#diabeteschatstories talks to people about their diabetes connection; whether it be a parent, carer, a friend, partner or something with diabetes or associated to diabetes... we will be sharing their story and their journey with everyone.
#diabeteschatDec 07, 2023
#diabeteschat - Oral Health & Diabetes
In this #diabeteschat podcast, our hosts Tom and Claire were joined by Will Welton & Dr Khad Shah from Get Floe. Get Floe are an international team made up of experts in engineering, design, and dentistry, driven by a desire to improve healthcare outcomes for all. On their website Get Floe's motto is: "We’re putting the mouth at the front of everyday healthcare" We talked to Will and Khad about their careers, what fascinates them about diabetes and Oral Health and we got to know a little bit about Get Floe. Will & Khad also answered some specific questions on Diabetes and Oral Health from the community and shared some of their top tips or Oral Health. You can also listen back on Twitter Spaces:https://twitter.com/i/spaces/1djGXNapyboxZ?s=20
#diabeteschat - Dr Tom Crabtree
In this #diabeteschat podcast, our host Tom Dean is joined by Dr Tom Crabtree.
Dr Tom Crabtree is a Diabetes & Endocrinology registrar and ABCD research fellow working at the University Hospitals of Derby. Tom is the current chair of the YDEF committee. His interests include diabetes technology, type 1 diabetes and lessons from real-world data as well as sustainability recycling. Dr Tom Crabtree was heavily involved in the NHS England closed-loop pilot.
In this #diabeteschat podcast we talked about all these things:
- The role as a registrar
- Sustainability recycling
- Mental Health & Peer Support
You can also listen back on Twitter Spaces: https://twitter.com/i/spaces/1YqGoDqAQabJv
#diabeteschat - World Diabetes Day 2023 Virtual Conference
For World Diabetes Day 2023; #diabeteschat hosted a 6 hour virtual conference. We had lots of guest speakers, for the fun packed event, raising lots of awareness for Diabetes. The event was Monday 13th November 2013 and started at 6pm and ran to 12am GMT (UK Time). We raised lots of awareness for all types of diabetes and heard from lots of different people from around the world. You can go to the specific chats below: 💙 00:00 Welcome Slides 💙 07:33 Introduction from Tom Dean (Founder) 💙 10:16 James Ridgeway - 'Under the umbrella Diabetes Types in 10 minutes' 💙 27:42 #diabeteschatkids ft. Lochlan, Shane, Max & Tahlia 💙 43:23 Diabetes Art ft. Kes and The Diabetic Survivor 💙 1:06:38 Type 2 Chat ft. Gary, Claire, Mel and Desmond (Julia) 💙1:39:09 Technology talk ft. Shaun (Derby T1 Group), Dr Emma Wilmot & Tim Street 💙 2:22:01 Celebrity chat ft. Tom Dean & Jonny Labey 💙 2:40:16 HCPs chat and Q&A with Partha Kar and DSN Forum; Amanda, Beth & Vicki 💙 3:42:17 Parent chat ft: Mary, Edelle, Michelle, Maddie & Rob 💙 4:10:57 Global advocates chat 💙 4:41:48 Live entertainment & chat with Tony 💙 5:05:04 Open Forum Chat with the diabetes community 💙 6:05:55 Prize Draw 💙 6:11:36 Final comments #diabeteschat #WorldDiabetesDay2023 #WDD2023
#diabeteschat - Ginger Vieira
This week joining our hosting duo of Mary and Flipper was Ginger Vieira as our #diabeteschat guest speaker.
Ginger Vieira has lived with type 1 diabetes since 1999, along with Celiac, fibromyalgia, and hypothyroidism. Ginger is the Associate Director of Communications at T1D Exchange which works to improve the care and quality of life for people with type 1 diabetes through research. She has written many articles & Her books are staples within the commniuity covering subjects from dealing with burn out to pregnancy with type 1. Her most recent book, published earlier this year, aims to demystify the science around excercise & type 1.
In this chat we talked abut Gingers diabetes diagnosis, Afressa (inhaled Insulin), burn out, exercise, prevention and mental health.
