The Blood Cancer Experience

Being affected by cancer at the beginning of the adult life often forces to put various projects on hold. The impacts of the disease are numerous, and they sometimes affect the identity of the person. Once the remission is pronounced, how is it possible to go back to a normal life?

Jacqueline Galica an oncology-certified Registered Nurse with over 20 years of experience in oncology. She is currently an Assistant Professor at the Queen’s University School of Nursing, where her research program focuses on the psychosocial concerns – including fears of cancer recurrence - of post-treatment cancer survivors.

It was a surgery for a rare congenital heart defect that lead Grace's doctors to shockingly discovered her stage II Hodgkin's Lymphoma. In this episode of the AYA podcast series, Montana and Grace discuss the realities of isolation and survivor's guilt that come with achieving remission after a blood cancer diagnosis as a young adult.

Join Charlotte Hall-Coates and Natasha Sani as they discuss the role of a Community Services Lead in providing personalized support to those in the blood cancer community. In this podcast, Charlotte and Natasha highlight the individualized support available to you through the Community Services Lead in your region and how they can help you through each step of your blood cancer experience.

It was an ordinary bump on the elbow that wouldn't heal that led Lindsay Thompson to her doctor. The eventual diagnosis of chronic myelomonocytic leukemia (CMML) came as a complete surprise. Lindsay shares how she found strength in support from her family and coworkers to help her through her diagnosis and treatment.

In this podcast you'll meet two members of the McMaster SynBio team, a student-led research team that hopes their research will improve treatments for B-cell lymphoma. The team is working on a method that they hope will ultimately kill the cells responsible for B-cell lymphoma while leaving healthy cells intact.

The team gathers passionate undergraduate students from across scientific disciplines to participate synthetic biology projects. What is synthetic biology? It is the engineering and redesign of biological systems that do not already exist in nature.

When Al Pritchard learned that he had anaplastic large cell lymphoma (ALCL), he told himself that cancer was not going to take anything from him. Taking control meant not only sharing his diagnosis with family and friends, but also with his work community. The support he received showed him that he was not alone and this is something he would say to anyone that is newly diagnosed. "You are not alone. Reach out to organizations and ask for support even when you don't know what to ask for."

When Ron Ternoway was diagnosed with a rare blood cancer called Waldenstrom macroglobulinemia (WM), he did what he has always done when faced with an unfamiliar topic. He tracked down as much information as he could so he could be a full partner is his treatment. "My way of freaking out when I got the big 'C' diagnosis was to learn as much as I could."

Ron is also generous with his knowledge, sharing it through a local support group and as a First Connection volunteer. Ron continues to live with WM and in this episode, he shares how he has coped physically and mentally.

It's not at all surprising that when Eric Pitters was diagnosed with chronic lymphocytic leukemia (CLL) he told his doctor, "I've got a cancer and I want it treated now." However, his doctor explained that it would be best to use an approach called Watch & Wait.  Several studies have shown that early treatment does not have benefits for low-risk blood cancers and does not lengthen your life.

While he trusted his doctor's expertise, Eric admits that it was difficult to deal with knowing the cancer was not being immediately treated. Eric explains what watch & wait has meant for his cancer and how he has coped.

In the last 10 years, there have been many advancements in the treatment of MPNs. In combination with a better overall understanding of its causes and what contributes to its progression, Dr. Dawn Maze says it is a very "exciting" time in the treatment of MPNs.

In this episode, Dr. Maze, a hematologist at Toronto's Princess Margaret Cancer Centre, explains what MPNs are, how they are treated and the challenges those diagnosed with an MPN might face.

When she was a first-year resident, Dr. Mary-Margaret Keating's grandfather was diagnosed with a fast-growing lymphoma. At the time, she was unable to answer many questions from her family. It made her more interested in trying to understand the disease and was one of the factors that influenced her to specialize in treating lymphomas. Dr. Keating, a hematologist in Halifax, continues to be motivated by the treatment advancements which help those who are very sick get better. She also values the many long-term relationships she has formed with those affected by lymphoma and their families.

When Darren Bessette was re-diagnosed with diffuse large B-cell lymphoma (DLBCL) in 2019, it was more difficult to treat. Darren says he was fortunate to get access to a "revolutionary" new treatment through a clinical trial. Chimeric antigen receptor (CAR) T-cell therapy is a way to get immune cells called T cells to fight cancer by changing them in the lab so they can find and destroy cancer cells. In this episode, Darren shares his experience and how it led to his efforts to help others with a blood cancer.

When she was diagnosed with Philadelphia positive acute ALL (PH+ ALL) in 2007, Jeanette Castillo leaned heavily on her healthcare background to cope. Having seen many people go through their own health challenges with a hopeful perspective, she adopted a similar attitude. Now 14 years post-stem cell transplant, Jeanette admits is was a long a scary road, but she says, "It's okay to be  afraid. You can't be brave or courageous without fear."

