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Let's Talk About Kidney Kids

Let's Talk About Kidney Kids

By Jill Brown

Let's talk about Kidney Kids is a podcast to discuss stories, services, and explore the content for experts about pediatric kidney disease and their families.
Host Jill Brown, MPA - Executive Director for NW Kidney Kids
Developed by NW Kidney Kids - a 501(c)3 serving children with kidney disease and their families since 2006. More info and get involved:
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Currently playing episode

Talking with Maggie about her kidney disease journey

Let's Talk About Kidney KidsJan 30, 2023

Talking with Maggie about her kidney disease journey

Talking with Maggie about her kidney disease journey

Today I welcome Maggie MacKenzie to Let's Talk About Kidney Kids. Maggie talks about being diagnosed with ESRD as she graduates college. She talks about the struggles of coping with her new disease and how having many different support people at various times helped her to positively cope and manage her disease. 

Jan 30, 202327:10
One Parent Story - Organ Donation & Connecting with Donor Family

One Parent Story - Organ Donation & Connecting with Donor Family

April is Donate Life Month - a month that we bring awareness to organ, eye and tissue donation.

Todays guest is Naomi Mauro, a parent of child, Ethan, born into end stage renal disease. She is also the mom to Lucas and Mackenzie. She lives in the country in SW Washington with her husband, Chad. Today we talk a little bit about Ethan journey to transplant but the focus of todays episode is on organ donation. Naomi and her family experience deciding to pursue transplant as a treatment, awaiting for the call for a deceased donor and connecting with the family five years after transplant.

You can follow along with Ethan and the Mauro Family story through their facebook or instagram page.

According to Donate Life America, 1,900 children under the age of 18 waiting for a variety of organs, and more than 25% of them are under 5 years old. With the  most children between 6-18 years old awaiting for a kidney transplant from a Deceased Donor, many more will never be listed as go strait to transplant with a Living Donor.. (

In this episode we also talk about Kidney Kids Connect, a program through NW Kidney Kids in which kidney kids 8-13 years old come together once a month on zoom to connect with one another. If you are interested in learning more about Kidney Kids Connect visit or call/text (503) 893-5671 email

Apr 04, 202227:25
Dakota talks about VACTERL Association and waiting 16 years for a transplant
Feb 14, 202224:56
Benefits of Mentorship for Kidney Kids
Feb 07, 202226:13