccles led the first neuroimaging study of hypermobility and her work has focused on neuropsychiatric manifestations of connective tissue disorders.
Dr. Eccles stresses that neurodivergency isn’t a disability or disorder, but a different way of neurological processing. She explains surprising findings of her research including possible explanations for the link between hypermobility and anxiety.
Dr. Eccles reveals that people with EDS (Ehlers-Danlos Syndromes) are seven times more likely to be autistic, and six times more likely to have ADHD, compared to the general population. She stresses the importance of recognizing the link between hypermobility and neurodivergency and dives into proprioceptive issues and dyspraxia.
Dr. Eccles offers suggestions for seeking help if you suspect you are neurodivergent. She also provides advice for teachers and parents to be more effective in their roles with neurdivergent artists. As Dr. Eccles states, “Neurodivergency shouldn’t be thought of as something to hold you back, but something to embrace.”
If you or someone you know may be neurodivergent, this is an episode not to be missed.
Find Dr. Eccles:
www.bsms.ac.uk/about/contact-us/staff/dr-jessica-eccles.aspx
@BendyBrain
www.researchgate.net/profile/Jessica_Eccles
Suggested reading:
"The Relationship between Autism and Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders"
www.ncbi.nlm.nih.gov/pmc/articles/PMC7711487/
#autismacceptence #autismawareness #neurodivergent #autisticadults #neurodiversity #autistic #autimstruth #redinstead #bendybodies #bendybodiespodcast #lindabluesteinmd #jennifermilner #zebrastrong #hypermobility #hypermobilitydisorders

31. Allowing Imperfection with Bonnie Robson, MD
A very high percentage of dancers and athletic artists struggle with perfectionism: it’s what makes us so good at what we do, while at the same time can be unhealthy for us as individuals.
Bonnie Robson, world-renowned psychiatrist and dance medicine specialist, is back to talk to us about perfectionism in the arts world. She defines perfectionism, and explores the duality of perfectionism and anxiety. Bonnie discusses the difference between positive and negative perfectionism, and warns of the danger of the “I should” syndrome.
Bonnie shares techniques to get rid of negative thoughts and looks at performance STRIVINGS versus performance CONCERNS. She discusses the variables that differentiate between adaptive and maladaptive perfectionism, and how unhealthy competition actually decreases creativity.
We look at how the pursuit of perfection can increase stress, which contributes to social anxiety, eating disorder, and suicidal thoughts. Bonnie offers tips for training and setting reasonable goals, and shares tools for parents to recognize stress and anxiety in their young artists. As Bonnie reminds everyone who strives for perfection, “It’s ok to say that’s good enough”.
This episode is a must-listen for parents, artists, studio owners, and dance medicine professionals working with artists on a regular basis.
Link to "Brain structure and joint hypermobility: relevance to the expression of psychiatric symptoms" article mentioned in the episode:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3365276/
#anxiety #mentalhealth #selflove #bodypositivity #mentalhealthawareness #disorderedeating #perfectionism #depression #perfectionist #ehlersdanlossyndromes #selfcare #mcas #healthcoach #movementismedicine #healthyliving #pots #inspiration #motivation #perfection #berealnotperfect #certifiedhealthcoach #IADMS #danceanxiety #mentalhealthfordancers #BendyBodies #BendyBodiesPodcast #jennifermilner #bodiesinmotion #balletwhisperer #hypermobilitymd

30. Focusing on Fascia with Jill Miller
Jill Miller’s life was upended with shocking news of end-stage osteoarthritis in her early forties. This led to her exploration of healthy ways of releasing and restoring her hypermobile body. Her study of the body led her to fascia and its importance in healthy motion. As she began applying fascial work to her own body practice, she realized she wanted to share her own journey and what she’d learned in the process.
So what exactly is fascia? Fascia is the structural web in the body that connects all the parts together: organs, muscles, tendons, and nerves are all surrounded by it. Fascia is richly innervated by sensory nerves, and plays an important role in proprioception and interoception.
In this episode, Jill discusses why stretching feels so good, and suggests healthier ways to achieve that feeling. She touches on why tears in connective tissue, especially tendons and ligaments, are particularly challenging to repair, and thus why it’s important for bendy bodies to understand fascia.
Jill believes that understanding fascia gives us insight into more effective and efficient ways to alter perceived tightness and transform your embodied sense of the musculoskeletal system, and wants to help people define longevity strategies for healthy movement patterns. Finally, Jill speaks about her book “The Roll Model” and how she developed her own fascial mobilization system - and wants to share it with everyone!
Whether you’re new to the fascial world or wanting a deeper look, there’s something for everyone in this episode.
For the Anatomy Trains program,visit: https://tuneup.fit/6DVqIz