The lifting of many COVID restrictions across Canada may leave people living with a blood cancer feeling anxious and uncertain. However, Dr. Gerard Farrel, a GP from Newfoundland, says the best approach is to keep doing what you've been doing for the past 2 years for at least the next 2 months. In this episode, Dr. Farrel offers advice on what those living with a blood cancer can do to stay safe.

Ever since he was diagnosed with myelofibrosis 20 years ago, Doug Chisolm has tried to live every day to the fullest, even spending all his retirement savings and having to start saving again. In this episode, Doug speaks about the ups and downs of his blood cancer experience, why he thinks it's crucial to have a strong support system and what he shares as a First Connection peer volunteer.

Gail Whiteford returned from a 2014 hiking trip in Japan and Australia, visited her doctor for her annual physical, and was shocked to, soon after, be diagnosed with myelodysplastic syndrome (MDS). In this episode, Gail shares her treatment experience and some of the important lessons she has learned, maybe the most important one being, "I learned it is not weak to ask for help."

Andy Friedman returned to Ontario from BC’s Gabriola Island with a plan to spend more time with his grandchildren. What he did not plan on was a chronic lymphocytic leukemia diagnosis. In this episode, Andy talks about the good and bad of his post-diagnosis life, including his experience with watch and wait. He also shares two important pieces of advice for others with a blood cancer: don’t ever look at Google and lean on your social supports.

When Lois Lewis was diagnosed with AML in 2010, she had just retired from a career filled with music - as a music therapist, music teacher and leader of an intergenerational choir. Lois shares her cancer experience, which, not surprisingly, included the Gaelic version of the song Auld Lang Syne.

Just a few days before Christmas in 2010, Patrick Alexander, an LLSC First Connection volunteer from Vancouver, was diagnosed with Multiple Myeloma. He talks to us about his experience with his diagnosis, treatment and how it changed his view on life.

Dr. Ismail Sharif, an assistant professor at Dalhousie University and with the department of hematology, provides an overview of Myeloma: its causes, current treatment options and what the future holds for Myeloma treatments.

This podcast is for parents of children with blood cancer, as well as teenagers and young adults affected by this type of cancer. During and after cancer, physical activity is essential for young people. It can speed up their recovery, improve their overall health and help them cope with treatment side effects such as fatigue. In this podcast, Gabrielle Duhamel, kinesiologist and doctoral student in physical activity sciences, explains how physical activity can be safely integrated into daily life from the moment a person receives a diagnosis, as well as during and after treatments.

Joanne was diagnosed with Polycythemia vera in 2012. She shares her experience with her diagnosis, the support she received from local groups and how it has changed her life.

In this episode, Max Parrot, professional Canadian snowboarder, an Olympic silver medalist and an eight-time X Games champion, speaks candidly about his blood cancer experience and its impact on his life and career. Max explains why he felt like "a lion in a cage" throughout treatment, and lets listeners in on what it took to get his health and mindset back on track.

In this special AYA episode, Montana Skurka and NHL survivor Cynthia Ghosen discuss the power of positive thinking, staying optimistic, and how goal setting can help you through treatment. Cynthia also shares how family and friends played a key role in her recovery and how her cancer experience has shaped her current career.

In this special AYA episode, guest host Montana Skurka connects with Amanda Saunders, who 13 months after having a heart transplant was diagnosed with post-transplant lymphoproliferative disorder (PTLD). The two discuss what life is like living with a rare blood cancer while completing university and living through a pandemic.

In this special AYA episode, guest host Montana Skurka connects with Cole Myers. When Cole was 16 he went from competing in triathlons to being diagnosed with Hodgkin lymphoma. The two discuss diagnosis, relapse, and the silver-lining that come from their experiences.

In this special episode, guest host Montana Skurka connects with AML survivor Michael Wark. Together they explore topics of blogging and sharing a cancer experience, the importance of support networks, the power of spiritualty, and how his cancer experience has changed his life.

In this special episode, guest host Montana Skurka and NHL survivor Samantha Redsky discuss the all things relationships!  They explore how a cancer experience can change the relationship you have with yourself, with your loved ones, and even with your own body.

Acute myeloid leukemia (AML) is a cancer of the bone marrow and the blood. In this episode, Dr. Aly Karsan provides an overview of AML, talks about his research and shares a message of hope for the future of AML treatments.

Dr. Karsan is Professor of Pathology and Laboratory Medicine at UBC, and Distinguished Scientist at Canada's Michael Smith Genome Sciences Centre at BC Cancer.

Chronic myeloid leukemia (CML) is a cancer of the bone marrow and blood. In this episode, Dr. Kareem Jamani provides us with an overview of CML, talks about the advances in treatment options over the years, explores potential barriers to research and imparts messages to those diagnosed with CML.

Dr. Jamani is a hematologist at the Tom Baker Cancer Center in Calgary, Alberta.

Todd Winsor is CML and prostate cancer survivor. In this podcast, Todd speaks about his experiences and about some myths and facts of living with a chronic blood cancer.

