Help for Hip Dysplasia
By Laura Rutterford
Help for Hip DysplasiaNov 06, 2023
Season 4, Episode 7: Bilateral Hip replacements with Rob Handshy.
On this episode, we chat with Rob Handshy about his bilateral hip replacements and returning to Brazilian jiu-jitsu to receive his Black Belt.
We talk about being inspired by other people’s journey’s, getting multiple opinions and finding the best surgeon for you, different surgical approaches, principles of recovery, conversations with various members of the health care team, and having a choice when it comes to pain relief.
Thank you Rob for sharing your story, for your time and being involved with supporting others on their journey’s.
If you’d like to follow Rob on IG, search: @Bionic_BJJ
Season 4, Episode 6: Replacements and re-surfacing with Shahrzad Shariatpanahi, Bio-Medical Engineer.
We chat with Shahrzad Shariatpanahi, a Bio-medical engineer about different designs for hip replacements and re-surfacing. We discuss the processes of deciding which materials, shapes and sizes are right for you, and why. We also touch on some of the research into failed replacements.
Thank you Shahrzad - already looking forward to part two!
For more information and to follow Shahrzad:
YouTube channel: / @shahrzadshariatpanahi5091
To find Shahrzad's book, "Wee tips, on knees and hips": https://amzn.eu/d/eKLFcJh
Genetic testing for metal allergies, as discussed in the podcast: https://www.explantlab.com/product/my...
NHS Implant Analysis Service (IAS):
Season 4, Episode 5: Bilateral hip replacement experience with Trevor Hackett
We chat to Trevor about his experience of hip replacement surgery following an avascular necrosis diagnosis, which lead to both hips and a shoulder being replaced.
Trevor is wonderfully open about his journey, and I'm grateful to have been able to speak with him today. We cover Trevor's story, opioid medications, depression and getting back to a life that he recognises a his own.
Trevor has been a wonderful advocate and has been inspired by so many other's stories - he wanted to share his story in the hope that he might be that inspiration to others. He welcomes people contacting him as he tells us that the online community was a tremendous help to him. You can find Trevor at @b10n1c_hippi3 on Instagram.
Season 4: Episode 4 - Mr John Clegg, Orthopaedic Surgeon.
It is an absolute privilege to be able to talk with Mr John Clegg in this episode.
Mr Clegg is an Orthopaedic Surgeon with a special interest in hips, and in particular hip dysplasia. He has produced research with Mr Nicholas Clarke and an incredible team, that has changed the screening programmes for babies in many countries, resulting in implementing the Graf Method, by Mr Reinhard Graf.
The statistics for "missed" cases in this research, and the countries that have this universal method of screening, is almost zero.
This research produced results that are incredibly hard to find fault with. In this conversation we discuss some of the reasons that it has unfortunately not been implemented in the UK as a universal screening tool, and why it is SO important to continue to raise awareness.
My hope is that the contents of this conversation will spark emotion, promote discussion, and add to the work of other advocates around the globe.
Please continue to ask questions, share your experiences, challenge the systems we live in, and speak up for the children that do not yet have their voice. The more awareness is raised, the more information we have to hand, the harder it is to deny these scans for the next generations.
Season 4, Episode 3 - Kate
On this episode we get to chat to Kate about her hip dysplasia diagnosis, body building, weight lifting and information on BFR (Blood flow restriction) training.
Thank you Kate for this brilliant conversation!
If you would like to follow Kate’s journey, you can find her @spindleblood on Instagram.
Disclaimer - BFRT is not something I’m trained in or have researched, so whilst I can’t professionally recommend it at the moment, it was a really interesting conversation that makes me want to understand more, and seems to have provided a huge benefit to Kate. If this is of interest to you, please consult a health professional, and do not attempt yourself.
Season 4, Episode 2 - Pudendal Neuralgia, Menopause and Hip Dysplasia - with Suzy Shutt
I get the opportunity to chat with my friend and colleague Suzy Shutt about her experience as a women's health Physio. We talk about Pudendal neuralgia and menopause - what they are, why they happen and how they affect those of us with hip dysplasia. It was a brilliant conversation that I personally learnt a lot from. I hope you find it interesting too.