29. Capturing Limitless Authenticity with Rachel Neville
Photography encapsulates a moment in time like no other art form, and every artist walks into the studio wanting to capture their best selves. Some walk away ecstatic, while others leave unsatisfied or even injured. Dancers and photographers alike may feel pressure for photos that continue to push the body - and safety - to its limits, to capture the next “WOW!” shot.
How do you get pictures that reflect your fullest, most amazing self, without pushing your body too far? How do you find a photographer who understands dancers and will make you feel safe?
Bendy Bodies asked renowned dance photographer Rachel Neville these very questions.
Rachel’s passion for dancers is evident as she discusses the ways she helps dancers get the perfect arabesque or action shot. But she also understands the tension a photographer wrestles with, of wanting to push boundaries in art while at the same time protecting the dancer and creating a safe space. What is the photographer’s responsibility in making sure a dancer stays physically and emotionally safe?
Rachel offers practical tips on developing a session organically, finding your “best self” and working into it. She reveals why she treats a shoot like a ballet class, shares the reason photography shoots take patience and practice from both the photographer and the dancer, and explains why the foundational elements of how the shoot is built are just as important as using the right muscles in a movement.
Rachel discusses how she makes dancers feel confident and safe in a shoot, and find their emotional expression through their movements. She emphasizes the importance of letting dancers know that the photographer “has your back”, and opens up about what she wishes all dancers could know before a photo shoot, offering questions to ask photographers beforehand.
And for all artists, Rachel asks the question:
How do we find our authentic self, and truly show what we have to offer?
If you’re a photographer, artist, or simply a fan, you’ll love the wisdom in this episode. Link is in bio, or listen on your favorite streaming platform!
#rachelneville #rachelnevillestudios #dancephotography #dance #bendybodies #bendybodiespodcast #hypermobility #hypermobilitymd #lindabluesteinmd #jennifermilner #bodiesinmotion

28. Caring for the Adolescent Artist
What support does a hypermobile young artist need?
Hint: a lot.
Hypermobile dancers, gymnasts, skaters, circus artists: the same hypermobility that gives them extraordinary lines and range of motion, also makes them vulnerable to injury, mental health issues, and more. They have unique needs and susceptibilities - so how do we help them?
For this episode, several members of Team Bendy Bodies sit down to discuss a whole-body (and mind) approach to caring for adolescent artists. Specialist Linda Bluestein MD, trainer and ballet coach Jennifer Milner, nutritionist Kristin Koskinen, and EDS Wellness ambassador Aidan Leslie speak frankly about the requirements in working with adolescent bendy bodies, from their “superpowers” to their “kryptonite”.
We discuss how parents can find help for their adolescent artist, and when to start putting together a “pit crew” to have on hand. Aidan shares her own story and offers suggestions on how to advocate for yourself as a teen artist looking to stay healthy in classes that don’t allow for modifications for hypermobility dancers. Kristin describes signs of disordered eating, and how to get help with fueling. Dr. Bluestein looks at symptoms of hypermobility that go beyond “flexibility” and discusses how “hypermobile” doesn’t always equal “flexible”. Jennifer shares her experiences training hypermobile dancers and mentoring them down that narrow path of working hard to be strong while knowing when to pull back to avoid injury.
And finally, we discuss the importance of mental health in the adolescent artist and why it’s always better to address something when it’s “little” than wait until it’s “big”. As Kristin points out, “Emotional owies have a harder time healing.”
Are you a pre-professional artist? This episode can give you guidance on how and when to ask for help as well as how to advocate for yourself. If you’re a parent, teacher, coach, or mentor, this is a must-listen as we discuss how it really takes a village to raise a hypermobile artist.
#traininghypermobiledancers #hypermobileathletes #mentalhealthfordancers #disorderedeating #mentalhealthfordancers #hypermobility #dancerlife #hypermobiledancer #hypermobileballet #hyperextensiondance #BendyBodies #BendyBodiespodcast #TeamBendyBodies #HypermobilityMD #LindaBluesteinMD #JenniferMilner #BodiesInMotion #balletwhisperer #KristinKoskinenRDN #eatwellpros #atypicalAidan

