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NSGC Podcast Series

NSGC Podcast Series

By National Society of Genetic Counselors

The NSGC Podcast Series explores leading voices and best practices in genetic counseling. This podcast is produced by the National Society of Genetic Counselors. For more information on NSGC, please visit www.nsgc.org.
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Addressing Information Gaps in Sickle Cell Education

NSGC Podcast SeriesAug 31, 2021

00:00
47:10
Bone Marrow Transplant and the Role of the Genetic Counselor
Dec 23, 202255:13
Spanish Language Genetic Counseling: Research and Resources

Spanish Language Genetic Counseling: Research and Resources

Join Podcast Subcommittee members Jessica Dronen and Naomi Wagner in conversation with genetic counselors Amanda de Leon, Priscila Delgado Hodges, and Charité Ricker. This episode was produced in honor of Hispanic Heritage Month (September 15th-October 15th annually in the United States). First, Jessica and Amanda discuss Amanda’s article in the Journal of Genetic Counseling entitled “Spanish language concordance in genetic counseling sessions in the United States: Counselor experiences and perceptions of its effects on processes and outcomes.” To read Amanda and colleagues’ full article, visit https://onlinelibrary.wiley.com/doi/epdf/10.1002/jgc4.1472. This article and podcast episode are eligible for CEUs as part of the JoGC CEU program.

In the second part of the episode, podcast host Naomi Wagner sits down with the Co-Chairs of the NSGC Spanish Development Special Interest Group (SIG). They discuss a range of resources and opportunities for Spanish-speaking genetic counselors, especially those who are hoping to develop their Spanish language skills and/or potentially counsel patients in Spanish. For more information about the Spanish Development SIG, visit https://www.nsgc.org/Members/Special-Interest-Groups-SIGs/Spanish.  If you have additional questions, you can reach out to the Spanish Development SIG at spanish.d.sig@gmail.com.

Oct 14, 202241:52
Testing First and Counseling After: Population Genomic Screening and Genetic Counseling

Testing First and Counseling After: Population Genomic Screening and Genetic Counseling

Join Podcast Subcommittee member Mary Pat Bland in conversation with Marci Schwartz, ScM, CGC; Kelly Tangney, MS, LCGC; and Amy Curry Sturm, MS, CGC. This episode covers Marci, Amy, and team's article on the Journal of Genetic Counseling (JoGC) entitled "Genetic Counseling for patients with positive genomic screening results: Considerations for when the genetic test comes first" and is eligible for CEUs as part of the JoGC CEU program. Speakers discuss their work with the myCode Genomic Screening and Couseling Program and the All of Us Research Program. 

The National Institutes of Health All of Us Research Program is partnering with one million or more people across the United States to build the most diverse biomedical data resource of its kind, to help accelerate health research and medical breakthroughs, enabling individualized prevention, treatment, and care for all of us. Genomic research results from All of Us will be made available to participants who consent to receive them, and those participants will have free, unlimited access to genetic counseling services through Color, who was awarded the All of Us Research Program's Genetic Counseling Resource.

Aug 31, 202247:59
Advocating for the Intersex Community: How to Begin Dismantling a History of Harm
Jul 05, 202201:10:02
New Directions in Newborn Screening: Krabbe and Beyond
May 02, 202201:07:31
Heart Health Advocacy: Patient and Provider Perspectives

Heart Health Advocacy: Patient and Provider Perspectives

Welcome to season 5 of the NSGC Podcast Series! We are kicking off the 2022 season with a discussion on cardiogenetics to honor American Heart Month. Join Podcast Subcommittee members Naomi Wagner and Mary Pat Bland, cardiovascular genetic counselor Nadine Channaoui, MS, CGC, and patients Rebecca, Abby, and Theresa as they share their personal and professional stories of FLNC gene mutation and the associated increased risks for sudden cardiac arrest. Our speakers are passionate advocates for increasing heart health awareness, including CPR and AED training. To learn more and locate resources in your area, please visit the American Heart Association at heart.org.

We would love to hear your feedback and suggestions for the NSGC podcast series. If you'd like to share your comments, please respond to our brief survey by visiting nsgc.org/podcasts. Thank you!

