NSGC Podcast Series
By National Society of Genetic Counselors
NSGC Podcast SeriesMay 26, 2021
Bone Marrow Transplant and the Role of the Genetic Counselor
NSGC Podcast Subcommittee members Mary Pat Bland and Ryan Kuehl discuss genetic counseling considerations related to bone marrow transplant (BMT) with genetic counselors Kaylee Dollerschell, MS, CGC and Rebecca Tryon, MS, MA, CGC. During this episode, our speakers provide background information and terminology about BMT, overview of some hereditary conditions that may be treated with BMT, genetic testing considerations, and some details about the experience of undergoing BMT. These wide-ranging conversations touch on the topics of hematology, immunology, oncology, metabolic genetics, lab genetics, fertility preservation, and psychosocial counseling skills. If you'd like to learn more, we encourage you to get involved with the Hematology Subcommittee of the NSGC Pediatric and Clinical Genetics SIG and/or the Hematologic Subcommittee of the NSGC Cancer SIG. Our speakers encourage everyone to sign up to be a marrow donor or to donate blood products. Thank you for joining us for the 2022 season of the NSGC Podcast Series! We'll see you next year.
Spanish Language Genetic Counseling: Research and Resources
Join Podcast Subcommittee members Jessica Dronen and Naomi Wagner in conversation with genetic counselors Amanda de Leon, Priscila Delgado Hodges, and Charité Ricker. This episode was produced in honor of Hispanic Heritage Month (September 15th-October 15th annually in the United States). First, Jessica and Amanda discuss Amanda’s article in the Journal of Genetic Counseling entitled “Spanish language concordance in genetic counseling sessions in the United States: Counselor experiences and perceptions of its effects on processes and outcomes.” To read Amanda and colleagues’ full article, visit https://onlinelibrary.wiley.com/doi/epdf/10.1002/jgc4.1472. This article and podcast episode are eligible for CEUs as part of the JoGC CEU program.
In the second part of the episode, podcast host Naomi Wagner sits down with the Co-Chairs of the NSGC Spanish Development Special Interest Group (SIG). They discuss a range of resources and opportunities for Spanish-speaking genetic counselors, especially those who are hoping to develop their Spanish language skills and/or potentially counsel patients in Spanish. For more information about the Spanish Development SIG, visit https://www.nsgc.org/Members/Special-Interest-Groups-SIGs/Spanish. If you have additional questions, you can reach out to the Spanish Development SIG at firstname.lastname@example.org.
Testing First and Counseling After: Population Genomic Screening and Genetic Counseling
Join Podcast Subcommittee member Mary Pat Bland in conversation with Marci Schwartz, ScM, CGC; Kelly Tangney, MS, LCGC; and Amy Curry Sturm, MS, CGC. This episode covers Marci, Amy, and team's article on the Journal of Genetic Counseling (JoGC) entitled "Genetic Counseling for patients with positive genomic screening results: Considerations for when the genetic test comes first" and is eligible for CEUs as part of the JoGC CEU program. Speakers discuss their work with the myCode Genomic Screening and Couseling Program and the All of Us Research Program.
The National Institutes of Health All of Us Research Program is partnering with one million or more people across the United States to build the most diverse biomedical data resource of its kind, to help accelerate health research and medical breakthroughs, enabling individualized prevention, treatment, and care for all of us. Genomic research results from All of Us will be made available to participants who consent to receive them, and those participants will have free, unlimited access to genetic counseling services through Color, who was awarded the All of Us Research Program's Genetic Counseling Resource.
Advocating for the Intersex Community: How to Begin Dismantling a History of Harm
About 2% of people are diagnosed as intersex, but there is a lack of research on the experiences of intersex people, especially in the genetic counseling field. Podcast Subcommittee members Liann Jimmons and Jessica Dronen interview genetic counselors Darius Haghighat, Kayla Horowitz, and Rebecca Freeman about their research and advocacy for the intersex community. We hope this conversation will help our listeners advocate for and empower the intersex community through their work. Click here for additional resources on this important topic.
New Directions in Newborn Screening: Krabbe and Beyond
NSGC Podcast Subcommittee members Ryan Kuehl, Liann Jimmons, and Jessica Dronen discuss the implications for healthcare systems and the role of genetic counselors in an evolving newborn screening landscape with Dr. Debra Lynn Day-Salvatore, MD, PhD, FAAP, FACMG; Amy Gaviiglio, MS, CGC; and Laiken Peterson, MS, LCGC. This episode discusses the Journal of Genetic Counseling (JoGC) article "A qualitative assessment of parental experiences with false-positive newborn screening for Krabbe disease" and is part of the JoGC CEU program.