27. Supporting the Pelvic Floor with Jeanice Mitchell, PT
What the heck is a pelvic floor and why should you care?
The pelvic floor is a collection of muscle and connective tissue forming a hammock at the bottom of your pelvis. Hypermobile people should be especially aware of their pelvic floor, as connective tissue disorders can cause ligaments and tendons to stretch and weaken, creating problems in this crucial area of the body.
Jeanice Mitchell, a pelvic floor physical therapist and worldwide educator on the topic, joins Bendy Bodies to share her wisdom on common pelvic floor issues with hypermobility. She takes us through ways to recognize pelvic floor issues and warning signs of pelvic floor dysfunction. She also touches on pelvic organ prolapse and why this is relevant in hypermobile folks.
Jeanice discusses when someone might seek out a pelvic floor PT, how hormones can affect pelvic floor tissue, and how pelvic floor health is important for all ages, and for men as well as women. We touch on common dysfunctions in the hypermobile population such as constipation, pelvic pain, and sexual dysfunction, as well as dysfunction of the pupic symphysis and sacroiliac joints.
This episode is packed with tips for improving your own pelvic floor health, and Jeanice’s passion and enthusiasm for pelvic floor health shines throughout the interview. As she said, Jeanice is “happy to connect people with hope and help.”
For more information about Jeanice follow her on Instagram:
https://www.instagram.com/mypelvicfloormuscles/
For multi-lingual information:
https://www.instagram.com/mypfm/
Healthcare professionals, follow her here:
https://www.instagram.com/mypfm.ambassadors/
Check out Jeanice's website:
#mypfm #pelvicfloorPT #pelvicfloorsolutions #mypelvicfloormuscles #JeaniceMitchell #JenniferMilner #balletwhisperer #BodiesinMotion #HypermobilityMD #LindaBluesteinMD #HypermobilityDance #HypermobilityBallet #HypermobileDancers #Hypermobility #BendyBodies #BendyBodiesPodcast #HypermobilitySpectrumDisorders #HSD #EhlersDanlosSyndromes #EDS #zebrastrong

26. Balancing Seasonal Fueling Patterns with Kristin Koskinen, RDN
Do you love a fresh start? Have you ever made a new year's resolution and then dreaded it?
It’s common for people to look at eating habits, make bold, sweeping commitments, and vow to be perfect this month/year/lifetime. But that’s not realistic, or healthy - physically or emotionally. And since people with hypermobility disorders are statistically more likely to display obsessive behaviors like disordered eating, it's something we need to talk about.
Kristin Koskinen, RDN is back with Bendy Bodies to talk about this potential minefield of a season.
She reminds us that self-improvement is different from self-abuse, and that “being good” does NOT equal “restrictive”. Kristin points out that fear can be a significant driver and that each person’s fear, guilt, or insecurity must be acknowledged. She encourages people to look at the “why” behind wanting to make behavior changes and promotes moving forward with small baby steps.
Kristin discusses how extrinsic devices aren’t necessarily helpful or accurate, how labels might box us in, and reminds us of the importance of not trying to “undo” what we’ve already done, but to simply try to move forward.
This episode is for anyone struggling physically or emotionally with food patterns, or even for the healthy dancer looking to be more mindful of her nourishment.

25. Addressing Pain in Hypermobility Disorders with Linda Bluestein, M.D.
When discussing conditions associated with hypermobility, like Ehlers-Danlos Syndromes (EDS) or hypermobility spectrum disorders (HSD), pain is often mysteriously left out of the conversation despite the fact that persistent pain can be very much a part of many peoples’ lives. Addressing pain early in the process is vital for long-term health and well-being.
Bendy Bodies founder, Dr. Bluestein, takes the guest seat in this episode as she peels back the onion-like layers of the development of chronic pain and options for managing it. She discusses factors that influence how much pain a person experiences, and names some frequently missed contributors to chronic pain.
Dr. Bluestein dispels some common myths about chronic pain, and explains why our thoughts and actions are important in how we perceive pain. She cautions that there’s often no one single solution to pain and shares her multidisciplinary approach to a patient experiencing chronic pain, breaking down each step of her long-term care plan.
A perfect companion to Episode 24, with Beth Darnall, "Thriving with Chronic Pain", this episode is great for anyone suffering from chronic pain.
www.danceusa.org/informational-papers
www.hypermobilitymd.com/
www.ehlers-danlos.com/
www.chronicpainpartners.com/
edswellness.org/
www.ehlers-danlos.org/
hypermobility.org/
tinyurl.com/bendybodiesyoutube
tinyurl.com/bendybodiesapplepodcast
www.rcgp.org.uk/clinical-and-research/resources/toolkits/ehlers-danlos-syndromes-toolkit.aspx

24. Thriving with Chronic Pain with Beth Darnall, PhD
Joining us for this episode is Beth Darnall, a Stanford pain scientist, international speaker, evidence-based psychologist, and author. Beth encourages us to think about pain more broadly, explaining why a multi-disciplinary assessment is so necessary for diagnosing and treating pain.
Beth talks about how sleep is a top predictor of pain levels for the next day, and how treatment for sleep disorders can help with chronic pain. She goes in-depth on the topic of treating chronic pain using behavioral treatments so people are empowered to help themselves, and lists some of the best ways people can improve chronic pain.
Beth gives suggestions on how to reduce pain-related distress, discusses the importance of dedicating time to practicing skills and strategies that help people live with chronic pain, and reminds us that it’s what we do in the day-to-day that makes the difference, more than what happens with sporadic office visits.
Check out this must-listen episode for anyone struggling to cope with chronic pain!
bethdarnall.com/

23. Empowering Patients with Multisystemic Diseases with Jill Schofield, M.D.
If you missed Dr. Schofield's first interview with us, please be sure to listen to our previous episode, "Investigating Autoimmune Disorders with Dr. Jill Schofield", for more great insight!
Visit BendyBodies.org for links to all episodes.
Thank you so very much to Dr. Jill Schofield for being so generous with her time and expertise!
Visit the link below to more information about Dr. Schofield (with fabulous photos from MCAS retreats including one with friend and Bendy Bodies Cohost, Dr. Linda Bluestein).
https://www.centerformultisystemdisease.com/.../about-dr...

