The MiaThrives Podcast

Through self confidence and self acceptance Noelle didn't let EB stand in her way of attending an exchange program half way around the world. She is passionate about dance, her double major in University and spending time with her friends in the EB community. After tuning into her episode don't forget to head over to our Facebook forum where the conversation continues! 

Instagram- https://www.instagram.com/noelle_hermes/

TikTok- https://www.tiktok.com/@noellehermes?refer=embed

Amy is a UK-based mama, wife, advocate, and pilates enthusiast with an extremely positive outlook on life. Tune in to this episode where she shares her journey with pregnancy, breastfeeding, and life post-partum. Amy chooses to focus on the aspects of motherhood she can do like reading to her son daily instead of dwelling on some physical aspects that are out of her control. 

Moe spent the first two years of his life in the hospital because they didn't expect him to make it, not only did he make it but he is Thriving! He has a unique career giving back to the community and has evolved into being a social butterfly. 

Vanessa has a deep love for music that has helped her cope with dressing changes and the pains of EB. She has merged that love of music with her other passions to create her dream career, despite people telling her it wasn't possible she pushed on to achieve her dreams.

When Armando first went into foster care adoption wasn't on the table since they didn't know what his life was going to look like with EB and if he would even survive, he is not only surviving but THRIVING with a very full life including a career, family (families), girlfriend and adorable dog! Tune in to hear his amazing journey and unique story. 

Sarah believes her gift is the ability to help others, she chats about how she has been able to accomplish this within her career and loving relationship. She is a little travel bug, cook, dog mom and so much more, you don't want to miss this fun-filled episode! 

@sarahgracechunk

Jamie joins Emily on another Episode of the MiaThrives Podcast chatting about, traveling the world with the love of her life, her unique career that lends well to EB care, and her positive attitude toward's self-love! 

Erin shares the story of her son Felix and how in the short two months that he was physically here he made a bigger impact than some can say in an entire lifetime. 

https://collective.world/my-son-was-born-with-a-rare-skin-disease-that-took-his-life-and-made-me-question-mine/?fbclid=IwAR2Kl9iGoG6xm_tcRYRnLB81jmdp8FE1J3bOYNgBUR5Qm3ZBO855rDKuWC0

In our first episode of Season 5 of the MiaThrives Podcast Lindays joins Melissa and Emily and shares the success of their families' event The Ride For Wrenleigh. Lindsay doesn't hold back and shares the raw emotional story of the loss of her daughter and how her family raises above the pain and sorrow and keeps Wrenleighs legacy alive. 

https://marketing7630.wixsite.com/ride-for-wrenleigh

Racquel talks about her life with EB! From growing up in Hawaii to her many creative talents and day to day life with EB this episode is like sitting down with two friends over coffee!  

Martine joins us all the way from Norway to share her story of learning to live with her EB, and not against it! This 15 year old is figuring out so much about herself and is committed to increasing awareness about EB and the amazing people in this community. 

Joining us all the way from Belgium Katleen shares her story with Emily and Jill.   As a mother and a partner to individuals with EB Katleen is so open and honest. You don't want to miss this episode! 

Alex takes a huge leap into joining the EB community by sharing his story.  He speaks with such honesty about the ups and downs of having EB and how it impacts his very full life.  

Check out Alex on YouTube and Twitch. 

https://www.youtube.com/channel/UCehGojRE8X-DXzOoX0qfEgw

https://www.twitch.tv/mrdoudrocks

Socks, socks, and more talk about socks! Erin and Emily share their love of tattoos, traveling and socks with Jill in this fun episode.  

The MiaThrives podcast has a new co-host and we are thrilled for you to meet her! 

Melissa and Jill use their time during social distancing to enjoy an amazing conversation with Shane.   An amazing family man who's career as a firefighter was something he dreamed of, worked for and that challenges his EB daily.  

https://miathrives.org/

Nisha shares her story of accepting her EB, announcing her EB and becoming an advocate for Rare Disease.  An incredible woman with a very full life who is finding her voice and helping others to find theirs as well! 

https://everylifefoundation.org/

https://rareadvocates.org/rdw-2/

https://www.youtube.com/watch?v=I00QH1OwLNE&feature=youtu.be

Melissa, Jill and Ryan discuss his incredible event, the annual Bella's Ball in support of DEBRA Canada’s programs and services assisting families with Epidermolysis Bullosa.  His daughter Raquel was given a sitski through the DEBRA fund a butterfly program which allows her to ski and race with her family.  

https://www.debracanada.org/2020-bellas-ball-broomball-open

You cannot miss this episode! Mark joins Melissa and Jill to talk about EB Simplex, Athletes4EB, mental health, a purpose driven life and finding your way.  

Sarah spends time with Melissa and Jill talking about her busy days, her fur babies and living a purposeful life with JEB.   There is a lot of talk about beloved and very special pets in this episode.  You don't want to miss this!   

We are thrilled to have the chance to talk with one of our very favourite community members.  Ed has a heart as big as his incredible talent and we can't wait for you to meet him and hear his story.  

Melissa and Jill recap the last week at MiaThrives. With part of the MiaThrives team in London at the EB World Congress and Jill back at home it was a fun, informative, and busy time, and Jill even attempted a cartwheel! 

Melissa and Jill are so excited to be joined by Novelette, a true mentor, leader and thinker in the EB community.  An unforgettable discussion about life with RDEB, the joy, the pain, the everyday "stuff" and how we can best support each other! You don't want to miss this! 

MiaThrives community member,  EB warrior, incredible husband and father and amazing tattoo Artist Chris joins Melissa and Jill to discuss his family's journey with EB!