Heart Health Advocacy: Patient and Provider Perspectives
Welcome to season 5 of the NSGC Podcast Series! We are kicking off the 2022 season with a discussion on cardiogenetics to honor American Heart Month. Join Podcast Subcommittee members Naomi Wagner and Mary Pat Bland, cardiovascular genetic counselor Nadine Channaoui, MS, CGC, and patients Rebecca, Abby, and Theresa as they share their personal and professional stories of FLNC gene mutation and the associated increased risks for sudden cardiac arrest. Our speakers are passionate advocates for increasing heart health awareness, including CPR and AED training. To learn more and locate resources in your area, please visit the American Heart Association at heart.org.
We would love to hear your feedback and suggestions for the NSGC podcast series. If you'd like to share your comments, please respond to our brief survey by visiting nsgc.org/podcasts. Thank you!
Fireside Chats with Mentors and Colleagues
To end 2021 on a lighter, more positive note, the members of the 2021 Podcast Subcommittee conducted one-on-one interviews with mentors and admired colleagues in the field of genetic counseling to discuss their accomplishments and aspirations for the future of the profession. Join us as Ryan Kuehl speaks with Shannan Dixon, Naomi Wagner meets with Michelle Fox, Rawan Awwad interviews Wendy Uhlmann, and Mary Pat Bland discusses with Karen Kovak.
Thank you for listening to the 2021 NSGC Podcast series! As we prepare for another season of the podcast, we’d love to hear from you – our listeners – about what you love, what changes you'd like to see, and/or what you would like to hear in 2022. Please complete this brief survey to share your feedback.
Access and Service Delivery: Changing the Conversation
Join Podcast Subcommittee member Ryan Kuehl in conversation with Emily Boothe and Brian Reys from NSGC's Access and Service Delivery Committee. Emily and Brian share personal experiences with service delivery challenges and innovations and advice for tackling these issues in your own workplace. This conversation draws on the Journal of Genetic Counseling (JoGC) article "Genetic counseling service delivery models: A study of genetic counselors’ interests, needs, and barriers to implementation", to which Emily was a contributing author. This episode is approved as part of the JoGC CEU program.
Special Episode: J.E.D.I. - Next Steps After the Exeter Report Comment Period
In this special episode, Podcast Subcommittee Chair Naomi Wagner meets with NSGC Director at Large and liaison to the J.E.D.I Committee Jodie M. Vento and J.E.D.I Committee student member Brady Bunkleman to discuss comments received in response to the Exeter Report and next steps in NSGC's J.E.D.I. journey.
Addressing Information Gaps in Sickle Cell Education
This episode addresses genetic counseling topics that relate to sickle cell disease and sickle cell trait, discusses medical racism, and reviews the importance of accessible information and education related to sickle cell disease and sickle trait. Podcast Subcommittee member Mary Pat Bland meets with Dr. Tilicia Mayo-Gamble to discuss her Journal of Genetic Counseling (JoGC) article "Sickle cell carriers’ unmet information needs: Beyond knowing trait status", and Podcast Subcommittee Chair Naomi Wagner meets with Liann Jimmons to discuss her video “Introduction to Genetic Counseling: Sickle Cell Trait and Sickle Cell Disease”. This episode is approved as part of the JoGC CEU series.
Genetic Testing and Social Media: Growing a Space for Genetic Counselors
Podcast Subcommittee member, Ryan Kuehl, interviews Dr. Corey Basch about her JoGC article "DNA testing information on YouTube: Inadequate advice can mislead and harm the public" and discusses genetic testing information and misinformation in online spaces with Ms. Ellen Matloff. Ryan and Podcast Subcommittee Chair, Naomi Wagner, discuss the implications for genetic counselors' presence on social media. This episode is approved for the JoGC CEU program.
Special Episode: J.E.D.I. - NSGC & The Exeter Group Report
Podcast Subcommittee Chair, Naomi Wagner, meets with our former Chair and member of NSGC's J.E.D.I. Committee Khalida Liaquat to discuss how to engage with NSGC's Exeter Group Report. Make your voice heard during the open comment period, which will close on June 9, 2021!
Infertility from the Inside: Journeys of Loss & Hope
In this episode our hosts Naomi, Rawan, and Mary Pat speak with Katie Hornberger, MS, CGC, Annabel Adams, and Melissa Strassberg, MS, CGC on their personal and professional experiences with infertility.