22. Managing Dysautonomia with Svetlana Blitshteyn, M.D.
Learn about Dr. Blitshteyn, www.dysautonomiaclinic.com/
Facebook: www.facebook.com/DysautonomiaClinic/
Twitter: twitter.com/dysclinic
Learn about Bendy Bodies:
Website: www.hypermobilitymd.com/podcast
Instagram: @bendy_bodies
Facebook: www.facebook.com/BendyBodiesPodcast/
Learn about Dr. Linda Bluestein:
Website: www.hypermobilitymd.com
Instagram: @hypermobilitymd
Twitter: @hypermobilityMD
Facebook: www.facebook.com/hypermobilityMD/
Pinterest: www.pinterest.com/hypermobilityMD/
LinkedIn: www.linkedin.com/in/hypermobilitymd/
Learn about Jennifer Milner:
Website: www.jennifer-milner.com
Instagram: @jennifer.milner
Facebook: www.facebook.com/jennifermilnerbodiesinmotion/

21. Demystifying Dysautonomia with Svetlana Blitshteyn, M.D.
An in-depth exploration of dysautonomia and what that might entail for the hypermobile population, this episode is important for patients and healthcare professionals alike who are eager to learn about these complex disorders.
Learn about Dr. Blitshteyn, www.dysautonomiaclinic.com/
Facebook: www.facebook.com/DysautonomiaClinic/
Twitter: twitter.com/dysclinic
Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media:
Website: www.hypermobilitymd.com
Instagram: @hypermobilitymd
Twitter: @hypermobilityMD
Facebook: www.facebook.com/hypermobilityMD/
Pinterest: www.pinterest.com/hypermobilityMD/
LinkedIn: www.linkedin.com/in/hypermobilitymd/
And follow co-host Jennifer at the links below:
Website: www.jennifer-milner.com
Instagram: @jennifer.milner
Facebook: www.facebook.com/jennifermilnerbodiesinmotion/

20. Building Better Bone Strength with Rebekah Rotstein
Rebekah is a movement educator and certified Pilates instructor who has presented at conferences and symposia around the world on the topics of bone health, anatomy and movement, and is the founder of Buff Bones®, a research-supported system combining education and focused exercises aimed at the optimization of bone and joint health.
Rebekah shares the knowledge she’s gained in her extensive research on osteoporosis and stresses that a diagnosis isn’t the end of the world but rather a test for advocating for oneself. She discusses why bone density is especially important for those with hypermobility disorders. She theorizes on why dancers should be informed about osteoporosis, and emphasizes the importance of finding a good nutritionist, trainer, and more. Finally, Rebekah shares how her diagnosis planted a desire to help people with osteoporosis, and to help future generations prevent it.
Links:
buff-bones.com/
www.instagram.com/gotbuffbones/?hl=en
www.instagram.com/rebekahrotstein/?hl=en
Rebekah@buff-bones.com

19. Living fully with a Hypermobility Disorder with Linda Bluestein, M.D.
Learn more about Dr. Linda Bluestein, the Hypermobility MD at our website and be sure to follow us on social media:
Website: www.hypermobilitymd.com
Instagram: @hypermobilitymd
Twitter: @hypermobilityMD
Facebook: www.facebook.com/hypermobilityMD/
Pinterest: www.pinterest.com/hypermobilityMD/
LinkedIn: www.linkedin.com/in/hypermobilitymd/
And follow co-host Jennifer at the links below:
Website: www.jennifer-milner.com
Instagram: @jennifer.milner
Facebook: www.facebook.com/jennifermilnerbodiesinmotion/

18. Molding Healthy, Successful Artists with Mariaelena Ruiz
This week we are joined by Mariaelena Ruiz, director of Cary Ballet Conservatory’s Professional Training Program and recipient of the 2019 Outstanding Teacher Award at the Youth America Grand Prix NYC Finals. She discusses her experiences training high-level dancers who wrestle with their hypermobility.
Mariaelena brings her decades as a professional ballerina with a wonky body to her classroom and has a personal understanding of the struggles hypermobile dancers face. She asserts that her injuries also made her both a better dancer and a better teacher, and made her a firm believer in cross-training. She discusses why her teaching is focused on strength and not bendiness, and how she shapes a student’s training over the course of several years.
We talk about why slower is better, and how she and her team approach the long-term training of a hypermobile dancer. She shares tips for teachers of hypermobile dancers, gives advice for frustrated bendy dancers, and reveals what she’d like to see support-wise from the dance medicine community.
Full of thoughtfulness and packed with advice, Mariaelena’s interview is not one to miss!
Learn about Mariaelena Ruiz and follow her on social media:
www.caryballet.com/
www.facebook.com/CaryBallet/
www.instagram.com/mariaelenaruizofficial/
www.instagram.com/caryballet/
Learn about Dr. Linda Bluestein, the hypermobility MD, at our website and be sure to follow us on social media:
Website: www.hypermobilitymd.com and www.bendybodies.org
Instagram: @hypermobilitymd and @bendy_bodies
Twitter: @hypermobilityMD
Facebook: www.facebook.com/hypermobilityMD/ and www.facebook.com/bendybodiespodcast/
Pinterest: www.pinterest.com/hypermobilityMD/
LinkedIn: www.linkedin.com/in/hypermobilitymd/
And follow co-host Jennifer at the links below:
Website: www.jennifer-milner.com
Instagram: @jennifer.milner
Facebook: www.facebook.com/jennifermilnerbodiesinmotion/