You can find Suzy @themwordphysio on socials.
Season 4 episode 1 - Natalia Sylvester, Author of Breathe and Count Back From Ten.
This week on the Help For Hip Dysplasia Podcast, we chat to Natalia Sylvester, Author of Breathe and Count Back From Ten. We learn about Natalia's Hip Story, and how this has inspired her characters in her latest book.
The book is out in May and available for pre-order now! It was an incredible read, and one that truly made me feel seen and less alone in this world as someone with hip dysplasia, and I can't wait to hear other people's thoughts too.
It was wonderful to speak with you Natalia, thank you for your time, and your wonderful writing.
Find Natalia @nataliasylv on Instagram.
Season 3, Episode 11 - Sophia Luikinga
In this episode of the Help for Hip Dysplasia Podcast, we chat to Sophia Luikinga about her hip dysplasia journey, from childhood symptoms, to being about to receive her Hip replacement in 2 weeks time. We discuss Sophia's difficulty with sub-chondral cysts, a topic which she had difficulty finding research on, and we put out a call for anyone with proficient knowledge to get in touch... I would love to ask some questions on this topic, so if this is you, please message on IG or email me at firstname.lastname@example.org :-)
Thank you Sophia, for your time and honesty, it was a pleasure speaking with you!
Season 3, Episode 10 - Dr Timothy Mazolla
On this episode of the Help for Hip Dysplasia podcast, we chat to Dr. Timothy Mazolla. Tim is triple board-certified in Family Medicine, Sports Medicine and Musculoskeletal Ultrasound. He practices as a non-operative Orthopedic & Regenerative Medicine specialist at Regenerative Orthopedics & Sports Medicine of Boulder. His enduring professional passion is to bring restoration, healing and hope to those looking to return to the life they love and be the people they are called to be.
We discuss PRP (plasma rich protein), and Prolotherapy treatment, and how this can help regenerate and stabilise dysfunctional soft tissue like ligaments and muscles. We discuss other potential causes of impingement issues stemming from sacro-illiac instability. We discuss the research around these treatments and how important it is to look for treatment options for people that fall outside of mainstream treatment plans.
It has been wonderful to connect with Tim, and exciting to learn more about this area of treatment. Thank you Tim for your time and I look forward to continuing the conversation.
If you are interested in learning more about these treatment options, please visit Tim's website at: http://www.breakthroughortho.com/
Season 3, Episode 9 - Xandra Lee, Author of "Sex... with these hips?!"
I really enjoyed this conversation about the challenges faced in the relationships with ourselves and partners, from the emotional to the physical aspects of intimacy. I hope you enjoy it too.
You can find Xandra on Instagram @xandralee13, on facebook @xandra lee or through her website livingwithhipdysplasia.com
Season 3, Episode 8 - Dr. Charles T. Price
This week on the Help for Hip Dysplasia Podcast, we chat to Dr Charles T. Price, Director of the International Hip Dysplasia Institute. We discuss the questions put forward by you, this wonderful community!
Currently, and for the last 12 years, Dr Price manages The International Hip Dysplasia Institute at Arnold Palmer Hospital that is promoting awareness, providing access to information and encouraging efforts to improve the prevention and treatment of hip dysplasia worldwide. This amongst the many, many other achievements in his career.
Chad, as he prefers to be called, graduated from Emory University in Atlanta, then Baylor College of Medicine followed by Orthopedic Residency at University of Florida under William F. Enneking, and a pediatric orthopedic fellowship at Scottish Rite Hospital in Atlanta with Wood Lovell. Then he returned to Orlando and practiced pediatric orthopedic surgery at Arnold Palmer Hospital for 34 years where he served as Director of Pediatric Orthopedic Education, and as a Professor of Orthopedic Surgery at University of Central Florida College of Medicine.
He has authored over 80 scientific papers, 20 textbook chapters, and three books on topics including hip dysplasia, Perthes disease, bone lengthening, fracture management, and other research topics.
