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Cervivor Podcast

Cervivor Podcast

By Cervivor

Cervivor is a global cervical cancer community, an advocacy resource, and an online retreat for healing, connecting and thriving. This podcast is a platform to lend support. To share our stories. To spread awareness and to create the change that we want to see. Ending cervical cancer is within our reach, so we are continuing to shine a very bright light on this cause. For more award-winning Cervivor content visit Cervivor.org. Join the conversation by using #CervivorPodcast. If you would like to be interviewed for upcoming episodes contact us at info@cervivor.org.
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Currently playing episode

“Acceptance of Death: How She is Making Her Story Matter” with Guest, Lisa Moore

Cervivor PodcastJul 15, 2021

00:00
12:22
"Health Disparities in the API Community" with Dr. Mihae Song and Arlene Simpson

"Health Disparities in the API Community" with Dr. Mihae Song and Arlene Simpson

May is Asian American and Pacific Islander Heritage Month! In this episode, Cervivor Podcast Host, Joslyn Paguio discusses health disparities within the Asian, Asian American, and Pacific Islander communities and the possible reasons why with Dr. Mihae Song, a Gynecologic Oncologist at City of Hope, and Arlene Simpson, a cervical cancer survivor. Through this conversation, you'll hear the personal stories of each guest and where they are at today. Communication is key to understanding one’s health and building a long-lasting relationship with their primary care physician. So, what happens when you aren’t taught the proper terminology? What if you were never taught how to talk about things…particularly below the belt? We realize that knowledge is power. Some experience no abnormal symptoms and are diagnosed with cervical cancer. Then there are some, like Arlene, a Cervivor community member, who realized that "abnormal was her normal." Arlene accepted that as a way of life because of associated diagnoses which later led to her cervical cancer.


More about the guests:

Arlene Simpson is a loving mom, a devoted wife, a Financial Services professional focusing on the importance of Financial Literacy in America, and a one-year cervical cancer survivor and patient advocate.


MIHAE SONG, M.D., has provided free health care for pregnant women in Pakistan, cared for blind and autistic children in South Korea, mentored grade school kids and trained future medical school students in surgical techniques. She’s earned a long list of awards and honors for her skills in the operating room and the classroom. Dr. Song is passionate about women’s health and an expert in minimally invasive surgeries, as well as more complex abdominal procedures. A graduate of New York’s Columbia University, Dr. Song studied medicine at SUNY Downstate College of Medicine in Brooklyn, New York, and continued her training with fellowships in health equity leadership and gynecologic oncology at University of Minnesota in Minneapolis. Dr. Song is excited about new cancer therapies and is eager to help bring them about through clinical trials. It’s one big reason she’s joined City of Hope which, she says, “has the best ingredients to bring research from the laboratories to clinical trials to the clinic.”


Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by emailing us.  For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org.

May 17, 202343:05
S3 BONUS CONTENT: Lorie's Infertility Story

S3 BONUS CONTENT: Lorie's Infertility Story

This week is recognized as National Infertility Awareness Week. It is a topic that is so near to our community of cervical cancer and HPV-related cancer patients and survivors. Follow along as we highlight the stories of those impacted in our community and we encourage you to share your story with us as well.

“It seemed like I was constantly sick. I had viral and bacterial infections. But I was also having painful pelvic pain just after my periods would end - a pain so severe, I would be on the ground in a tight ball. My gynecologist couldn't pinpoint the cause. In 2013, my HPV became active again. I was surprised because I was clear since 1991, when I was treated for dysplasia at 20. I had a cervical biopsy but it was clear. The following year, my period abruptly stopped, to my doctor's surprise, and I was officially in menopause. My hopes for motherhood were suddenly over. I didn't think about my Paps, because I was depressed about menopause and the clear biopsy gave me false hope. My pelvic pain seemed to ease up as well. I thought I was out of the woods.”

Lorie Wallace faced the devastating news of infertility just prior to her cervical cancer diagnosis. Listen to Lorie share in her own words during our creative writing session from Cervivor School Nashville. Beyond this, read her Cervivor story at: https://cervivor.org/stories/lorie/.

Did you connect with this content? Share your thoughts with us on social media using #CervivorPodcast or by emailing us.  For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org.

Apr 25, 202301:17
"Sex After Cancer" with Dr. Tali Sobel

"Sex After Cancer" with Dr. Tali Sobel

Did you know a high percentage of women experience some form of sexual dysfunction? Did you also know that the rate increases even more when cancer treatment, like cervical cancer, is involved?