17. Training the Hypermobile Dancer with Jennifer Milner
Dr. Linda Bluestein turns the tables to chat with Bendy Bodies' own Jennifer Milner about what it takes to train a hypermobile dancer or athlete. Jennifer brings her almost twenty years of cross-training dancers across the globe to the conversation, revealing what she’s learned from her dancers and her own dance career navigating injuries with a hypermobile body. She shares what she’s observed in the hypermobile population and how she approaches their training differently than the general population.
Jennifer discusses her goals in working with hypermobile dancers and provides concrete suggestions on how to achieve them. She discloses what she wishes dance teachers and medical professionals knew about hypermobile dancers, and how dancers with hypermobility can add longevity to their careers.
This interview is full of practical suggestions. It's a must listen for dance teachers, strength and conditioning coaches, healthcare professionals, and dancers themselves!
Learn about Jennifer Milner:
Website: www.jennifer-milner.com
Instagram: @jennifer.milner
Facebook: www.facebook.com/jennifermilnerbodiesinmotion/
Learn about Dr. Linda Bluestein, the hypermobility MD, at our website and be sure to follow us on social media:
Website: www.hypermobilitymd.com and www.bendybodies.org
Instagram: @hypermobilitymd and @bendybodiespodcast
Twitter: @hypermobilityMD
Facebook: www.facebook.com/hypermobilityMD/ and www.facebook.com/bendybodiespodcast/
Pinterest: www.pinterest.com/hypermobilityMD/
LinkedIn: www.linkedin.com/in/hypermobilitymd/

16. Empowering Flexibility with Dr. Jen Crane, DPT
Dr. Jen Crane, a physical therapist specializing in circus arts, chats with us on how to do just that. She talks about the difference between productive discomfort and non-productive discomfort, and how to self-assess between the two. She weighs in on the pros and cons of seeking a definitive diagnosis for EDS or other connective tissue disorders, and emphasises the need to be strong in your end range. Jen shares her views on passive versus active stretching, how she increases flexibility with strength drills, and sketches out the changes she’d like to see in circus arts training.
Perfect for all people with hypermobility looking to learn more about strengthening, as well as anyone wanting to pursue increasing their flexibility in a healthy way, this episode is a wealth of information on stretching and strengthening safely.
Learn about Jen Crane, PT, DPT, OCS, ATC
Website: www.cirquephysio.com
Instagram: @Cirque_Physio
Learn more about Dr. Linda Bluestein, the hypermobility MD, at our website and be sure to follow us on social media:
Website: www.hypermobilitymd.com and www.bendybodies.org
Instagram: @hypermobilitymd and @bendybodiespodcast
Twitter: @hypermobilityMD
Facebook: www.facebook.com/hypermobilityMD/ and www.facebook.com/bendybodiespodcast/
Pinterest: www.pinterest.com/hypermobilityMD/
LinkedIn: www.linkedin.com/in/hypermobilitymd/
Learn about co-host Jennifer Milner:
Website: www.jennifer-milner.com
Instagram: @jennifer.milner
Facebook: www.facebook.com/jennifermilnerbodiesinmotion/

15. Shaping a Healthy Career with Beckanne Sisk
Beckanne opens up about learning to rein in her hypermobility, discovering when to hold back and when to lean into it, as well as how her pre-professional teachers helped her learn control. She talks about how she maintains her strength and flexibility, what her maintenance program looks like, and why she stresses the importance of mentally working correctly while approaching the work thoughtfully. Beckanne speaks frankly about her approach to stretching safely (hint: it’s not about stretching, it’s about strengthening!) and advice she’d like to share with younger hypermobile dancers (hint: stop stretching and start strengthening!) Beckanne explains why she’s grateful for her scoliosis and hypermobility, how they’ve challenged and shaped her as a dancer, and what she wants to share with the next generation of dancers.
A must-listen for every dancer living with the blessings and challenges of hypermobility, this episode is one you won't want to miss!