Chad has served as President of POSNA, President of the Limb Lengthening and Reconstruction Society of North America, and also served four years as Annual Meeting Chairman of the AAOS. In 2011, Dr. Price was honored with the Distinguished Achievement Award from POSNA primarily for rescuing and firmly establishing the International Pediatric Orthopedic Symposium that he chaired for eleven years.
Thank you Dr. Price for your time, and for this wonderful conversation!
Season 3, Episode 7 - Vishwa Buch
This week on the Help for Hip Dysplasia Podcast, we chat to Vishwa Buch, AKA @hipsdontlie_pt, from Ottowa, Canada.
Vishwa is a Physiotherapist and fellow Hippy. We talk about her Hip Dysplasia Journey, being misdiagnosed, being told that the pain was all in her mind, some tops tips and essentials for your hospital bag, navigating her journey through Covid times, and so much more.
At the end of our time today, we realise we have so much more to talk about, so we will be coming back for a return episode to discuss how your menstrual cycle can effect your hip pain, things to consider regarding your period for surgery.
Thank you Vishwa for your time today, it's been such a pleasure speaking with you!
Season 3, Episode 6 - Heather Colby
This week on the Help for Hip Dysplasia podcast, we chat to Heather Colby from Orlando Florida. Heather tells us about her Hip Journey, why she required 10 screws for her recent PAO, the challenges both mentally and physically, and the impact this has had and the considerations made, on her and her husband starting a family.
Heather speaks about how important communication is with everyone in your health care team, and the benefit of repeating yourself, over and over… and over!
Thank you Heather, for your time, and being open to being the first person to share the full conversation on video too!
The video version is new and now available on my IGTV @helpforhipdysplasia, so let me know if you like having this option. I can’t tell you it will be available for every conversation, I want everyone to share in the way that feels best to the individual, but if you like it, I will ask. :-)
Season 3, Episode 5 - Ashley Spalla
This week on the Help for Hip Dysplasia podcast, we chat to Ashley Spalla. Ashley is a returning guest from Thankful Thursday in the last Hip Dysplasia awareness week from @Miles4Hips, @PAOBuddies, and myself. We talk about Ashley's incredible Hip journey, filled with strength and inspiration. Ashley also tells us about access to adaptive sport, unlocking so many more activities than I knew were possible, and her work on the board with @miles4hips.
Thank you for your time Ashley, it's always a pleasure speaking with you.
Season 3, Episode 4 - Dr Laura Ricci
This week on the Help for Hip Dysplasia podcast, we Chat to Dr Laura Ricci, a physical therapist and essential oils expert. This episode is filled with so much useful information from Laura professionally, and also personally as she discusses her Hip Dysplasia journey.
We delve into pelvic physiotherapy and how this can relate to your hip dysplasia diagnosis and rehab, how essential oils can aid your recovery both mentally and physically, and how so much of the journey can be a mindset challenge.
Laura has so many platforms to find her incredible information so check out:
You tube: Dr. Laura Ricci
Thank you for your time today Laura - I loved this conversation and I know others will too.
Season 3, Episode 3 - Alanna Smith AKA @ecowildchild
This week on the Help for Hip Dysplasia Podcast, we chat to Alanna Smith from Hampshire in the UK.
We talk about her bi-lateral hip dysplasia journey, the importance of creating a community of support, some super useful tips for getting ready for surgery and how to access mobility aids independently in the uk (it's a lot easier than you think!)
Contact the Samaritans or the British Red Cross to apply for a wheelchair.
We also talk about the challenges of chronic pain *Trigger warning* - There is mention of end of life thoughts. I want to take another moment here to thank Alanna for her honesty and openness with these challenges, and hope that this honesty will be able to be of help to anyone else in a similar situation.
Thank you Alanna.
Find Alanna on Instagram @ecowildchild, where she is happy to chat and support people in this wonderful community.
