Epilepsy Awareness: 1 in 26
By Jamie Wissinger
Epilepsy Awareness: 1 in 26Nov 10, 2021
Episode 28: Tiffany
Today I am joined by Tiffany Kairos, an epilepsy advocate who has made such an impact on our community! She shares her story, her rebranding from The Epilepsy Network (TEN) to Rise Above Epilepsy, and so much more.
You can find her via WEGO Health and all social media links are located here
Episode 27: Josh Perry
Today I'm chatting with Josh Perry about his journey with multiple brain tumors, and how he's shifted and prioritized his health, and now helping others do the same. Coined The Optimization Specialist, he helps hundreds of people build a solid foundation to optimize their health.
You can find his podcast, The Grey Matters, here
Work with Josh: here
Josh's Instagram: here
Episode 26: Mindful Inspiration Champion
In today's episode I'm sharing a podcast where I was a guest for the Mindful Inspiration Champion. We chatted about my epilepsy and how I was able to shift my mindset and become an advocate for the community.
Join us for our monthly virtual support groups here
Join us for our monthly epilepsy workshops to create your seizure first aid plan here
Download your copy of the BFF Guide to Epilepsy here
Episode 25: Vanessa
Today I'm chatting with Vanessa about what it means to be an advocate for her. Vanessa lives in Canada, works with Epilepsy Canada, and shares with us about her absence seizures.
You can find her on Instagram here
UPDATES: What’s been going on with me!
Episode 23: Sydney
Today I'm chatting with Sydney about her epilepsy and her experience with Epilepsy Camp!
Connect with Sydney: IG here
Connect with Jamie: IG here
Virtual Meet Ups: Sign up here
Episode 22: Mindy
Episode 21: Katy
Today I'm chatting with Katy, and she shares what it's like to live with tonic/clonic seizures. She shares a bit about her hospital stay, from her family's perspective- and how she manages her Epilepsy.
Episode 20: The one where we talk about HOPE
Today I'm sharing an episode that I was a guest on: Y'all Should Be Friends with my dear friend, Kristina. This is the first time I've shared THIS part of my story, and I'm excited to do so. I can't be alone with this situation, so let me know what you think and if you can relate!
You can find Kristina at her website and purchase her book here
Episode 19: Torie Robinson
Today I'm chatting with Torie about her advocacy work and how she's bridging the gap between patient + science.
Torie is also the: Founder, Editor, Writer & CEO for Epilepsy Sparks, Podcaster for Epilepsy Sparks Insights, Governor for the NHS South London & Maudsley Trust, on the SAC for Epilepsy Research UK, Council of Management for Epilepsy Action, on Patient Advisory Groups for UCB and EpiCARE, and an Ambassador for the UK Government Disability Confident – Yes I Can initiative.
Episode 18: Kirsten
Today I chat with Kirsten from @brey_fighting_back on IG! She is a Momma to 3, and her advocacy shines bright for her 6 year old son Brey- who has Epilepsy. We talk about med changes, keto diet, neuro + developmental regression, family dynamics... it was an amazing and eye opening experience!
Episode 17: Felicia
Today, I'm chatting with Felicia- who is a mama to 4 and LIVES IN THE SAME TOWN AS ME! SO awesome! We chat about all things mamahood, driving, pregnancies, doctors, and CBD. This episode is a little controversial, so buckle up!
She also has a podcast, which you can find at the link below!
https://anchor.fm/felicia-waterfill5
Episode 16: SUDEP Awareness
Today is World SUDEP Action day and I want to share a little bit about it. When I was diagnosed with Epilepsy, my doctor did not tell me about it- and this is SUPER important for us with Epilepsy to know!
Tune in and share with someone who could benefit from learning about SUDEP. For more information about SUDEP, go to http://.sudepactionday.org
Episode 15: Where we talk about Trauma
Hey girl! Today I'm sharing a little bit about my trauma and the healing that is associated with it. If this resonates with you, please join me in our community, Surrender and Shine on FB!
xo, Jamie
https://www.facebook.com/groups/1565021100319075
Episode 14: Guest Episode with Fran
13: 5 things I wish I knew when I was diagnosed with Epilepsy
Episode 12: Where we chat about Video EEGs
On this episode, Jamie and Destiney chat via IG LIVE, with their kiddos in the background (thanks quarantine), about ambulatory EEGS and what that process is like!
Episode 11: Sharon
You can find her on IG @be.brave.brains
Episode 10: Kyle
Today I’m chatting with Kyle about his epilepsy and how he advocates for the community.
You can find him on IG @epilepsylifestyleblog or his website: https://www.epilepsylifestyle.com/
Episode 9: Kati
You can find her via IG: www.instagram.com/kati_anne/
www.instagram.com/fetchingstitches/
Episode 8: Meghan
Today I am chatting with Meghan, from the Daley Life on the joys of Epilepsy and how her diagnosis changed (or did not change) her mindset.
IG: livefearlessly_akf
Facebook: www.facebook.com/livefearlesslyfit
Website: www.meghandaley.wordpress.com
Episode 7: Dylan D
Today I'm chatting with Dylan about her seizures, and how she has created an Epilepsy toolkit for your loved ones to be prepared when you have a seizure.
You can find her on Instagram, @digidyla
Episode 6: Angelina
Episode 5: Christalle Bodiford
christallebodiford.com
Instagram.com/christallebodiford
Facebook.com/creativeepilepsyadvocate
Twitter.com/christalleart
Episode 4: Amanda Rost
You can find Amanda:
@epilepticmom on IG
@epilepticmomAR on Twitter
www.epilepticmom.com
anchor.fm/hearmeoutepilepticmom
Episode 3- Destiney
Destiney is a wife, mother, soon-to-be published author, and runner living with Epilepsy. In this episode we chat about all things family, job, and seizure related- and how Destiney turned from avoiding her diagnosis to embracing it.
You can find her online at @destineywendtrunning
Episode 2: Interview with Meghan from the Daley Life
Hey friends! Check out my interview with Meghan, from The Daley Life podcast where we chat about all things fitness, epilepsy, and life!
Episode 1: Seizure First Aid
In this episode I will chat about Seizure First Aid: how I became a trainer, and what YOU can do to be prepared in case a loved one has a seizure.
jamiewissinger.com