14. Stabilizing the Hypermobile Body through Circus Arts with Emily Scherb, PT, DPT

13. Healing the Brain Holistically with Ilene Ruhoy M.D., Ph.D.
Learn more about Dr. Ruhoy at www.centerforhealingneurology.com
Learn more about Dr. Linda Bluestein, the hypermobility MD at our website and be sure to follow us on social media:
Website: www.hypermobilitymd.com
Instagram: @hypermobilitymd
Twitter: @hypermobilityMD
Facebook: www.facebook.com/hypermobilityMD/
Pinterest: www.pinterest.com/hypermobilityMD/
LinkedIn: www.linkedin.com/in/hypermobilitymd/
And follow co-host Jennifer at the links below:
Website: www.jennifer-milner.com
Instagram: @jennifer.milner
Facebook: www.facebook.com/jennifermilnerbodiesinmotion/

12. Investigating Autoimmune Disorders with Jill Schofield, M.D.
Autoimmunity (dysregulation of the immune system) is genetically inherited and will often have multiple triggers. Dr. Schofield discusses the relationship between autoimmune diseases, Ehlers-Danlos Syndromes, and dysautonomia (abnormal function of the autonomic nervous system). She dives into the difference between autoimmune and non-autoimmune dysautonomia and small-fiber neuropathy. She explores diagnoses like antiphospholipid antibody syndrome (APS), when you might seek a work up for APS, and issues a call for action for doctors and researchers in this fast-growing field.
Learn more about Jill Schofield, M.D.:
Website: www.centerformultisystemdisease.com
Follow us on Instagram: @BendyBodiesPodcast
Follow Host, Linda Bluestein, M.D.:
Website: www.hypermobilitymd.com
Instagram: @hypermobilitymd
Twitter: @hypermobilityMD
Facebook: www.facebook.com/hypermobilityMD/
Pinterest: www.pinterest.com/hypermobilityMD/
LinkedIn: www.linkedin.com/in/hypermobilitymd/
Follow Co-host, Jennifer Milner:
Website: www.jennifer-milner.com
Instagram: @jennifer.milner
Facebook: www.facebook.com/jennifermilnerbodiesinmotion/

11. Understanding Hypermobility Disorders with Linda Bluestein, M.D.
Hypermobility disorders can be frustratingly hard to diagnose or even define. From symptomatic joint laxity to connective tissue disorders like Ehlers-Danlos Syndromes (EDS) or Marfan Syndrome, the umbrella of hypermobility disorders covers a number of conditions and up-to-date information can be hard to find. Bendy Bodies' host, Linda Bluestein, M.D., shares her expertise with Jennifer Milner in this episode, opening up on how she turned the challenge of her own hypermobility disorder into a blessing for others as she made working with hypermobility disorders into her life’s work. Dr. Bluestein breaks down the different types of hypermobility, discusses the difference between signs and symptoms, and outlines some hallmark signs of connective tissue disorders. Be sure to listen to this incredibly informative episode!
Learn more about Dr. Linda Bluestein, the hypermobility MD at our website and be sure to follow us on social media:
Website: www.hypermobilitymd.com
Instagram: @hypermobilitymd
Twitter: @hypermobilityMD
Facebook: www.facebook.com/hypermobilityMD/
Pinterest: www.pinterest.com/hypermobilityMD/
LinkedIn: www.linkedin.com/in/hypermobilitymd/
And follow co-host Jennifer at the links below:
Website: www.jennifer-milner.com
Instagram: @jennifer.milner
Facebook: www.facebook.com/jennifermilnerbodiesinmotion/

10. Cultivating Psychological Skills with Bonnie Robson, M.D.
Dr. Bonnie Robson talks through the risks inherent in social and physical isolation and how to develop strategies that can support and encourage long-term mental and physical health. She explores how and why sleep is affected by stress offering ways to better regulate this crucial component of the circadian cycle. Dr. Robson walks through developing a safe place, the importance of paying attention to the present moment, and how and when you should take your emotional temperature. She outlines ways to build several tools for your emotional toolbox, and reminds us that in these times, good enough is a great goal to have.
Links:
Befrienders Worldwide - www.befrienders.org
BBC Action Line UK - www.bbc.co.uk/actionline/
The Actor's Fund USA - actorsfund.org
The AFC Canada - afchelps.ca
IADMS's Response to COVID-19 - www.iadms.org/page/coronavirus
Learn more about Dr. Linda Bluestein, the hypermobility MD at our website and be sure to follow us on social media:
Website: www.hypermobilitymd.com
Instagram: @hypermobilitymd
Twitter: @hypermobilityMD
Facebook: www.facebook.com/hypermobilityMD/
Pinterest: www.pinterest.com/hypermobilityMD/
LinkedIn: www.linkedin.com/in/hypermobilitymd/
And follow co-host Jennifer at the links below:
Website: www.jennifer-milner.com
Instagram: @jennifer.milner
Facebook: www.facebook.com/jennifermilnerbodiesinmotion/