Find Alanna's blog post at: https://ecowildchild.com/2020/08/21/hip-dysplasia-one-week-post-surgery/
Season 3, Episode 2 - Maria Carr
This week on the Help for Hip Dysplasia Podcast, we chat to Maria Carr AKA @hopefulhippies411 from California. Maria tells us all about her FAI journey, through her 7 surgeries, her passion for a strength based yoga practice, and how she plans to release a book focusing on Mantra as Medicine, so please keep your eyes peeled for this!
Thank you so much for your time and your inspiring words. Quote of the conversation - "I think I can, I think I can, I know I can!"
Find Maria's blog at hopefulhippies.net/blog
Season 3, Episode 1 - Ali Tonks AKA The Hippie Psych
Welcome to Season 3!
We're kick starting this season on Hip Dysplasia awareness week, brought to you by @miles4hips, @paobuddies and @laura.rutterford. Bringing you lots of great info for Healthy Hips, Healthy Bodies, Healthy Minds.
For this "Don't Worry Wednesday" I'm releasing this episode with Ali Tonks, aka @the.hippie.psych
Ali is trainee child psychologist and also a fellow hippy. Ali discusses with us some insights in to chronic pain, the research around it and how her work has influenced her hip journey to date. There were some amazing tips to help you manage with your pain, so listen in for those, but what really resonated with me from this discussion was her honesty and the importance of communication.
Contacts from the episode: UK dial code +44
Shout text line: 85258
Samaritans: Call 116123
Versus Arthritis: Call 0800 5200 520
(If anyone has recommendations for help lines to call from countries outside the UK, please send them into me, and I can make them accessible to everyone - Thank you)
I hope you enjoy this one as much as I did. Thank you Ali for your time - Laura x
Season 2, Episode 12 - Erin Roman
This week on the Help for Hip Dysplasia Podcast, we chat to Erin Roman, a Dietician from Canada, who received her bilateral hip replacement in November 2020. Erin is so passionate about spreading awareness of the journey of bilateral hip replacements from a physical, social and emotional perspective. Listen in for some amazing professional advice from Erin too, to get your gut working well before surgery, and help optimise your recovery process.
Thank you Erin for your time today, for sharing your story and being so open to giving your support to others.
If you would like to contact Erin, please find her on Instagram @erinaroman, on her website https://www.erinromanrd.ca/ and via email at email@example.com
Season 2, Episode 11 - Sydney Steinberg from PAO Buddies
This week on the Help for Hip Dysplasia Podcast, we chat to Sydney Steinberg, founder of PAO Buddies. From Sydney's dysplasia experience, she quickly recognised the value of having someone to talk to that had a similar story, hobbies and at a similar stage of their journey. Shout out to @cianna.rzepski! Sydney has since been able to give others the opportunity to have this same support by matching people on PAO buddies.
Please follow and show your support at @PAObuddies, and if you would like anymore information, head over to PAObuddies.org.
Thank you Sydney :-)
Season 2, Episode 10 - Kelly Cesti
This week on the Help for Hip Dysplasia Podcast, we chat to Kelly Cesti in Australia.
Kelly is so passionate about raising awareness and empowering other parents to fight for their children, after a difficult experience with her first child’s diagnosis. She gives a raw and heartfelt account of her journey, and valuable insight into the the way the healthcare system works in Australia. Kelly speaks about how to give yourself that extra confidence going in to your appointments, and how the extra challenges that hip dysplasia has given her child, has made her a strong and determined character.
Thank you Kelly for sharing your story :-).
Season 2, Episode 9 - Sara Ennocenti
This week on the Help for Hip Dysplasia Podcast, we talk to Sara Ennocenti.
Sara talks us through an eight year battle to diagnosis, her experience with insurance companies with some super useful expectations if you live in the US, and how COVID-19 challenged the surgery process this year. Despite these challenges Sara remains so positive, and it is inspiring to listen to her talk about her rehab, getting to spend quality time with her grandmother, and getting back to independence.
Thank you Sara for sharing your story with us, it was a pleasure to speak with you - Laura :-)
Season 2, Episode 8 - Billie Murphy
In this episode of the Help for Hip Dysplasia Podcast, we chat to Billie Murphy, a bionic cyclist, about her Hip dysplasia journey.