#diabeteschat - dedoc Voices
In this #diabeteschat episode Tom was joined by Bastian and Renza from the #dedoc° team. #dedoc° is an international community by and for people with diabetes and was founded in 2012 by Bastian Hauck, who created the Twitter hashtag #dedoc to host weekly TweetChats for the German chapter of the Diabetes Online Community. #dedoc° host many events including #docday, #doctalk, #dedoc symposium (at EASD, ISPAD) and a World Diabetes Day special. In 2020, #dedoc° launched the #dedoc° voices scholarship program. In this episode the #diabeteschat community learned more about #dedoc°, their events and scholarship programme and we talked about the #blueballoonchallenge and lots more. We also heard from amazing #dedoc° voices as they shared what #dedoc° means to them. You can find out more about #dedoc° by visiting their website: https://www.dedoc.org/
#diabeteschat - Verity Pitts
In this podcast episode of #diabeteschat we caught up with guest speaker Verity Pitts. Our hosting team Gary and Claire got to know Verity with our quick fire questions and we heard about her diagnosis stories and journey with her diagnosis during the COVID pandemic. We will talked about her travelling and her time on the channel 4 program "Make me Prime Minister"; and how she managed her type 1 diabetes. We wrapped up the conversation talking about mental health and peer support. You can also tune in via Twitter/X spaces: https://twitter.com/i/spaces/1YqxoDNlrdvKv/peek
#diabeteschat QiC Peer Support Award 2023 (a big Thank you message)
In this video, #diabeteschat founder Tom Dean highlights the togetherness of community and peer support and celebrates the journey #diabeteschat has been on and the huge achievement of the QiC Peer Support Award 2023 in a thank you message. We wish to thank all the amazing people that have supported the #diabeteschat community since we founded on February 7th 2022; from our amazing team past & present, you guys as the community and organisations and support groups that have supported our peer support community.
#diabeteschat - Dr Rose Stewart
In this #diabeteschat community chat we spoke to our guest speaker Dr Rose Stewart. Mary and Flipper were our hosting team. We chatted about Rose's career as an Consultant Clinical Psychologist. We also talked about diabetes burnout and the emotional challenges of managing diabetes and mental health and stigmas attached to diabetes and lots more. You can also tune in via Twitter/X spaces: https://twitter.com/i/spaces/1LyGBnebLzPGN
#diabeteschat - Dr Alistair Lumb
In this #diabeteschat, Tom is joined by our guest speaker and diabetes consultant Dr Alistair Lumb. We talked about: 💙 his career working in the diabetes field 💙 his role as DTN UK chair 💙 technology 💙 sports & exercise tips 💙 & Dr Alistair Lumb welcomed questions from the community You can also tune in via X Spaces: https://twitter.com/i/spaces/1YpKkwylZZEKj
#diabeteschat - Duke Al Durham (18/9/23)
On this #diabeteschat episode Flipper spoke to Duke about his diabetes diagnosis and journey, OCD, mental health and peer support. We also spoke about Duke's career as a poet and did a live performance reading his poems. You can also listen on Twitter spaces: https://twitter.com/i/spaces/1mnxepyyANAJX/peek
#diabeteschat - Diathlete (11/9/23)
This week we welcome Gavin and Paula as our guest speakers from Diathlete and your hosting duo are Mary and Tom. Gavin with diagnosed with type 1 diabetes at the age of 8 and Paula was diagnosed with type 1 diabetes at the age of 4. Paula is a Paediatric Diabetes Dietarian. In this #diabeteschat episode we will learn more about Gavin and Paula's diagnosis and journeys with diabetes before getting to know how they met. We will learn more about Paula's career and talk to Gavin about all the amazing things he has done with running and marathons. He did 25 in one month - incredible. We'll find out how he managed his diabetes every step of the way. We'll also talk about the amazing charity Diathlete and all the incredible things they are doing, including; workshops, events, camps and the upcoming t1 festival in October. You can also tune on Twitter: https://twitter.com/i/spaces/1MnxnpPaPyVGO/peek
#diabeteschat - Tiernan Douieb (4/9/23)
This week we welcome Tiernan as our guest speaker. We will be talking about his diagnosis and journey with living with diabetes from the age of 4. We'll hear how life was growing up with managing diabetes in his childhood, teenage years and beyond and talk about the tech he has used. We'll also be talking to Tiernan about his career as a writer, producer, actor, podcast host and comedian. We'll hear how Tiernan manages his diabetes in a busy active lifestyle...including being a parent...plus lots more. I'm sure we will have a giggle or two across the hour as well. Come join Tom and Gary for #diabeteschat for our first guest speaker chat of September. You can also tune on Twitter: https://twitter.com/i/spaces/1yNGaNLNQPEJj?s=2
#diabeteschat - #DiabetesTechCantWait (31/07/23)
On this #diabeteschat episode Tom was joined with Paul, Lesley and Alison from the #diabetes community. We will also be joined by Daniel from Diabetes Scotland. Our important topic was learning about the Tech Collective and all about #DiabetesTechCantWait. We talked about access and equality across Scotland, the UK and all around the world.
#diabeteschat - Leon Tribe (24/07/23)
In this #diabeteschat we were joined by Leon Tribe from Australia. You may also know Leon as the practical diabetic online or from his website. Leon is a diabetes advocate, public speaker, writer and trained physicist based in Sydney, Australia. Leon was originally misdiagnosed with Type 2 before correctly being diagnosed as having Type 1 LADA a couple of weeks later. Now Leon runs the Practical Diabetic website, a monthly Type 1 meetup in Sydney, a brilliant Etsy shop and some is a member of #DeDoc. Most recently attending ATTD in Berlin this year which is Advanced Technologies & Treatments for Diabetes Conference.