9. Educating the Dance Community with Lisa Howell
Listen in as physiotherapist Lisa Howell explains what every dance teacher needs to know about hypermobile dancers. She discusses the complexity and subtleties of working with an injured hypermobile dancer, how to optimally develop readiness to go on pointe, and how abdominal pain can affect turns and extensions. Lisa looks at why the key to greater flexibility is building stability, why the ability to self-assess is one of the most important things we can give dancers as human beings, and how this generation of pre-professional dancers will change the dance industry for the better.
Learn more about Dr. Linda Bluestein, the hypermobility MD at our website and be sure to follow us on social media:
Website: www.hypermobilitymd.com
Instagram: @hypermobilitymd
Twitter: @hypermobilityMD
Facebook: www.facebook.com/hypermobilityMD/
Pinterest: www.pinterest.com/hypermobilityMD/
LinkedIn: www.linkedin.com/in/hypermobilitymd/
And follow co-host Jennifer at the links below:
Website: www.jennifer-milner.com
Instagram: @jennifer.milner
Facebook: www.facebook.com/jennifermilnerbodiesinmotion/

8. Demystifying Genetics with Paldeep Atwal, M.D.
Your DNA holds many secrets. Why do drugs work on some people and not on others? Why are conditions expressed so differently in different family members? How might hypermobility disorders, dysautonomia (like POTS) and Mast Cell Activation Syndrome (MCAS) be related and how does coronavirus fit into all of this?
Listen in as top geneticist, Dr. Paldeep Atwal, shared his expertise on the following:
Hypermobility disorders - Why are Bendy people so different from each other yet can also share many common traits?
Ehlers-Danlos Syndromes - Why is it taking so long to find “the hEDS gene”
Epigenetics - How much of a difference do our day to day choices make?
Genetic and pharmacogenetic testing - Why do the testing if you cannot change the outcome?
Important note: The discussion about nutrition and intermittent fasting refers to the body of research with subjects from the general population. Therefore, this information is most applicable to those who are overweight or obese. You need quality nutrients for your body to perform properly! PLEASE do not make any changes to your diet (meaning foods you eat), without consulting with your own primary care physician or nutritionist.
Learn more about Dr. Linda Bluestein, the hypermobility MD at our website and be sure to follow us on social media:
Website: www.hypermobilitymd.com
Instagram: @hypermobilitymd
Twitter: @hypermobilityMD
Facebook: www.facebook.com/hypermobilityMD/
Pinterest: www.pinterest.com/hypermobilityMD/
LinkedIn: www.linkedin.com/in/hypermobilitymd/
And follow co-host Jennifer at the links below:
Website: www.jennifer-milner.com
Instagram: @jennifer.milner
Facebook: www.facebook.com/jennifermilnerbodiesinmotion/

7. Understanding and Preparing for Coronavirus with Immunologist, Dwight McKee, M.D.
SARS-CoV-2, a novel coronavirus, has forever changed the world as we know it. Why is this virus unique? Why does the response to infection vary so dramatically? What can we do to minimize the risk of infection and decrease the impact if we get sick?
Dwight McKee, M.D., Ph.D., board certified in immunology, medical oncology, hematology, nutrition, and integrative medicine, shares his unique perspective on the Bendy Bodies Podcast. Dr. McKee discusses with Dr. Bluestein useful foods and supplements, psychosocial strategies and special considerations for people with pre-existing conditions.
Learn more about Dr. Linda Bluestein, the hypermobility MD at our website and be sure to follow us on social media:
Website: www.hypermobilitymd.com
Instagram: @hypermobilitymd
Twitter: @hypermobilityMD
Facebook: www.facebook.com/hypermobilityMD/
Pinterest: www.pinterest.com/hypermobilityMD/
LinkedIn: www.linkedin.com/in/hypermobilitymd/
And follow co-host Jennifer at the links below:
Website: www.jennifer-milner.com
Instagram: @jennifer.milner
Facebook: www.facebook.com/jennifermilnerbodiesinmotion/

6. Minding the Mental Health Gap with Kathleen McGuire Gaines
A few years ago, Kathleen McGuire Gaines wrote an article, “Why are we still so bad at addressing dancers’ mental health?” for Dance Magazine. The article went viral, becoming one of the most-read articles in the history of the publication, and the response ignited a passion in Kathleen to bring mental health issues to the forefront of conversations, while bringing resources to the doorstep of every dancer. In this Bendy Bodies episode, Kathleen shares her own journey through the mental health minefield of the dance world, and how it spurred her to bring help to the current generation of dancers by founding Minding the Gap, a social good start up for dancers’ mental health.
Kathleen talks about how depression isn’t simply weakness, that shame is a terrible motivator, and how encouraging and informing correct coping strategies can make all the difference. She shares her desire to reduce eating disorders by addressing the underlying mental health issues, and reveals why it’s so important to have one specific phone number ready in your phone for sharing.
Join us for this important conversation we all should be having.
Learn more about Dr. Linda Bluestein, the hypermobility MD at our website and be sure to follow us on social media:
Website: www.hypermobilitymd.com
Instagram: @hypermobilitymd
Twitter: @hypermobilityMD
Facebook: www.facebook.com/hypermobilityMD/
Pinterest: www.pinterest.com/hypermobilityMD/
LinkedIn: www.linkedin.com/in/hypermobilitymd/
And follow co-host Jennifer at the links below:
Website: www.jennifer-milner.com
Instagram: @jennifer.milner
Facebook: www.facebook.com/jennifermilnerbodiesinmotion/