Feb 28, 202248:30
Fireside Chats with Mentors and Colleagues
Dec 30, 202101:00:47
Access and Service Delivery: Changing the Conversation

Access and Service Delivery: Changing the Conversation

Join Podcast Subcommittee member Ryan Kuehl in conversation with Emily Boothe and Brian Reys from NSGC's Access and Service Delivery Committee. Emily and Brian share personal experiences with service delivery challenges and innovations and advice for tackling these issues in your own workplace. This conversation draws on the Journal of Genetic Counseling (JoGC) article "Genetic counseling service delivery models: A study of genetic counselors’ interests, needs, and barriers to implementation"to which Emily was a contributing author. This episode is approved as part of the JoGC CEU program.

Oct 27, 202138:57
Special Episode: J.E.D.I. - Next Steps After the Exeter Report Comment Period

Special Episode: J.E.D.I. - Next Steps After the Exeter Report Comment Period

In this special episode, Podcast Subcommittee Chair Naomi Wagner meets with NSGC Director at Large and liaison to the J.E.D.I Committee Jodie M. Vento and J.E.D.I Committee student member Brady Bunkleman to discuss comments received in response to the Exeter Report and next steps in NSGC's J.E.D.I. journey.

Sep 20, 202131:10
Addressing Information Gaps in Sickle Cell Education

Addressing Information Gaps in Sickle Cell Education

This episode addresses genetic counseling topics that relate to sickle cell disease and sickle cell trait, discusses medical racism, and reviews the importance of accessible information and education related to sickle cell disease and sickle trait. Podcast Subcommittee member Mary Pat Bland meets with Dr. Tilicia Mayo-Gamble to discuss her Journal of Genetic Counseling (JoGC) article "Sickle cell carriers’ unmet information needs: Beyond knowing trait status", and Podcast Subcommittee Chair Naomi Wagner meets with Liann Jimmons to discuss her video “Introduction to Genetic Counseling: Sickle Cell Trait and Sickle Cell Disease”. This episode is approved as part of the JoGC CEU series.

Aug 31, 202147:10
Genetic Testing and Social Media: Growing a Space for Genetic Counselors

Genetic Testing and Social Media: Growing a Space for Genetic Counselors

Podcast Subcommittee member, Ryan Kuehl, interviews Dr. Corey Basch about her JoGC article "DNA testing information on YouTube: Inadequate advice can mislead and harm the public" and discusses genetic testing information and misinformation in online spaces with Ms. Ellen Matloff. Ryan and Podcast Subcommittee Chair, Naomi Wagner, discuss the implications for genetic counselors' presence on social media. This episode is approved for the JoGC CEU program.

Jul 07, 202149:48
Special Episode: J.E.D.I. - NSGC & The Exeter Group Report

Special Episode: J.E.D.I. - NSGC & The Exeter Group Report

Podcast Subcommittee Chair, Naomi Wagner, meets with our former Chair and member of NSGC's J.E.D.I. Committee Khalida Liaquat to discuss how to engage with NSGC's Exeter Group Report. Make your voice heard during the open comment period, which will close on June 9, 2021!

May 26, 202121:34
Infertility from the Inside: Journeys of Loss & Hope

Infertility from the Inside: Journeys of Loss & Hope

In this episode our hosts Naomi, Rawan, and Mary Pat speak with Katie Hornberger, MS, CGC, Annabel Adams, and Melissa Strassberg, MS, CGC on their personal and professional experiences with infertility.

May 03, 202101:10:09
Family Testing for VUS Reclassification: Family Member and Provider Perspectives

Family Testing for VUS Reclassification: Family Member and Provider Perspectives

Welcome to the fourth season of the NSGC Podcast Series! In this episode, our hosts Naomi and Ryan speak with Dr. Brian Shirts and Courtney Kokenakes on family testing for VUS reclassification. 

Feb 28, 202143:37
Communicating Results - Lessons from the Rare Disease Community

Communicating Results - Lessons from the Rare Disease Community

For the final episode of our NSGC Podcast Series 2020 season, guests Courtney Studwell and Kimberly LeBlanc join our host for a discussion on the undiagnosed disease network and result communication.  

Nov 27, 202023:41
Genetic Counselor Awareness Day – Voices of our Community

Genetic Counselor Awareness Day – Voices of our Community

Happy Genetic Counselor Awareness Day! This day is dedicated to empowering genetic counselors to help raise awareness and interest about genetic counselors in our communities and institutions and to help consumers understand the important and supportive role genetic counselors can play in their healthcare.

To celebrate, the NSGC podcast team created an episode that highlights many voices from our profession. For this episode, we asked genetic counselors to submit short, anonymous audio clips describing briefly who they are and how they identify and to elaborate on their background or to answer the question “what is your hope for the genetic counseling profession?”