#diabeteschat - Book Club (10/07/23)
This week on the #diabeteschat we held our first ever book club night hosted by Gary and Claire. We were joined by three authors who have created their own diabetes books. They shared their background and connections to the diabetes world and we heard what inspired them to create a diabetes book. We also heard to some snippets from each book We will be joined by: - Captain Lantus - Max and Gary - Daisy Donald - Jade - Bae a badger with t1diabetes - Jo
You can also listen back on our Twitter page: https://twitter.com/i/spaces/1yoKMZWEeZeGQ
#diabeteschat book club - a sneak preview into the books
On Monday 10th July 2023 the #diabeteschat community held it's first ever book club event and our guests were - Max and Gary from Captain Lantus - Jade from Daisy Donald - Jo from Bae, a badger with type 1 diabetes. In this short video; Max, Jade and Jo read and share a few pages of their incredible books with the #diabeteschat community - enjoy. You can listen to the full episode here: https://www.youtube.com/watch?v=q_fd-aILRPg&t=6643s You can find out more information about each of our books here: Captain Lantus: https://www.captainlantus.com/ Daisy Donald: https://www.blackbirdcreativearts.co.uk/about-daisy-donald Bae, a badger with type 1 diabetes: https://www.shine-books.com/
#diabeteschat - Amanda Epps (03/07/23)
This week on the #diabeteschat we were joined by Amanda Epps. We heard about Amanda's diagnosis with Type 1 Diabetes as well as her son's diagnosis story and how she manages type 1 parenting. We also talked about Amanda's career as a DSN, the DSN Forum, diabetes 101, and much more.
#diabeteschat - Eden & Desmond (26/06/23)
This week on the #diabeteschat we were joined by Eden and Desmond. We started the night finding out more about Laura, James and Julia; hearing their background to diabetes, their roles at EDEN and Desmond and what fascinates them about Diabetes. We then learnt lots about Leicester Diabetes Centre, EDEN and Desmond and James shared some information about the different types of diabetes. Laura and Julia spoke about the importance of Education and outlined detailed information about EDEN and Desmond. To conclude the chat; James shared insights into the importance of peer support and spoke about his Omnipod peer support group at the Leicester Diabetes Centre. You can also listen in on #diabeteschat on Twitter Spaces: https://twitter.com/i/spaces/1eaJbrAOYqYJX/peek
#diabeteschat - Lochlan's Legacy (19/06/2023)
This week on the #diabeteschat we were joined by Lesley and Lochlan from Lochlan's Legacy and we heard all about Lochlan's diabetes diagnosis and journey. We also heard from mum Lesley and heard the parents perspective and how she found supporting Lochlan with his diabetes since his diagnosis at the age of 4, 10 years ago. We also learnt lots about the amazing charity Lochlan's Legacy - how it all started and some of the amazing fundraising and advocacy work they have been doing for the diabetes community in raising awareness for diabetes. You can also listen in on #diabeteschat on Twitter Spaces: https://twitter.com/i/spaces/1OdKrzLRyllKX/peek
The Diabetes Football Community talk about DiaEuros 2023
In this short #diabeteschat episode we speak to Jon, Callum and Joe from the Diabetes Football community. The lads shared a little about their diabetes connection; when they were diagnosed, what they use to manage their diabetes and their go to hypo treatments. We learnt about how the diabetes football community started in 2017; founded by Chris Bright and how the community has grown, now with a ladies team and a support group for parents and their children. We talked about the European Futsal Championships in Poland and the amazing achievement for the team in finishing 4th place and representing the UK.
#diabeteschat - Mel Stephenson Gray (12/06/23)
This week on the #diabeteschat we were joined by Mel Stephenson Gray. We heard about Mel's journey and diagnosis of Type 1 Diabetes from the age of 13 years old. We also talked about: - juggling life and managing diabetes as a mum - her ambassador roles and involvement with JDRF & DUK - her sports background and life with sport and managing diabetes - BlueCircleCD, her career as a dietician, plus much much more. You can also listen in on #diabeteschat on Twitter Spaces: https://twitter.com/i/spaces/1ZkJzXLAMBeKv?s=20
#diabeteschat - The Type 1 Club and Parent chat (5/6/2023)
On this #diabeteschat episode we were joined by parents of the Type 1 Club. We heard all about the amazing group and how it all started, the events they do and all the amazing fundraising they do to support children and their families. We spoke to Edelle, Gayle and Kelly and learnt how they support their loved ones with diabetes and themselves. We'll also talked about: – Mental Health and peer support – Technology – What advice would they say to new carers/parents +much more You can also listen in on #diabeteschat on Twitter Spaces: https://twitter.com/i/spaces/1lPKqBekdLlGb/peek
#diabeteschat - Jerry Gore and Action4Diabetes (29/05/2023)
On this week's #diabeteschat, Tom caught up with Jerry Gore. Jerry shared lots of fascinating stories about his amazing expeditions that he has been involved in over the years including; climbing K2, Jerry's Insulin Challenges and the Insulin360 expedition. We also spoke about Jerry's diabetes diagnosis in 2001 and how he manages his diabetes with such a active and physical lifestyle. Jerry also shared all the wonderful things Action4Diabetes (a charity Jerry co-founded in 2015) are doing to support children and their families in South East Asia. You can also listen in on #diabeteschat on Twitter Spaces.