5. Optimizing Nutrition to Support a Dancer’s Health with Kristin Koskinen, RDN
Join us for this important discussion! As Kristin pointe out, “What you do now defines how long and how strong you dance.”
Learn more about Dr. Linda Bluestein, the hypermobility MD at our website and be sure to follow us on social media:
Website: www.hypermobilitymd.com
Instagram: @hypermobilitymd
Twitter: @hypermobilityMD
Facebook: www.facebook.com/hypermobilityMD/
Pinterest: www.pinterest.com/hypermobilityMD/
LinkedIn: www.linkedin.com/in/hypermobilitymd/
And follow co-host Jennifer at the links below:
Website: www.jennifer-milner.com
Instagram: @jennifer.milner
Facebook: www.facebook.com/jennifermilnerbodiesinmotion/

4. Supporting a Dancer’s Mental Health with Psychotherapist, Terry Hyde
Terry discusses the high incidence of anxiety, depression, and OCD (obsessive compulsive disorder) in hypermobile dancers and explores how a dancer’s perfectionism can be both a blessing and a curse. He describes the intrinsic link between the mind and the body, and how anxiety can be reframed into excitement. Terry reveals why it’s important to practice talking to your body, and discusses how friends and loved ones can support a dancer needing emotional help - as well as what not to do.
Learn more about Terry Hyde:
www.counsellingfordancers.com/about/
www.instagram.com/counsellingfordancers/
www.facebook.com/counsellingfordancers
www.linkedin.com/in/terry-hyde-ma-mbacp-b68617176/
twitter.com/counselingdance
Learn more about Dr. Linda Bluestein, the hypermobility MD at our website and be sure to follow us on social media:
Website: www.hypermobilitymd.com
Instagram: @hypermobilitymd
Twitter: @hypermobilityMD
Facebook: www.facebook.com/hypermobilityMD/
Pinterest: www.pinterest.com/hypermobilityMD/
LinkedIn: www.linkedin.com/in/hypermobilitymd/
And follow co-host Jennifer at the links below:
Website: www.jennifer-milner.com
Instagram: @jennifer.milner
Facebook: www.facebook.com/jennifermilnerbodiesinmotion/

3. Preserving the Hip with Orthopedic Surgeon, Joel Wells, M.D.
Learn more about Dr. Linda Bluestein, the hypermobility MD at our website and be sure to follow us on social media:
Website: www.hypermobilitymd.com
Instagram: @hypermobilitymd
Twitter: @hypermobilityMD
Facebook: www.facebook.com/hypermobilityMD/
Pinterest: www.pinterest.com/hypermobilityMD/
LinkedIn: www.linkedin.com/in/hypermobilitymd/
And follow co-host Jennifer at the links below:
Website: www.jennifer-milner.com
Instagram: @jennifer.milner
Facebook: www.facebook.com/jennifermilnerbodiesinmotion/

2. Ensuring Longevity: Screening, Strengthening and Supporting, with Physiotherapist Moira McCormack
Learn more about Dr. Linda Bluestein, the hypermobility MD at our website and be sure to follow us on social media:
Website: www.hypermobilitymd.com
Instagram: @hypermobilitymd
Twitter: @hypermobilityMD
Facebook: www.facebook.com/hypermobilityMD/
Pinterest: www.pinterest.com/hypermobilityMD/
LinkedIn: www.linkedin.com/in/hypermobilitymd/
And follow co-host Jennifer at the links below:
Website: www.jennifer-milner.com
Instagram: @jennifer.milner
Facebook: www.facebook.com/jennifermilnerbodiesinmotion/

1. Reducing Injury and Increasing Education with Royal Ballet Physiotherapist, Moira McCormack
Learn more about Dr. Linda Bluestein, the hypermobility MD at our website and be sure to follow us on social media:
Website: www.hypermobilitymd.com
Instagram: @hypermobilitymd
Twitter: @hypermobilityMD
Facebook: www.facebook.com/hypermobilityMD/
Pinterest: www.pinterest.com/hypermobilityMD/
LinkedIn: www.linkedin.com/in/hypermobilitymd/
And follow co-host Jennifer at the links below:
Website: www.jennifer-milner.com
Instagram: @jennifer.milner
Facebook: www.facebook.com/jennifermilnerbodiesinmotion/