Family Testing for VUS Reclassification: Family Member and Provider Perspectives
Welcome to the fourth season of the NSGC Podcast Series! In this episode, our hosts Naomi and Ryan speak with Dr. Brian Shirts and Courtney Kokenakes on family testing for VUS reclassification.
Communicating Results - Lessons from the Rare Disease Community
For the final episode of our NSGC Podcast Series 2020 season, guests Courtney Studwell and Kimberly LeBlanc join our host for a discussion on the undiagnosed disease network and result communication.
Genetic Counselor Awareness Day – Voices of our Community
Happy Genetic Counselor Awareness Day! This day is dedicated to empowering genetic counselors to help raise awareness and interest about genetic counselors in our communities and institutions and to help consumers understand the important and supportive role genetic counselors can play in their healthcare.
To celebrate, the NSGC podcast team created an episode that highlights many voices from our profession. For this episode, we asked genetic counselors to submit short, anonymous audio clips describing briefly who they are and how they identify and to elaborate on their background or to answer the question “what is your hope for the genetic counseling profession?”
Genetic Counselors: Let's Talk about Disability
In this episode, our hosts speak with with Melanie Moshier and Sarah Hunt on their own personal experiences with disabilities and the intersection of these experiences and the genetic counseling profession.
Diversity and Inclusion in Genetic Counseling Research, Training, and Practice
In this episode, we’ll be discussing diversity and inclusion in genetic counseling practice, research, and training, using a recent journal of genetic counseling article as jumping-off point.
GCs in Academia: When is a PhD the right Path?
In this episode, each Podcast Subcommittee member speaks with a different genetic counseling superstar to discuss GCs who pursue doctorate degrees.
Who Makes More? Addressing the Gender Pay Gap in Genetic Counseling
In this episode, our hosts speak with three guests to discuss the current gender pay gap in genetic counseling, and how we can advocate for our own profession for the future.
#IAmAGeneticCounselor - What's in a Name?
In this episode, our host speaks with Chandler Means and Beth Denne to explore the title of Genetic Counselor and how it relates to our roles. To learn more, visit www.nsgc.org/podcasts
38th Annual Conference Interviews
Our hosts hand over the microphone to our guests, who interview one another at the Annual Conference in Salt Lake City, Utah on the evolution of our profession
Special Edition Episode: 2019 Genetic Counselor Awareness Day
In this special edition episode, our host speaks with Adam Buchanan to celebrate Genetic Counselor Awareness Day.
Communication of Genetic Information - Ethical Issues for Genetic Counselors
NSGC is joined by Meghan Strenk, chair of the NSGC Ethics Advisory Group, and Shelby Taylor, author of Family communication following a diagnosis of myotonic dystrophy: To tell or not to tell?, published in the NSGC Journal of Genetic Counseling. Today, we're talking ethics!
Transitioning into the Workforce: What We Can All Learn from New Genetic Counselors
In this episode, our hosts will sit down with two genetic counselors to discuss the difficulties of transitioning from student to practicing genetic counselor, and their experiences with this transition
Transgender Patients in the Cancer Care Setting: Gaining Insights from Cutting-Edge Research
In this episode, Kayla Sheets and Khalida Liaquat sit down with Kim Zayhowski and Rosalba Sacca to discuss how genetic counselors and genetic counseling serves as a resource, not a barrier to transgender individuals.
Cultivating Cultural Safety in Genetic Counseling
In this episode, Kate Wilson and Khalida Liaquat sit down with Nicole Bertsch, Jenny Morgan, and Patricia Birch to further explore the authors' recent articles in the Journal of Genetic Counseling and shed light on genetic counselors cultivating cultural safety with diverse patient populations.
For complete information on the speakers in today's episode, and on the NSGC Podcast series, visit https://www.nsgc.org/podcasts. Don't forget to subscribe to the show!
Self Care for Genetic Counselors
In this episode, NSGC is joined by Catriona Hippman and Colleen Caleshu to talk about self-care, mindfulness, meditation and other tools Genetic Counselors can use to tackle the New Year.
37th Annual Conference Recordings
Getting Ready for Genetic Counselor Awareness Day
Genetic Counselors with Genetic Conditions
Genetic Counselors and Social Media
In this inaugural episode of the NSGC Podcast Series, hosts Khalida Liaquat and Kate Wilson sit down with Scott Weissman, MS, CGC; Jessica Greenwood, MS, LGC; and Dena Goldberg, MS, LCGC to discuss the importance of genetic counselors' involvement with social media.
For complete information on the NSGC Podcast series, visit https://www.nsgc.org/podcasts. Don't forget to subscribe to the show!