SPORcast aims to inspire Patients / Families, Clinicians, Academics and Decision Makers to get involved and create their own impact through patient-oriented research in order to help health care research be more relevant and meaningful.
www.sporcast.ca for more information
SPORcastDec 15, 2020
Matters of Engagement - Organizations and Patient Stories: An inquiry into the ethics of storytelling in healthcare / patient engagement #2 of 3
We have a special mini-series we’re releasing this week: Engaging in Storytelling: A 3-part collaborative podcast series with SPOR Cast, Matters of Engagement and PEP Talks. We each cover a different angle on patient stories and storytelling - together they provide a rich picture of some of the challenges, concerns, and also opportunities when it comes to engaging in storytelling. We will be sharing all three episodes on our platforms.
This is #2 of 3, and it’s produced by Matters of Engagement - Organizations and Patient Stories: An inquiry into the ethics of storytelling in healthcare/ patient engagement. Guests: Carol Fancott, and Daniel Z. Buchman, Bioethicist and Scientist
The Patient Story Experience: Cost or Benefit? (A 3-part collaborative podcast series with SPOR Cast, Matters of Engagement and PEP Talks)
We have a special mini-series we’re releasing this week: Engaging in Storytelling: A 3-part collaborative podcast series with SPOR Cast, Matters of Engagement and PEP Talks. We each cover a different angle on patient stories and storytelling - together they provide a rich picture of some of the challenges, concerns, and also opportunities when it comes to engaging in storytelling. We will be sharing all three episodes on our platforms
Engaging in Storytelling: A 3-part collaborative podcast series with SPOR Cast, Matters of Engagement and PEP Talks
In this episode, the 1st of 3, Bev hosts a conversation between an activated Patient Partner and a Trauma Informed Practice expert on patient storytelling; which is quite often the entry point of patient engagement in healthcare.
Stronger Together: Bonus Episode featuring a conversation with André Picard, health reporter and columnist for The Globe and Mail
In this episode, Beverley and Lisa have an earthquake of a conversation with public health hero André Picard, Canada’s foremost health journalist. Beverley and Lisa talk candidly with André, who shares his vision and hope for health care, for patients and families and for health research across Canada. During the conversation, the group tackles the big questions surrounding COVID-19 and get some inspiring answers about how to rebuild trust for patient partners.
Stronger Together: Adapting Patient Oriented Research During COVID-19 Podcast Series with Terri Fleming, Research Ethics BC
What an episode! An extraordinary conversation with Terri Fleming, Unit Director of Research Ethics BC. Learn about Research Ethics here in BC and how Terri and her team had to pivot, FAST, when COVID hit. Decision makers, Clinicians , Researchers and Patient Partners will find this interview incredibly informative and motivational.
Stronger Together: Adapting Patient Oriented Research During COVID-19 Podcast Series Townhall
To wrap up the special COVID series, the BC SUPPORT Unit and SPORcast hosted a Virtual Town Hall on July 9, 2020. Facilitated by Stirling Bryan, President of Academic Health Sciences Network and Lisa Ridgway of SPORcast. The event brought together, Megan, a patient partner, Danielle, the new Scientific Director for BC SUPPORT Unit, Stefanie with REACH BC and Alison, Director of Clinical Trials BC discuss opportunities to get involved in supporting COVID-19 related research.
Stronger Together COVID Series Episode #5 with Genevieve Creighton from KT Pathways
We talk with Genevieve Creighton about KT Pathways, a Knowledge Translation Platform initiated by the Michael Smith Foundation for Health Research. Gen shares how KT Pathways is supporting COVID 19 and how everyone can benefit.
Stronger Together COVID Series Episode #4 : Alison Orth from Clinical Trial BC
A great conversation with Alison Orth, Director of Clinical Trials BC, who is leading a national initiative to engage research participants about their experience with clinical research in order to enhance patient and public participation in trials and their overall experience. Alison shared the impact of COVID on clinical trials and where patients can play stewardship roles in patient-oriented research within the Clinical Trial environment.