We talk about her multiple surgeries, the physical and mental effects of 5 years being on and off crutches, tips for managing chronic pain, and her return to cycling. Billie was so positive about where her experience has brought her to today, and inspires confidence for speaking up for your own body.
Thank you Billie for coming on today - Find her on Instagram @bilskym to follow her story.
Season 2, Episode 7 - Kathleen Callahan
This week on the help for hip dysplasia podcast, we meet Kathleen Callahan. Kathleen's dysplasia journey started a little differently, with 3 hernias and a mix of abdomen back and hip pain before finding her dysplasia diagnosis. Kathleen tells us about the difficulties of decision making, differing opinions and fighting for herself through the medical and insurance systems.
Kathleen's blog can be found at: https://medium.com/@KathleenCallah7
Find her on Instagram @kcalla31 for more on her story and super cute pictures of her puppy - Scout :-)
Thank you for your time Kathleen, it was a pleasure to speak with you!
Season 2, Episode 6 - Elaina Long
This week on the Help for Hip Dysplasia Podcast, we chat to Elaina Long, A personal trainer and yoga instructor with bi-lateral hip dysplasia. Her story involves Stem Cell therapy (BMAC injections), which we have yet to hear about on the show.
We talk about useful tips and tricks, and how experiences of various surgeries with differing levels of support, can impact your recovery, and we get inspired to create a directory of support in the UK to find all health practitioners and complimentary therapists with a good understanding of the condition to come forwards, to be easily found and accessed by those of us who could benefit - Is this you? Please get in contact @ Laura@helpforhipdysplasia.com
Elaina also emailed after the show with some additional tips:
1: Wear weight training gloves or padded cycling gloves with your crutches.
2: How booking a holiday on a caravan park, where everything was flat and easily accessible, was a huge relief after stitches were removed, with unlimited access to a pool.
3: Elaina was offered access (for an extra cost) of a Durolane injection, made up of hyaluronic acid, injected into the joint during surgery to increase the synovial fluid, reducing inflammation and recovery time. She reports that this was something she found valuable.
Find Elaina on Instagram @elainatrainer or at her website https://www.ridepersonaltraining.co.uk/
If you have any useful tips that you'd like others to know about, you can either:
- Email me, and we'll put them all together in a downloadable file on the Help for Hip Dysplasia Website
- Come and be a guest on the podcast and share your tips along with your story :-)
Season 2, Episode 5 - Dr Joel Wells M.D
This week on the help for hip dysplasia podcast, we have the opportunity to ask Dr Joel Wells all of the questions from you, the listeners and followers on instagram. We learn about Dr Wells’ role in miles4hips as medical director, and his new journey guide, to talk you through the whole process of your surgery and extra resources for you.
We discuss fighting for your hips, exercise, nutrition, medication, surgeries, and how not to get lost in the system.
This was a fantastic interview, filled with so much useful information, but the thing that stood out for me, was how much Dr Wells cares about his patients. He was truly inspiring.
I hope you enjoy it - Season 2, Episode 5, with Dr Joel Wells.
Season 2, Episode 4 - Claire Rosenhead
This week we chat to Claire Rosenhead, a fellow physiotherapist and hippy. Claire was diagnosed in 2018 and had 2 PAO's in 2019. We talk about working through 2 lots of rehabilitation, how knowing what to expect affects your preparation for the next surgery mentally and physically, but also, the importance of accepting each hip and each surgery for itself.
Claire gives us some great tips on strategies that helped her, and how this has varied in the current lockdown situation.
It was a pleasure to speak with Claire and I thank her for her time.
You can find Claire on Instagram @clairerosenhead.
Season 2, Episode 3 - Casey Aitkens
In this weeks episode we chat to Casey Aitkens, Mother to a daughter with hip dysplasia.
This episode is heart felt and tackles some difficult issues many parents experience with this diagnosis for their children, with some practical tips, and reassurance given throughout.
Thank you Casey for sharing your story.