#diabeteschat - Ros Gray (22/5/2023)
On this week's #diabeteschat we were joined by Ros Gray. She spoke to Flipper and Tom about her diabetes diagnosis and journey and how technology has changed over the past 40 years since diagnosed with type 1 diabetes as a toddler. Ros also spoke about her amazing advocacy work she has done for the diabetes community and talked about diabetes and pregnancy and parenting, plus much much more. You can also listen in on #diabeteschat on Twitter Spaces.
#diabeteschat - Mental Health chat (15/5/2023)
Mental Health Awareness week commenced Monday Monday 15th May 2023. On the #diabeteschat we talked about mental health and peer support and were joined by the GBDoc community to discuss this very important topic. You can also listen on Twitter: https://twitter.com/i/spaces/1OwGWwkqoQpGQ and use the hashtag - #diabeteschat
#diabeteschatstories - Hybrid Closed Loop Event
In this #diabeteschatstories event we were joined by Prof. Partha Kar and we had a live Q&A with the #diabeteschat community; all things Hybrid Closed Looping. We also spoke with Yasmin Hopkins who shared her lived experiences of Hybrid Closed Looping and we shared the communities views on HCL. You can check out the full schedule and timestamps below: 4:30 Intro 5:16 Digibete Video of HCL 9:06 Q&A with Partha 1:04:18 Community Views 1:13:15 Yasmin Hopkins - Lived experience chat of HCL 1:32:43 Panel Discussion of HCL 1:46:53 Closing Remarks 1:48:35 End Slides and messages from the community
#diabeteschat - Jacq Allan (1/5/2023) - Eating disorders in Type 1 Diabetes
On the 1st of May 2023, Jacq Allan joined the #diabeteschat as our guest speaker. Jacqueline Allan is a diabetes psychologist who is also an associate lecturer at Birkbeck, University of London, and has been in this role since January 2022. She has worked at King's College London as a trainee clinical psychologist until recently. Since 2009, Jacqueline is the co-founder of Diabetics With Eating Disorders (DWED), a charity that provided support, raises awareness, advocates for change, and shares personal experiences with diabetes and eating disorders. Jacqueline completed her first Ph.D. from Birkbeck, University of London, where she studied Eating Disorders in Type 1 Diabetes. She has highlighted the lack of knowledge in this area for people with type 1 diabetes and the need for her to pursue multiple Ph.D.'s to further awareness in type 1 eating disorders. She has also been the PPI Co-ordinator for the STEADY project (NIHR funded) since March 2018. Jacq’s lived experience, work and compassion for the type 1 diabetes community feeling the impact of the combination of this condition tied to disordered eating has been instrumental to the awareness of the seriousness and prevalence of T!DE. Resulting in official recognition of insulin omission as part of symptoms for disordered eating in the DSM and a section in NICE guidance. In this podcast episode, Jacq speaks to Mary and Kes and shares her diabetes journey and diagnosis, her career and talks about eating disorders and mental health.
You can also listen on Twitter: https://twitter.com/i/spaces/1RDxlaqMBjqKL and use the hashtag - #diabeteschat
#diabeteschat - Kes Fuller (24/4/2023) - Social care & Diabetes in the community
On the 24th of April 2023, Kes Fuller joined the #diabeteschat as our guest speaker.
