TALK Down Syndrome

By Chantele

TALK Down Syndrome is a podcast created to show the world how Down Syndrome is truly amazing. My goal is to inspire and support through YOUR life stories! Each episode is a unique interview that provides real life experiences about our loved ones, shared by you. Together we can create a new definition of Down syndrome! We are here to TALK (Teach, Advocate, Listen, and Kindness)

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TALK 21- Jesse Norell "Aorta Borealis"

TALK Down Syndrome Mar 09, 2022

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38:52

Episode 34: Making hometown changes, an Interview with Evelyn Acevedo

Evelyn Acevedo is not only an amazing mom to her son Lincoln, but she has one empowered and determined woman. This lady found a problem with her and her city, and took the steps to make changes and to bring awareness for our down syndrome community. Take some time to listen to this episode. I guarantee you will be rushing to the computer to find ways that you can advocate in your hometown. You don’t want to miss this one as Evelyn will not only inspire me, but I’m sure she will inspire you as well.

Jul 24, 202354:40

TALK 33: Courtney Sebastiano

Today I am introducing you guys to Courtney Sebastiano. Interestingly, Courtney’s first child Jaxon has Down syndrome. Courtney walks us through how courageous and resilient her newborn baby was as he faced aspiration issues, along with heart failure, and his first few months. Now a healthy, almost 3 years old little boy, alongside his brother, are just the most amazing and inspirational kids Courtney never knew she would be blessed with.

Jul 06, 202353:01

TALK 32: Michael Holm. My husband, live, silly, and raw about raising our kids, especially our special girl with DS.

Behind this podcast, behind every life event I have ever had (including the birth our children) is my main support, my husband, Michael Holm. This podcast has now been running for a little over 3 years, and guess what, my husband has never been featured on it. So for this episode we decided to drop the kids off at the grandparents, grab a drink, and record his viewpoint of parenting both our children, being a special needs parent from a father's perspective, and how he see's the future of our family raising a child like Cheyenne and Jade. This episode is extra special to me because I hardly get to have conversations from a man's perspective on special needs parenting. We ever so often hear journeys from women. So grab a drink with us and take a listen to our shenanigan's about what is was like having Cheyenne and Jade

Jun 27, 202301:38:23

TALK 31: Brandy Duggan- Becoming a new mom to a child with DS while also learning about herself.

It took 7 months for Brandy to respond to my message on Facebook when I reached out to her to be a guest. Little did I know during that time, Brandy was embarking on her own journey of being a brand new mother to Brayden (who is diagnosed with Down Syndrome) but also learning about her own neurodiversity. Brandy shares with us how she maneuvers through social media taking down “trolls” and shining her own light of advocating for her two children.

Mar 27, 202357:10

TALK 30: Celebrating WDSD. Learning more about Autism & those that have a dual diagnosis.

This episode we do have just one special guest but TWO :) Dey, a mother to Adam who has Autism and Seleste, a mother to Genesis who has a dual diagnosis of Autism and Down Syndrome. Us three moms collaborate on what our diagnosis’ mean, how we maneuver through the struggles and triumphs in motherhood, and share our personal experiences of being super moms to our babies, and we learn something more about one another’s special child. It’s so wonderful to be able to share World Down Syndrome Day with the Autistic community. Because at the end of the day, no matter what diagnosis (or no diagnosis) we are all moms just trying to do our best and we can’t be our best without this kind of support, right? (This episode is dedicated to Everett Molino (15) who passed 3/15/23. Everett has Autism & we want to sincerely send our condolences to his family during this tragic time. 💙 May his beautiful soul rest peacefully.)

Mar 22, 202301:27:18

TALK 29: Its not always a fight.

No special guest but just your host Chantele discussing certain instances in her journey that made her have a change in mind set. One, being told that as a parent of a child with Down syndrome we must always “fight” the school system. That is not always the case. Sometimes as parents we stand in the way of our own child’s happiness and growth. It’s important to see the whole picture. What a beautiful thing it is to know the truth, speak the truth, and grow from these experiences.

Mar 07, 202351:17

TALK 28: Azaiah "God is my strength" a Miracle journey just in time for the holidays.

Azaiah, only 5 months old, has much to say to the world and much to poop! Come listen to Janelle's story of her son, Azaiah, and his struggles he had with Hirschsprung's disease which effects the baby passing stool, and just overcame surgery. Azaiah, born at 3 pounds 5 ounces brings inspiration to any other families out there that may be experiencing this disease or other struggles. This tiny baby has such a huge fight and I can’t wait for you to listen to his journey.

Dec 21, 202232:01

TALK 27: "Lulu and Maya"

We kick off Down Syndrome awareness month by interviewing Lulu who is a mom to a fun energetic girl named Maya. Lulu spends time talking to us about her journey as Maya’s mother and helps us out on ways we can navigate through the IEP process & things she did that can make your educational plan better :)

Oct 03, 202252:31

TALK 26: Lets TALK Autism. Interview with Vanessa Gonzales

Today we TALK Autism! We are switching it up a bit with today's episode. It is important to not only raise awareness on Down syndrome but to be aware of other special needs diagnosis, such as Autism. This is why I invited a friend of mine, Vanessa Gonzales (who's daughter Chloe is Autistic) to be a special guest on this episode. Vanessa shares a bit of insight on what it is like to have a child with Autism and the importance of listening to your inner mommy hunch by investigating signs that you may suspect your child may be different than other children.

Aug 16, 202236:14

TALK 25 : Katie Gresko VP of GiGi's Playhouse, Orange County

Who doesn't love GiGi's Playhouse? Well guess what? We have a new location opening in the beautiful Southern California and today we get to have on our episode Katie Gresko, Vice President (what what!!) of GiGi's Playhouse ORANGE COUNTY! Katie discusses how she got involved with GiGi''s Playhouse and how it has changed her life raising her first born Jack, who has Down syndrome. Take listen and hear Katie's backstory along with how you can start up your own GiGi's Playhouse or be apart of a team.

May 26, 202236:52