Nov 12, 202010:37
Genetic Counselors: Let's Talk about Disability

Genetic Counselors: Let's Talk about Disability

In this episode, our hosts speak with with Melanie Moshier and Sarah Hunt on their own personal experiences with disabilities and the intersection of these experiences and the genetic counseling profession.

Oct 30, 202042:23
Diversity and Inclusion in Genetic Counseling Research, Training, and Practice

Diversity and Inclusion in Genetic Counseling Research, Training, and Practice

In this episode, we’ll be discussing diversity and inclusion in genetic counseling practice, research, and training, using a recent journal of genetic counseling article as jumping-off point.

Aug 28, 202053:28
GCs in Academia: When is a PhD the right Path?

GCs in Academia: When is a PhD the right Path?

In this episode, each Podcast Subcommittee member speaks with a different genetic counseling superstar to discuss GCs who pursue doctorate degrees. 

Jun 30, 202058:45
Who Makes More? Addressing the Gender Pay Gap in Genetic Counseling

Who Makes More? Addressing the Gender Pay Gap in Genetic Counseling

In this episode, our hosts speak with three guests to discuss the current gender pay gap in genetic counseling, and how we can advocate for our own profession for the future. 

Apr 28, 202045:18
#IAmAGeneticCounselor - What's in a Name?
Feb 29, 202028:54
38th Annual Conference Interviews

38th Annual Conference Interviews

Our hosts hand over the microphone to our guests, who interview one another at the Annual Conference in Salt Lake City, Utah on the evolution of our profession

Dec 20, 201954:43
Special Edition Episode: 2019 Genetic Counselor Awareness Day

Special Edition Episode: 2019 Genetic Counselor Awareness Day

In this special edition episode, our host speaks with Adam Buchanan to celebrate Genetic Counselor Awareness Day. 

Nov 13, 201913:44
Communication of Genetic Information - Ethical Issues for Genetic Counselors

Communication of Genetic Information - Ethical Issues for Genetic Counselors

NSGC is joined by Meghan Strenk, chair of the NSGC Ethics Advisory Group, and Shelby Taylor, author of Family communication following a diagnosis of myotonic dystrophy: To tell or not to tell?, published in the NSGC Journal of Genetic Counseling. Today, we're talking ethics! 

Nov 11, 201933:07
Transitioning into the Workforce: What We Can All Learn from New Genetic Counselors

Transitioning into the Workforce: What We Can All Learn from New Genetic Counselors

In this episode, our hosts will sit down with two genetic counselors to discuss the difficulties of transitioning from student to practicing genetic counselor, and their experiences with this transition

Aug 29, 201943:50
Transgender Patients in the Cancer Care Setting: Gaining Insights from Cutting-Edge Research

Transgender Patients in the Cancer Care Setting: Gaining Insights from Cutting-Edge Research

In this episode, Kayla Sheets and Khalida Liaquat sit down with Kim Zayhowski and Rosalba Sacca to discuss how genetic counselors and genetic counseling serves as a resource, not a barrier to transgender individuals.

Jun 26, 201936:02
Cultivating Cultural Safety in Genetic Counseling

Cultivating Cultural Safety in Genetic Counseling

In this episode, Kate Wilson and Khalida Liaquat sit down with Nicole Bertsch, Jenny Morgan, and Patricia Birch to further explore the authors' recent articles in the Journal of Genetic Counseling and shed light on genetic counselors cultivating cultural safety with diverse patient populations. 

For complete information on the speakers in today's episode, and on the NSGC Podcast series, visit https://www.nsgc.org/podcasts.  Don't forget to subscribe to the show!

Apr 30, 201932:12
Self Care for Genetic Counselors

Self Care for Genetic Counselors

In this episode, NSGC is joined by Catriona Hippman and Colleen Caleshu to talk about self-care, mindfulness, meditation and other tools Genetic Counselors can use to tackle the New Year. 

Mar 01, 201936:50
37th Annual Conference Recordings

37th Annual Conference Recordings

Dec 18, 201838:42
Getting Ready for Genetic Counselor Awareness Day

Getting Ready for Genetic Counselor Awareness Day

Oct 31, 201814:34
Genetic Counselors with Genetic Conditions

Genetic Counselors with Genetic Conditions

Oct 30, 201839:13
Patient Advocacy

Patient Advocacy

Aug 27, 201837:52
Genetic Counselors and Social Media
Jun 13, 201835:37