Kes originally wanted to join the Royal Navy as this had always been something that she wanted to do from her time with the sea cadets. As time went by Kes was unable to do this as she became increasingly unwell. This led to Kes becoming a social worker in 2013. Kes has worked in 3 different local authorities in the south, and Kes is passionate about education issues, SEND and mental health. Kes is also a practice educator and assessor. Kes was misdiagnosed with t2 initially became even more unwell and then t1 in July 2019. Kes started with Humalog mix 25 1 week before travelling abroad to Tunisia. Switched to bolus / basal Humalog & Abasaglar, then Fiasp and Tresiba and now Fiasp pump 789g looping Guardian 4. In this podcast episode Tom & Toni spoke with Kes and we learned more about our #diabeteschat co-host and her diagnosis of T1 diabetes, her career as a social worker and we talked about peer support and mental health. You can also listen on Twitter: https://twitter.com/i/spaces/1ZkKzXNkpdRJv and use the hashtag - #diabeteschat
#diabeteschat - Natalie Balmain (17/4/2023) - Mental Health & Tech equality
On the 17th of April 2023, Natalie Balmain joined the #diabeteschat as our guest speaker. Introduction: Natalie is a lady of many talents. She describes herself as a broadcaster, designer & Campaigner. She founded her company Type 1 Clothing back in 2017 based on a novel idea of being able to inject or access diabetes tech with ease. Last year Natalie took part in, and won, the first series of Make Me Prime Minister on Channel 4. Natalie was diagnosed with type 1, 3 months before her 21st birthday, and more recently has been diagnosed with ADHD. In our guest speaker chat, Mary and Flipper speak to Natalie and we spoke about Natalie's diabetes diagnosis and journey. We will also talk about her career, some of the campaigns she has been part of and her appearance on Channel 4's Make me Prime Minster. We also spoke about Mental Health, burnout and access to technology equality. You can also listen on Twitter: https://twitter.com/i/spaces/1ZkJzXVr... and use the hashtag - #diabeteschat
#diabeteschat - Research Event (27/3/2023)
On Monday 27th March 2023 we hosted our third #diabeteschat Research Event with hosts Toni, Tom and Gary. We heard from 6 speakers who shared their diabetes research with our community. Each guest speaker had 15 minutes to share a little about themselves and their diabetes research. We were joined by: - Diana Ferro - Hilary Nathan from JDRF UK - Jonathan Golding - Dean Minnock - Jacq Allan - Jasmine Schipp We finished the evening with a Open panel Q&A where the community asked questions to the researchers about their research. You can also listen back on Twitter: https://twitter.com/i/spaces/1nAKErVE... and use the hashtag - #diabeteschat
#diabeteschat - Menopausal Mithers Community (13/3/2023)
On the 13th of March 2023, Menopausal Mithers joined the #diabeteschat as our guest speaker.
In this podcast episode Kes and Mary hosted the lovely ladies from the Menopausal Mithers community. We spoke with Alex, Shiv, Anita, Sammy and Dawnie. We had a fantastic lived experience panel discussion taking about each others diabetes diagnosis and raising awareness of Menopause.
We were also joined by other women from the #diabeteschat community who came and joined the discussion. We were joined by Anna, Siva, Ann, Linda, Helen and Belinda. It was also nice hearing some men come upto the microphone and express their empathy and solidarity for women with diabetes, experiencing menopause - we were joined by Gary and James.
#diabeteschat - Menopause chat with Dawn Adams
In Part 1, Dawnie spoke with Tom and shared her Diabetes diagnosis, symptoms and diabetes journey and then shared with the #diabeteschat community - What is Menopause and what are the three stages of Menopause. Dawnie then talked about the twitter community - Menopausal Mithers.
In Part 2, Dawnie spoke with Kes and discussed what support is there for women with diabetes when it comes to menopause and the symptoms that have been most challenging. Dawnie also spoke about how HCPs are able to provide advice or guidance and If she could could recommend one thing to make menopause easier what would that thing be.
Tune in for this 30 minute special #diabeteschat podcast episode raising awareness for Menopause.
#diabeteschat - Sam Brand (6/3/2023)
Sam Brand is a British professional cyclist from the Isle of Man who was diagnosed with type 1 at 10 yrs old. Growing up Sam played many sports & competed in thriathlon, qualifying to race in the ITU World Championships. Sam was spotted by Team Novo Nordisk, a team whose athletes all live with type, which lead to him joining their elite triathlon squad. He later decided to focus exclusively on cycling & joined the Team Novo Nordisk’s development squad in the 2016. Following a strong showing with the development squad, Sam debuted in the pro ranks as a stagiaire (an apprentice) in August 2017. In 2018 Sam turned professional. Sam has ridden in many races including the one day classic Milano-Sanremo & has represented the Isle of Man at 2 commonwealth games.
In this podcast episode Flipper, Gary, Kes and the Diabetes Chat community asked questions to Sam and we learned about his incredible journey of living with diabetes and how he manages his diabetes with everyday life being a professional cyclist. We also talked about mental health, peer support, stigmas, plus lots more.
#diabeteschat - DAFNE (27/2/2023)
DAFNE stands for ‘Dose Adjustment For Normal Eating’. It evolved from the education programme and insulin regimen developed in Germany by Michael Berger in the 1980’s and teams from Northumbria, Sheffield and Kings visited Germany together in the late 1990’s before bringing the programme back to the UK and adapting it for the UK population. DAFNE believes all adults with type 1 diabetes should have access to high-quality training in the use of insulin, so they can live their life with as few restrictions as possible and still achieve glucose results within healthy targets to reduce the risk of long-term diabetes complications. There are 108 DAFNE centres around the UK, Republic of Ireland and Crown Dependencies and it’s also been established in Australia, as OzDAFNE, and in Kuwait. Liesl joined the #diabeteschat and represented DAFNE UK. Liesl is a registered nurse and became a Diabetes Specialist Nurse in 1999, a DAFNE educator in 2005 and joined the national DAFNE team as a trainer and quality assessor in 2017.