In this episode, Cervivor Podcast Host, Joslyn Paguio has a candid conversation with Dr. Tali Sobel, a Women's Health Internist at the Mayo Clinic. You'll hear them get down to the basics of understanding sexual dysfunction, how it happens, ways we can alleviate some of the pain and discomfort women experience, and what professional resources are out there to better assist women in reclaiming their sexual confidence. Plus, you'll hear some of the recommended products listed below to discuss with your doctor!

Good Clean Love Lelo Mayo Clinic Store Mystery Vibe (Use Code: Cervivor15 to get 15% off Tenuto 2, Crescendo 2 and Poco) Ohnut Uber Lube (Use Code: CERVIVOR to get 10% off)


Dr. Tali Sobel is a women's health internist specializing in sexual health and menopause at Mayo Clinic Arizona. She is originally from Washington, DC. She received a degree in psychology at the University of Michigan for her undergraduate studies and attended Georgetown University for medical school. She then moved to Baltimore, Maryland for residency in internal medicine at Johns Hopkins Bayview. She completed a women's health fellowship at Johns Hopkins following residency and is a North American Menopause Society certified menopause specialist. She recently moved to Phoenix, Arizona with her husband and dog and enjoys hiking, exploring the beautiful Southwest, and spending time with her family.

Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by emailing us.  For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org.

Apr 19, 202348:25
"No Longer Voiceless" with Ayanna Bass and Milicent Kagonga

"No Longer Voiceless" with Ayanna Bass and Milicent Kagonga

Maya Angelou once said “Words mean more than what is set down on paper. It takes the human voice to infuse them with deeper meaning.”

In this episode, we get to hear the voices of two remarkable women, Ayanna Bass, and Milicent Kagonga. One survivor sharing her story of cervical cancer in the United States, and the other in Africa. We'll dive in as they share their personal journeys with cervical cancer, how they lost their voice, and how they found it again to help save other African and African American women.

Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by emailing us.  For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org.

Mar 26, 202348:06
"Lead With Action: An Impactful Discussion On Closing the Cervical Cancer Disparity Gap" with Kimberly Williams and Julia Neely

"Lead With Action: An Impactful Discussion On Closing the Cervical Cancer Disparity Gap" with Kimberly Williams and Julia Neely

Black women have higher rates of new cervical cancer cases as opposed to other races and ethnicities. With February being Black History Month, we wanted to discuss health disparities amongst black communities and the possible influencing factors. One way to close the gap in the fight against cervical cancer is to make sure our stories are heard. We must continue to talk about HPV, cervical cancer screening and prevention including vaccination, and the stories of those impacted by cervical cancer. Whether through casual conversations with friends or family, questions to our doctors, or quick chats with our children, each conversation can lead to change.

Don’t miss this conversation between Cervivor Podcast host, Joslyn Paguio and her two guests, Kimberly Williams, a cervical cancer survivor and patient advocate for Cervivor, Inc., and Julia Neely, Program Manager for the HPV Cancer Prevention Program through St. Jude Children's Research Hospital to learn more about and to understand these disparities.

Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by emailing us.  Are you a cervical cancer patient or survivor? Share your story on our website at Cervivor.org!

For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org.

Feb 28, 202346:21
Hope for Our Future with Dr. Ulf Gyllensten
Jan 29, 202349:37
"Your Story Matters" with Carol Lacey and Karla Chavez

"Your Story Matters" with Carol Lacey and Karla Chavez

Happy New Year and welcome to Season 3 of the Cervivor Podcast!

We're also wishing everyone a Happy Cervical Cancer Awareness Month! CCAM is a very important month for us as we dedicate the entire month to bringing awareness to cervical cancer, recognizing, celebrating, and remembering that #WeAreCervivor! 

In this episode, Cervivor Podcast host, Joslyn Paguio chats with Cervivor Ambassadors Carol Lacey and Karla Chavez about their stories and how their advocacy work is helping to change the narrative in our mission to end cervical cancer. 

Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by emailing us.  Are you a cervical cancer patient or survivor? Share your story on our website at Cervivor.org!

For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org.