Michelle Lambert, LLSC Area Manager for Newfoundland & Labrador speaks with Veronica Vardy, mother of 5 year old Amelia who is an ALL survivor. Veronica discusses the impact cancer had on her daughter, her family, and what her role as caregiver was like.

Bob Sisler has been in remission from Angioimmunoblastic T-cell lymphoma, a type of Peripheral T-cell lymphoma, since 2015. Bob shares with us his personal experience with diagnosis, treatments, and life after blood cancer. As a Peer Support Volunteer, Bob gives back to the blood cancer community through the LLSC’s First Connection program

Dr. Abish shares insights into what it’s like treating children and teens, and the complexities of serving this youngest age group as well as their follow up care. Dr. Abish attended McGill Medical school in Montreal and then completed pediatric training at the IWK Health Centre in Halifax, as well as a fellowship in pediatric hematology and Oncology in New York at the Memorial Sloan Kettering Cancer center.

Mayra Husicwas diagnosed in 2011 with stage 4 Follicular Lymphoma while training for a marathon. In this podcast, we will talk about her experience with blood cancer such as diagnosis, treatment, side effects and so on.

In this episode we speak with Amy Pulsifer about her experience managing long term effects due to her Chronic Lymphocytic Leukemia or CLL.

In this episode we talk to Elizabeth Corkum about what it was like caring for her husband when he was diagnosed with acute myeloid leukemia (AML)

C. Elizabeth Dougherty is a Social Worker and Educator with extensive experience supporting children, youth and adults facing serious illness, uncertainty and grief. In this podcast, she helps us understand the different types of grief, explains how we can manage the grief that the current pandemic is causing us all to experience,as well as strategies for adapting to all the changes that we are experiencing, especially as the holidays approach.

Scott Bellerby, outpatient hematology nurse at the Tom Baker Cancer Center in Calgary, talks to us about the ways this pandemic has affected how we manage a chronic blood cancer and provides some insights on how we can continue to care for ourselves effectively.

Diffuse large B-cell lymphoma (DLBCL) is the most common type of aggressive NHL subtype. In this episode, Dr. Jacqueline Costello covers the basics of diagnosis, treatment, side effects, and research for DLBCL. Dr. Costello is an adult Hematologist and clinical assistant professor at Memorial University in St John’s, Newfoundland.

Paul Davis is a Non-Hodgkin Lymphoma survivor. Paul has dedicated his life to serving his community, including supporting numerous not-for-profits, a policing career, a political career including having served as Premier of Newfoundland and Labrador and he currently holds the position as Chief Operating Officer with a Canadian based international telehealth company.  In 2011 Paul was diagnosed with Diffuse Large B-Cell Lymphoma and an underlying Follicular Lymphoma.

Al Collings was diagnosed with Chronic Myeloid Leukemia over three years ago. 

Al talks about learning to live well with a chronic cancer and how it has brought new meaning to his life. 

Learn more about CLL treatment options and their side effects. 

This podcast will help you play an active role in the management of your side effects. When should you consult? Why is it important to manage side effects well and to provide tolerable treatment options?

Dr.Villeneuve is a hematologist at the Ottawa General Hospital, in charge of the Myelofibrosis clinic. In this podcast, he talks about diagnosis, treatment, side effects and research.

Mrs. Linda August is a Lymphoma survivor from Montreal. During her experience with cancer, she quickly understood the importance of taking an active part in her care and treatments. She tells us about her experience,  how she took an active part in her treatments and how she  advocated for herself.

Jeff Chow is an ALL (Acute Lymphocytic Leukemia) survivor who was diagnosed when he was 15 years old. He shares his story of receiving a cancer diagnosis as a teenager, and the support that he received during his experience.

Meagan Massad lives in Ottawa, Ontario. She lost her younger brother Paul, who passed away from non-Hodgkin lymphoma at the age of 22. Paul was an inspiring young man and did everything that he could to fight his disease. Seeing her brother go through cancer treatments was one of the most difficult times of her life. In this podcast, she is talking about her experience and gives ideas to cope with grief.

Connor Dalton from the LLSC speaks to Dr. Gilles Robichaud about CLL research on this episode of the Blood Cancer Experience. Dr. Robichaud is a professor and researcher at the Université de Moncton. His research is funded by the LLSC. He shares information about his current research and how it could help inform CLL treatment in the future. 

Journaling may have benefits for you no matter where you are in your cancer experience. The practice can help manage stress, help you solve problems more effectively, and help you get to know yourself better. The LLSC teamed up with Rachel Hayek to produce a podcast that walks you through a mindful journaling practice and an accompanying journal that you can print at home.

Rachel is a Hatha yoga instructor and wellness coach. On any given day, Rachel is participating in one or more of her passions: writing, facilitating, coaching, and teaching on the mat. Her core messages are self-love, going inwards, honouring nature, nourishment in every aspect, and kindness.

Tiffany Woodworth was on a working holiday in New Zealand when she started feeling sick; she was diagnosed with Hodgkin lymphoma. She shares her story of receiving a cancer diagnosis as a young adult, and the supports that she received during her experience.