In this podcast episode Tom, Toni, Kes and the #diabeteschat community learnt lots about what DAFNE is and we spoke to DAFNE graduate Stewart Betts. We also had a very informative and interactive community Q&A with DAFNE and the #diabeteschat community.
#diabeteschat - Dr Amar Puttanna (20/2/2023)
Dr Amar Puttanna is a Diabetes and Endocrine Consultant in the West Midlands and National Advisor for NHS Engagement for Sanofi UK. He is particularly interested in education, having won teaching awards from the University of Birmingham and the Royal College of Physicians of Edinburgh and currently sits on the MRCP examining board. Amar has previously worked with the European Association for the Study of Diabetes (EASD) on their e-learning platform. In 2018 Amar received an Excellence in Patient Care Award from the Royal College of Physicians for contribution to the profession. Dr Puttanna's interests are in cardiovascular disease, diabetes management in older adults and translating research into clinical practice. His work in cognitive impairment (DIADEM project) has won a Quality in Care award in 2018. He sits on the editorial board for the British Journal of Cardiology and is a known national and international speaker in diabetes and finally Amar is a member of GoggleDocs, a group made up of doctors who share a passion for medical education and deliver video podcasts via their YouTube channel.
In this episode Tom, Mary and the Diabetes Chat community asked questions to Dr Amar Puttanna and we learned about his diabetes connection & path to becoming a consultant & national advisor and about the @GoggleDocs community. We also talked about the importance of Education, his EPCA and QiC awards and our main topic of discussion was on diabetes management in older adults frailty and dementia and diabetes
#diabeteschat - Paul O'Neill (13/2/2023)
Paul O'Neill is a former British Touring car Championship driver, and now is an ITV sports pundit. Paul found his passion for motor sports from a very young age and had an impressive 15-year career in the hot seat and achieved notable successes along the way including his famous first BTCC (British Touring Car Championship) win on his home circuit in 2002. In 2004 Paul was diagnosed with Type 1 Diabetes and was forced to rebuild his career over the coming years; returning back in to the track in 2006, achieving an impressive three top-tens in the six remaining races. Paul’s next full season in BTCC would come in 2009. Paul is the co-founder of 29 Productions and does mentoring, coaching and tuition.
In this episode Tom, Gary, Kes and the Diabetes Chat community asked questions to Paul and we learned about his incredible journey of living with diabetes and how he managed his diabetes with everyday life being a professional race driver and we talked about mental health, peer support, and his ambassador roles for Diabetes UK and The Sporting Memories Foundation, plus lots more.
#diabeteschat - Jack Iredale (6/2/2023)
Jack is a professional footballer who plays as a defender for League One club Bolton Wanderers, after joining them in the summer of 2022. Jack was born in Scotland, before moving to New Zealand and then over to Australia. Jack has played for 2 local teams in Australia; before moving back to his hometown and joining up with Greenock Morton in 2017. With brief spells at Queens Park and Carlisle United; Jack joined Cambridge United in 2020 and was part of the league one promotion success of 2020/2021; all while managing Type 1 diabetes. Jack is an inspirational to all; showing anything is possible with type 1. Jack was diagnosed with Type 1 Diabetes, Christmas time 2009, aged 13 and tonight we are honoured to welcome Jack to the #diabeteschat community.
In this episode Tom, Gary and the Diabetes Chat community asked questions to Jack and we learned about his incredible journey of living with diabetes and how he manages his diabetes with everyday life being a professional footballer We also talked about mental health, peer support, stigmas and his ambassador role for Lochlan's Legacy, plus lots more.
#diabeteschat - Peter Davies & Lis Warren (30.01.23)
Lis Warren has lived with type 1 diabetes since 1965. Having spoken to only a few others with diabetes in her first 4 decades with type 1, she’s now an active volunteer, patient advocate and a representative ‘expert by experience’ in NHS and diabetes research committees and with the diabetes charities. Lis believes that diabetes is only a word and not a sentence. She’s keen to help others recognise the positive attributes this condition encourages one to develop. Lis is passionate about the need for healthcare professionals to empower people; to care for themselves well - by providing ongoing education, clinical support and flagging sources of peer support.
Pete Davies was born in Kenya and has many happy memories of growing up in that beautiful country. Whilst his family were home on leave in the UK, Pete was diagnosed as having Type 1 diabetes: a dreadful shock for his family. However, he was put under the care of World-famous Dr RD Lawrence (who almost died from Type 1!). Thanks to the positivity of Pete’s parents and Dr Lawrence, his diagnosis did not prevent the family returning to East Africa. He was educated in Nairobi until he was almost 8 when his family returned to live in the UK. Pete became a teacher of Design & Technology – a subject he always loved. As a grandfather, he still enjoys a busy and very active life and takes a great interest in the exciting developments in Type 1 technology. He also spends time travelling to speak at conferences, JDRF Discovery Days and like Lis, he serves on committees whose aim is to improve the lives of those living with T1D. Pete has fascinating stories to tell which include the dramatic changes he has seen in diabetes treatment over the years, and he has an amazing collection of old Type 1 equipment which he loves people to be able to see. Pete also gives fascinating accounts of the challenging high-altitude treks and long-distance hikes he has taken part in since 2004.