Jan 15, 202336:48
Addressing Disparities in HPV Cancers with Dr. Heather Brandt

Addressing Disparities in HPV Cancers with Dr. Heather Brandt

The discovery of the link between HPV and cervical cancer came in the 1980s and the research continues today, with researchers like our featured guest, Dr. Heather Brandt. Tune in to hear about how Dr. Brandt’s research has helped transform the landscape of addressing disparities in cancer prevention and how working with allies and partners has effectively increased HPV vaccination. Dr. Heather Brandt is the director of the HPV Cancer Prevention Program at St. Jude Children’s Research Hospital and co-associate director for outreach at the St. Jude Comprehensive Cancer Center. She also serves as a full member of the Department of Epidemiology and Cancer Control. She is a faculty affiliate at the University of Memphis School of Public Health and the University of South Carolina Arnold School of Public Health.

Beyond the podcast, check out St. Jude’s HPV Cancer Prevention Program. They have a number of campaigns, initiatives, plus online and local events.

Join in the conversation by using #CervivorPodcast! For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org.


Dec 18, 202250:34
"Reflection and Time for Giving" with Guests Tamika Felder and Morgan Newman

"Reflection and Time for Giving" with Guests Tamika Felder and Morgan Newman

It’s time to get ready for the holidays! In this episode, we have two special guests, Cervivor Founder and Chief Visionary, Tamika Felder and Cervivor Community Engagement Liaison, Morgan Newman, bringing you a little joy and fulfilling your holiday wish list. Join us for a cozy and casual conversation about what we’re thankful for, our holiday traditions, and a little surprise to help you with your holiday shopping.

To shop and/or support Cervivor, Inc. visit the online shop or donate on their website.

Join in the conversation by using #CervivorPodcast! For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org.

Nov 25, 202223:43
"All Your Questions Answered About the HPV Vaccine" with Guest, Dr. Nathan Boonstra
Oct 09, 202237:43
"From Cervical Cancer to Mindfulness" with Guest, Tara Casagrande

"From Cervical Cancer to Mindfulness" with Guest, Tara Casagrande

What is mindfulness?

In this episode, we'll hear from Tara Casagrande, a cervical cancer survivor, a mother of three, and a yoga teacher. Tara was the Founder of Ease Yoga Cafe in Del Ray Alexandria from 2015 to 2020 and is currently enrolled in the first of two years with the Mindfulness and Meditation Teacher Certification Program with Jack Kornfield and Tara Brach. Listen to Tara as she shares her personal journey through cervical cancer, motherhood, and her career. You'll also hear some details on an exciting upcoming event!

Join in the conversation by using #CervivorPodcast! For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org.

Sep 11, 202240:41
Getting to Know Joslyn

Getting to Know Joslyn

The Cervivor Podcast is a platform built for sharing and elevating our stories. Tune in to hear more about our Season 2 podcast host, Joslyn Paguio. Become inspired, learn more about the Human Papillomavirus (HPV), cervical cancer, and hear how Joslyn has used her personal experience to educate others. 

Beyond the podcast, read Joslyn's Cervivor story on our website or watch her story on our award-winning YouTube channel, Cervivor TV.

Join in the conversation by using #CervivorPodcast. Let us know what you think!

For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org.

Aug 21, 202208:39
"Rise Up": Be Resilient Like You're Running Out of Time
Jul 17, 202227:36
What is Survivor Mode? Living with Cervical Cancer and Redefining Survivorship
Jun 26, 202232:59
What is Survivor Mode? A Glimpse into the Life of an HPV Tonsil Cancer Survivor

What is Survivor Mode? A Glimpse into the Life of an HPV Tonsil Cancer Survivor

What is Survivor Mode? While we know the physical toll it takes on the body between treatments and surgeries, how do we survive mentally and emotionally to get to the other side?

Listen to Jason Mendelsohn's story in his own words. 

Jason is the Founder of SupermanHPV.com and an HPV tonsil cancer survivor (otherwise known as oropharyngeal cancer). He is passionate about raising awareness of HPV oropharyngeal cancer, promoting oral cancer screenings, and educating parents about the HPV vaccine as an important means to preventing HPV cancers. Jason has shared his cancer story in over 100 countries and he currently serves on the Executive Board of the Head and Neck Cancer Alliance.  

Join in the conversation by using #CervivorPodcast. Let us know what you think!

For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org.