Stronger Together COVID Series Episode #3 with Patient Partners Sarah Fletcher and Megan O'Reilly
On episode #3 of our Stronger Together COVID series in partnership with BC SUPPORT Unit, we talk with two young, intelligent, and insightful patient partners; Sarah Fletcher and Megan O'Reilly about their experience both as patient partners and personally during COVID 19.
Stronger Together COVID Series Episode #2 : Stefanie Cheah from REACH BC
On Episode #2 of our COVID Series in partnership with BC SUPPORT Unit we talk with Stefanie Cheah, REACH BC's Project Manager on the launch of this new digital platform that connects "British Columbians with researchers, to advance all kinds of health research here in BC, with the aim to make health care better for everyone."
Stronger Together: Adapting Patient Oriented Research During COVID-19 Podcast Series
The 1st episode of our Stronger Together: Adapting Patient Oriented Research During COVID-19 Virtual Town Hall and Podcast Series with Stirling Bryan, in his new position at the helm of the BC Academic Health Sciences Network, and Danielle Lavalee, BC SUPPORT Unit's new Scientific Director.
Sound Bites from Putting Patients First 2019
Putting Patients First is BC SUPPORT Unit's annual conference designed to encourage learning and collaboration between patients interested in patient-oriented research (POR), health researchers, health care providers and health system decision makers. In this episode, you will get a chance to hear sound bites from attendees as we ask "what does putting patients first mean to you?".
Dr Charlotte Loppie - A Conversation about Cultural Safety in Community Based Research
Dr. Charlotte Loppie is a Professor in the School of Public Health and Social Policy at the University of Victoria, and the Director of the university’s Centre for Indigenous Research and Community-Led Engagement.
In this episode, we are a bit provocative in discussing cultural humility and safety. This will be an ongoing dialogue in order to build relationships in patient oriented research with under represented groups.
Kent Cadogan Loftsgard - Healthcare Educator / Patient Partner
In this episode, we spent time with Kent Cadogan Loftsgard discussing his lengthy career as a healthcare educator, and also his lifelong healthcare experience living with a congenital childhood condition.
Christina Krause - CEO of British Columbia Patient Safety and Quality Council
This episode with Christina is a robust conversation on patient voices and the impact on patient safety and quality of care. Christina shares her own personal story of why she so passionate in her work and where she thinks patient engagement, safety and quality are going.
Citizen Patients - Adjunct Professor, UBC, Carolyn Canfield
Carolyn Canfield works as a citizen-patient across Canada and internationally to expand opportunities for patients, carers and communities to partner with healthcare professionals to transform health systems. Following personal tragedy from care failures in 2008, her full-time volunteering has earned her recognition as Canada’s first Patient Safety Champion in 2014, and faculty appointment at UBC with the Department of Family Practice, first as Honorary Lecturer and now as Adjunct Professor.
Bev, Lisa and Carolyn sound off on patient engagement, citizen patients and how to continue influencing change in patient oriented research.
Partnerships and Collaboration: Taylor Hainstock, Research Liaison Lead with the Vancouver Island Centre
This episode is a conversation with Taylor Hainstock, Research Liaison Lead with the Vancouver Island Centre of the BC SUPPORT Unit; a partnership between University of Victoria, Vancouver Island Health Research and Island Health Medical Department.
Bev and Lisa share their own personal stories about why they are passionate about patient-oriented research, impacting health outcomes and how SPORcast came about in the spring of 2019.
Building Patient-Oriented Capacity: Susana Koczkur, Program Manager and Research Lead PaCER, University of Calgary
Susanna Koczkur, Program Manager and Research Lead PaCER, O'Brien Institute for Public Health, University of Calgary.
Patient Engagement: Dr Erin Michalak, Professor, Department of Psychiatry, UBC
Patient Leaders: Helene Campbell, a Double Double Lung Transplant Recipient and Patient Leader with Health Standards Organization
SPORcast Introductory Inaugural Episode: Stirling Bryan, the Scientific Director of the BC SUPPORT Unit and Methods Clusters
Welcome to SPORcast inaugural episode! In the first segment, Bev and Lisa will discuss Patient Oriented Research and the what, how and why they got involved. The second segment is a great conversation with Stirling Bryan, the Scientific Director of the BC SUPPORT Unit and Methods Clusters.