Find Casey on instagram @Caseylauren0
Find Steps charity at https://www.steps-charity.org.uk/conditions/hip-dysplasia-ddh/
Season 2, Episode 2 - Andy Reid
On this episode, we chat to Andy Reid about his journey with hip dysplasia.
We here some great stories about pushing his limits with training and some really useful tips with how to manage pre and post surgery.
Find Andy on Instagram @andy.reid.148
Help for Hip Dysplasia - Season 2, Episode 1: Hip Dysplasia awareness month with Nancy Muir.
Nancy Muir returns to catch up, and discuss Hip Dysplasia awareness month coming up in June!
Take a look at her website www.miles4hips.com to see how you can get involved to help support the International Hip Dysplasia Institute to raise awareness and fund research to make real change for current and future hippies like us.
You can also find Nancy @miles4hips on facebook and instagram.
If you have any questions or feedback, please email me at firstname.lastname@example.org
Thanks so much for listening :-)
Help for Hip Dysplasia - Episode 12: Jayde Clark
We chat to Jayde Clark, this amazing Mum, about her daughters Hip Dysplasia journey - the good the bad and the stuff no-one tells you as a parent.
Jayde is so passionate about making changes in the Hip Dysplasia world - please help and support her in her efforts. Follow her on facebook @Skyes journey DDH Awareness.
Help for Hip Dysplasia - Episode 11: Christina Miranda
We chat to Christina about her double PAO journey. Find and support Christina on Instagram @cmirandamarrs :-)
Help for Hip Dysplasia - Episode 10: Neil Williams from PlaySkate
We chat with Neil Williams, founder of PlaySkate. Providing equipment designed to fit each child's individual needs, to give movement and independence to play and develop in other areas whilst casted or harnessed during their Hip Dysplasia Journey.
Find Neil @Playskate on facebook.
Help for Hip Dysplasia - Episode 9: Erin Mannen.
Erin Mannen is an Assistant Professor at the University of Anrkansas for Medical Sciences, and a Director of Orthopaedic Research.
We chat about her research into baby carriers, the effects of different positions on joint health and developement, future research and yoga. Listen in, and if you have any questions, please let me know - message me on Instagram @helpforhipdysplasia.
Episode 8: Ultra Runner - Nancy Muir
Meet Nancy Muir: Fellow Physiotherapist, Running enthusiast and Hip Dysplasia research advocate. With her page Miles4hips, Nancy is promoting awareness of Hip dysplasia through her ultra running events, providing information and making medical literature more understandable for the rest of us, whilst undergoing her own personal dysplasia journey.
Have a read of her race report for the Bear 100 mile ultra marathon race here: https://miles4hips.com/the-bear-100-race-report
Help for Hip Dysplasia - Episode 7: Linda Bleck
Meet Linda Bleck, founder of Hip dysplasia strageies (Instagram) and Adult Hip Dysplasia Rehab Strategies (Facebook) and hear her story.
Help for Hip Dysplasia - Episode 6: Jacqui Coatsworth
Meet Jacqui Coatsworth - hear her story and how Positive Mental Attitude has helped her through.
Help for Hip Dysplasia - Episode 5: Jessica Filipeli (AKA Mermaid.Hips)
Tune in to listen to the bilateral hip dysplasia journey of Jessica Filipeli - aka Mermaid.hips.
Help for Hip Dysplasia - Episode 4: Alexa Briggs
Meet Alexa Briggs (IG name Alexaontherun), Running coach and sports massage therapist, on her Hip dysplasia journey.
Episode 3 - Kayleigh Wheatley (IG name Kikiofhorror)
We chat to Kayleigh Wheatley about her Hip dysplasia journey, from diagnosis to Hip replacement surgery in December 2018.
Help for Hip Dysplasia - Episode 2: Morten Thomsen
Morten Thomsen gives us the story of his Hip Dysplasia journey, and his quest for an IronMan title.
Help for Hip Dysplasia - Episode 1
Episode 1 - Introduction - the what's and the why's.
Website is on it's way, but for now, any messages or questions please head to my instagram page @lauramcgeary_physio