Jun 05, 202234:23
“We’re Back!: What You Can Expect This Season” and meet Cervivor, Joslyn Chaiprasert-Paguio
May 13, 202222:42
CCAM Mindful Minute: The Cozy Castle
Jan 21, 202210:05
“Toxicity in Relationships: Coping with Cancer” with Guest, Dr. Ramani Durvasula
Oct 23, 202111:35
"Cancer in Another Country: A Tell-All from South Africa" with Guest, Lynn Tromp
Sep 09, 202113:46
“Wrecking into Cancer: How the Gym Became Her Refuge” with Guest, Sierra Thetford
Aug 12, 202108:37
“Acceptance of Death: How She is Making Her Story Matter” with Guest, Lisa Moore

“Acceptance of Death: How She is Making Her Story Matter” with Guest, Lisa Moore

Cervivor recorded a series of podcasts featuring cervical cancer survivors who attended our 2017 Cervivor School. They have been sitting in archive, but we are ready to release these never-been-aired episodes.

The next archived episode is with guest Lisa Moore. Lisa was diagnosed with stage IBI cervical cancer at the young age of 25. Knowing that she was dying from cervical cancer, Lisa attended Cervivor School anyways. She was dedicated to sharing her story until the very end. Lisa made it a point to talk about death even though it can be uncomfortable. Listen to Lisa in her own words from 2017.

For more Cervivor-related content, check out: cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed for upcoming Cervivor Podcast episodes contact us at info@cervivor.org.

Jul 15, 202112:22
"The Will to Live: How Faith Got Her Through a Cancer Diagnosis” with Guest, Teolita Rickenbacker

"The Will to Live: How Faith Got Her Through a Cancer Diagnosis” with Guest, Teolita Rickenbacker

Cervivor recorded a series of podcasts featuring cervical cancer survivors who attended our 2017 Cervivor School. They have been sitting in archive, but we are ready to release these never-been-aired podcasts.

The next archived episode is with guest Teolita Rickenbacker. She was diagnosed with stage IV cervical cancer at the age of 34. Teolita became a Cervivor Ambassador and learned how to share her story through attending Cervivor School. Listen to Teolita in her own words from 2017. This episode is filled with faith and will leave you feeling inspired by Teolita’s words.

For more Cervivor-related content, check out: cervivor.org. Follow Cervivor on all social media platforms: @IamCervivor. If you would like to be interviewed for upcoming Cervivor Podcast episodes contact us at info@cervivor.org.

Jun 17, 202109:30
“Education 101: What is Lymphedema?!” with Guest, Heather Banks

“Education 101: What is Lymphedema?!” with Guest, Heather Banks

Cervivor recorded a series of podcasts featuring cervical cancer survivors who attended our 2017 Cervivor School. They have been sitting in archive, but we are ready to release these never-been-aired podcasts.

The next archived episode is with guest Heather Banks. She was diagnosed with stage III cervical cancer at the age of 32. She had a 3 year old daughter and a 3 month old son. That did not stop Heather from advocating with Cervivor as she became our Lead Cervivor Educator - bringing educational opportunities to our community through Cervivor School. Listen to Heather tell her story from back in 2017.

This episode is filled with facts about lymphedema and Heather’s passion for education in cancer advocacy.

For more Cervivor-related content, check out: cervivor.org. Follow Cervivor on all social media platforms: @IamCervivor. If you would like to be interviewed for upcoming Cervivor Podcast episodes contact us at info@cervivor.org.

May 13, 202108:34
"Lead with Your Story" - Shifting the Narrative on HPV and Cervical Cancer with Erica Frazier Stum

"Lead with Your Story" - Shifting the Narrative on HPV and Cervical Cancer with Erica Frazier Stum

Cervivor recorded a series of podcasts featuring cervical cancer survivors who attended our 2017 Cervivor School. They have been sitting in archive, but we are ready to release these never-been-aired podcasts.

The next archived episode is with guest Erica Frazier Stum. She was initially diagnosed with stage IB2 cervical cancer and then faced a metastatic recurrence later on. That did not stop Erica from advocating with Cervivor and she became our Lead Cervivor Ambassador. Hear Erica discuss her survivorship back in 2017.

This episode is filled with laughter, leadership, and spunk.

For more Cervivor-related content, check out: https://cervivor.org. Follow Cervivor on all social media platforms: @IamCervivor. If you would like to be interviewed for upcoming Cervivor Podcast episodes contact us at info@cervivor.org.

Apr 08, 202108:41
"Dry Panties, Depends, and Urine. What Does This Have to Do with Cervical Cancer?!" - Overcoming Obstacles Amid a Cancer Diagnosis with Holly Lawson
Mar 13, 202108:53
Season 1 Trailer
Mar 13, 202102:38