In this episode Tom, Mary, Toni and the Diabetes Chat community asked questions to Pete and Lis and we learned about their 123 (combined) years of living with diabetes. We talked about:
- Their Diabetes Diagnosis & Journey; including what it was like growing with diabetes in the 50s and 60s.
- The technology they used to administer their insulin (syringe, injection guns, injections (mdi) and pumps) and what they used to check their blood glucose levels (Clinitest, Autolet, finger pricking meters, CGM).
- How Pete & Lis met and the things they have been involved in together.
- Hypo Awareness and their hypo experiences and challenges.
- Mental Health, Advocacy and the importance of peer support; including #TAD and #duckfiabetes.
#diabeteschat - Salih Hendricks (23.01.23)
Salih Hendricks is 56 years old from Cape Town South Africa and has been a diabetes advocate for over 30 incredible years; diagnosed with Type 1 diabetes 40 years ago. Salih had his leg Amputation 2 years ago - 19 October 2020. Salih is a motivational speaker not only for his community; but for W.H.O (World Health Organization), he is a member and advocate of the #dedoc community, board member of the Diabetes South Africa and program and Director for the Persons with Disabilities City of Cape Town. Salih launched the Diabetic Amputee Community of South Africa in Sweden Stockholm in September 2022 for the (EASD) conference. Salih's passions and values are and quote "My Disabilities and Diabetes is a blessing and I will spread the lived experience to all four corners of the world".
In this episode Tom, Mary and the Diabetes Chat community asked questions to Salih. We talked about:
- His Diabetes Diagnosis & Journey
- Complications of living with Diabetes and his amputation in 2020 - before and after stories.
- Stigmas attached to Diabetes
- Mental Health
- His advocacy and the importance of peer support.
- The community he set up - Diabetic Amputee Community
#diabeteschat - Prof May Ng OBE (16.01.23)
Professor May Ng is an Honorary Professor and Consultant Paediatric Endocrinologist. Professor May completed her undergraduate degree MBBS (Hons) under full scholarship in Sydney, Australia and was the recipient of the UK Medical Research Council Fellowship. She further obtained a Masters and PhD degree in paediatric endocrinology and diabetes in the UK. She also has a Master of Laws and an MBA in Healthcare and Finance Management.
Professor May has published over 200 research papers and authored 3 books ‘A guide to Type 1 diabetes management, technology and everything else you need to know; ‘A Journey With Brendan’ and ‘Me and My Hormones’. Some of Professor May’ roles include: Chair of UK Association of Children’s Diabetes Clinicians and voluntary Chief Medical Advisor for Action4Diabetes
May was awarded an OBE on the 2022 Platinum Jubilee Queen Elizabeth II’s Honours for Services to People with Diabetes and People with Autism and Disabilities. She is also recipient of numerous awards such as the Diabetes UK Arnold Bloom award 2023, and winner of Northwest Excellence in Healthcare NHS Parliamentary Awards 2020...and May is also active in charitable causes to raise autism and deaf awareness.
In this episode Tom, Gary, Kes and the Diabetes Chat community asked questions to Prof May Ng OBE. We talked about:
- Her Diabetes Connection, Career Background & OBE
- Her Research and Books
- NICE project of CGM for all & Health Inequalities to Technology
- Mental health, advocacy and peer support.
#diabeteschat - Jamie Lowe (11.01.23)
Jamie Lowe is an all-rounder Broadcaster, Podcaster, Vlogger, Presenter, Producer, Journalist and currently works at the BBC. His Podcast is called 'Jamie And The Broken Pancreas'. Jamie has Type 1 Diabetes and was diagnosed in 2015 aged 21 after graduating from university. Jamie is a super advocate for diabetes and raises lots of awareness for the condition on his social media platforms, videos, blogs & podcasts.
In this episode Tom, Gary and the Diabetes Chat community asked questions to Jamie. We talked about:
- His Type 1 diagnosis and diabetes journey.
- His career as a content creator.
- His blogs, YouTube vlogs and podcast - Jamie and The Broken Pancreas
- Stigma’s, mental health, advocacy and peer support.
#diabeteschat - Elizabeth Rae (12.12.22)
Elizabeth Rae was born in the USA and has lived with type 1 diabetes for over 30 years. She was diagnosis at the age of 4. Elizabeth completed her masters degree In International Development at the London School of Economics and Political Science. Elizabeth has a background with non-profit, diabetes and health organisations and is the founder of T1International.
In this episode Tom, Chris and the Diabetes Chat community asked questions to Elizabeth. We talked about:
- Her Type 1 diagnosis and diabetes journey.
- Her career and education background.
- T1Internation and ‘#insulin4all.
- Stigma’s, mental health, advocacy and peer support.
#diabeteschat - Nusrat Kausar (05.12.22)
Nusrat Kausar is a Diabetes Dietitian and has worked as a dietitian in hospitals and is a volunteer for Diabetes UK for the children camps they run.
In this episode Tom, Chris, Flipper and the Diabetes Chat community asked questions to Nusrat. We talked about:
- Her career background
- Diabetes Camps
- Diabetes advocacy
- Peer support
- Christmas Top Tips and FAQ
We also had a fun community quiz and discussion.
#diabeteschat - JDRF Community Engagement Team (28.11.22)
In this episode Tom, Chris, Flipper and the Diabetes Chat community asked questions to to JDRF UK' Community Engagement Team. We were joined by Dan Farrow, Chris Bright, Edelle Irwin, Mary Murphy and Lesley Jordan.
The Community Engagement team joined the #diabeteschat Twitter Space as guest speakers and we talked about:
- What is JDRF and their roles within the Community Engagement Team.
- Their T1 diagnosis & diabetes journeys.
- Data and Technology - the impacts of using technology for everyday life and how it has impacted on their quality of life and hopes for the future.
- Peer support, diabetes advocacy and peer support groups (The Diabetes Football community & The T1 Club).
- Diabetes Stigma.
#diabeteschat - Tim Street (21.11.22)
Tim Street runs a website / blog called the diabettech that covers lots of aspects of diabetes technology including investigating's into different CGMs. Tim also contributes extensively to the Android APS platform and has done work on algorithms to help look at fully closing the loop,
In this episode Tom, Chris, Flipper and the Diabetes Chat community asked questions to Tim as he joined the #diabeteschat Twitter Space as guest speaker and we talked about:
- T1 Diagnosis & diabetes journey from his 13th birthday in 1988.
- Data and Technology and experimentation.
- CGMs - What’s available and how they compare to each other.
- How CGMs even measure how accurate they are?
#diabeteschat - Muhammad Irfan Ismail (14.11.22)
Muhammad Irfan Ismail has a background in Web design is now a Diabetes and Endo Pharmacist. He was diagnosed with diabetes 30 years ago and in this podcast he will take us on a journey over the years. Muhammad is a Futsal Player for The London Diabetes Football Community.
In this episode Tom, Chris, Flipper and the Diabetes Chat community asked questions to Muhammad as he joined the #diabeteschat Twitter Space as guest speaker and we talked about:
- T1 Diagnosis & diabetes journey.
- Career: Diabetes & Endo Pharmacist.
- NHS Pressures.
- Futsal - The Diabetes Football Community
- Mental Health, Advocacy and Peer Support
#diabeteschat - Parent & Carer night Part 2 (7.11.22)
In this very special podcast we chat to 10 amazing parents and carers about how they support their loved ones with diabetes and themselves.
In Part 2 we talk about:
- Mental Health
- What real life support and peer support have you around you?
- What would you say to new carers/parents - what advice would you give them?
#diabeteschat - Parent & Carer night Part 1 (7.11.22)
In this very special podcast we chat to 10 amazing parents and carers about how they support their loved ones with diabetes and themselves.
In Part 1 we talk about:
- How does insulin dependent diabetes affect your whole family?
- What part of giving insulin has been the most challenging?
- Travelling and Holidays
- What support do you really need on a day to day basis? What would make it easier?
#diabeteschat - Research Event (24.10.22)
This week we hosted our second Research Event on the #diabeteschat. We hosted and welcomed five amazing Research guest speakers to share a little bit about their research studies & projects.
We were joined by:
🗣️ Dr Jill Charlton @JillCarlton1
🗣️ Professional Simon Heller @simonrheller
🗣️ Emma Innes @emmainnes3p
🗣️ Belinda Moore @DIPadvocate17
🗣️ Tracey Oorschot @traceyo_71
Each speaker spoke for 15 minutes and shared their research and answered questions from Tom, Chris, Flipper and the #diabeteschat community about their research. We ended the evening with a live q&a panel discussion with the community and the panellists.
#diabeteschat - Nusrat Kausar & Dr Robert Andrews - Team Sports (17.10.22)
Nusrat Kausar is a Diabetes Dietitian and has worked as a dietitian in hospitals and is a volunteer for Diabetes UK for the children camps they run. He is also a researcher in Type 1 Diabetes. Dr Robert Andrews is a Doctor based in Taunton and his aim, research and education stems in helping people with Type 1 diabetes to exercise safely. In this third part of four series event; we talk to Nusrat and Rob about exercise and diet in relation to team sports. In this episode Tom, Chris, Flipper and the Diabetes Chat community asked questions to Nusrat and Rob as they joined the #diabeteschat Twitter Space as guest speakers.