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The Doctor Patient Forum

The Doctor Patient Forum

By The Doctor Patient Forum

The Doctor Patient Forum is a leading advocacy organization to pain patients and prescribers adversely impacted by the harmful effects of efforts to curb opioid prescribing and overdose. Join Bev and Claudia weekly as we discuss how to end the untreated pain crisis!
Check out our website at thedoctorpatientforum.com
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Currently playing episode

Dr. Sarah discusses the updated CDC Guidelines- Episode 21

The Doctor Patient Forum Apr 06, 2023

00:00
01:10:27
Painkiller Propaganda - Cameron English - Episode 32

Painkiller Propaganda - Cameron English - Episode 32

Netflix released another nonsense series about the Sacklers called Painkiller. Cameron English, a journalist from ACSH, published an amazing article calling them out on their lies. Cameron breaks it down for us.


Cameron's links:

Twitter @camjenglish

Podcast: Science Facts & Fallacies

If you'd like to see the video of this episode including before and after the podcast discussion, please go to our Patreon page -

The Doctor Patient Forum Patreon : patreon.com/thedoctorpatientforum


Disclaimer: The information that has been provided to you in this podcast is not to be considered legal or medical advice.

Sep 13, 202301:05:46
A Year in Review Part 2 - DPF Podcast Just Turned One - Part 2 - Episode 31
Aug 29, 202301:09:14
DPF Podcast Just Turned One! A Look Back on Every Episode - Part 1 - Episode 30
Aug 16, 202351:52
Where do we go from here? The future of DPF - Episode 20
Aug 11, 202319:05
Escaping Sickle Cell Hell - With Marissa Cors - Episode 29

Escaping Sickle Cell Hell - With Marissa Cors - Episode 29

Marissa Cors is a fierce Sickle Cell Disease advocate. She is a 5th generation SCD Warrior and her family has a non profit called Axis Advocacy.

We first heard about Marissa when one of her Tik Tok videos went viral about a SCD patient, Brittany. Brittany was horribly mistreated, and recorded her mistreatment. Brittany sadly lost her life to SCD. Marissa was her advocate. Marissa's Tik Tok channel is called ⁠Escaping Sickle Cell Hell⁠.

The clips from Brittany's ER experience can be heard in their entirety ⁠here⁠.

Marissa's Twitter account is here


For behind the scenes discussion with Marissa, please go to The DPF Patreon page.


Disclaimer: The information in this podcast is not to be considered medical or legal advice




Aug 08, 202353:59
Dr. Carl Hart and DPF- A Very Exciting Announcement!

Dr. Carl Hart and DPF- A Very Exciting Announcement!

Dr. Carl Hart was a guest on our podcast earlier this year. Here is the link to the episode, in case you missed it.

Dr. Hart contacted us last week with some very exciting news! He asked us to help him co-edit a medical journal. This is such a huge opportunity and we are grateful we will be able to bring attention to the suffering of CPP's.

Jul 30, 202303:07
Dr. Jay K. Joshi - A Victim of the DEA -The Criminalization of Doctors - Episode 27

Dr. Jay K. Joshi - A Victim of the DEA -The Criminalization of Doctors - Episode 27

Dr. Jay Joshi recently released his book, Burden of Pain. Dr. Joshi is a Primary Care Physician and spent almost a year behind bars after an undercover DEA agent went to his office.

"Dr. Joshi writes regularly on his website, Daily Remedy (www.daily-remedy.com), a trusted source of editorialized healthcare content for both patients and healthcare policy experts. He has published articles on a variety of healthcare topics in both peer-reviewed journals and trade publications. His legal writings include amicus curiae briefs prepared for prominent federal healthcare cases like the Supreme Court case, Ruan v. United States." Dr. Joshi recently appeared on our DPF Patreon live hangout and will address questions with Claudia and Bev on monthly recorded Q&A videos.

Please head on over to DPF Patreon page to see a 45-minute after the show video recording with Dr. Jay Joshi, Claudia, and Bev.


If you have a question you'd like Dr. Joshi to address on Patreon, please join Patreon and submit the question there.

patreon.com/thedoctorpatientforum


Dr. Jay Joshi's contact info:

jjoshi45@gmail.com daily-remedy.com 640-430-8024

Disclaimer - The information provided to you in this podcast episode is not to be considered medical or legal advice.


Jul 25, 202343:22
OPAL Study Explained and Debunked - Episode 26

OPAL Study Explained and Debunked - Episode 26

Claudia and Bev explain the OPAL Study that just came out of Australia.

This link from our website contains all of the up-to-date information and all of the links we mention in this episode. We are planning on doing a follow-up podcast episode with Dr. Chad Kollas, from DPF Board.


Links to audio clips in this episode:

ABC Australia news clip

Clip about long-acting med - Launch of the Opioid Analgesic Stewardship in Acute Pain Clinical Care Standard

Second clip about long-acting med - A discussion about opioid prescribing in hospitals - Dr Jennifer Stevens and Dr Tejas Kanhere


Disclaimer: The information contained in this podcast is not to be considered medical or legal advice


Jul 07, 202347:13
Pharmacist Matt - Drug Shortages - Episode 25

Pharmacist Matt - Drug Shortages - Episode 25


Claudia and Bev interview Pharmacist Matt from Tik Tok.

In case you missed our first episode with Matt, here is the link.

Claudia, Matt, and Bev address the drug shortages. Bev interviews a patient who has been affected by this and reads posts from The Doctor Patient Forum Facebook page.

Matt is a community pharmacist who works at a local independent pharmacy.

His goal with Tik Tok is to basically give a virtual consultation. A window to the world bringing pharmacy specific information to the world. Along with ⁠Tik Tok ⁠you, can also tune in to ⁠his podcast - the two druggists⁠. It is an entertaining and insightful program with drug information and stories. You can also find ⁠Pharmacist Matt on Instagram⁠.

If you'd like to watch an after-the-show video discussion with Pharmacist Matt, please ⁠go to the DPF Patreon page:⁠⁠

patreon.com/thedoctorpatientforum

Disclaimer - The information provided to you in this podcast episode is not to be considered medical or legal advice.

Jul 04, 202301:06:32
Pediatric Patients Made to Suffer - One Mom's Story - Beth Steckler - Episode 24
Jun 15, 202358:53
Dr. Josh Bloom - Part 2 - Tylenol for Severe Pain - Suicide Due to Pai - Episode 23

Dr. Josh Bloom - Part 2 - Tylenol for Severe Pain - Suicide Due to Pai - Episode 23


This is part 2 of our interview with Dr. Josh Bloom.

Here is part 1, in case you missed it.

In this podcast, we discuss Tylenol for post-op pain. Is it actually as good as opioids? We interview a pain patient who was offered Tylenol only for breast cancer surgery.

We also discuss suicide due to pain.

Links discussed in this episode

  1. Debate with Dr. Singer and Dr. Fugh-Berman
  2. Article about this debate by Josh Bloom - A Surgeon And A Non-Practicing Anti-Opioid Zealot Walk Into A Bar: The Singer Fugh-Berman Debate
  3. You Take The Lavender, I'll Take The Morphine. More Anti-Opioid Nonsense.
  4. Dr. Kertesz's video with Dr. Fugh-Berman


In this podcast, Dr. Josh Bloom suggested patients send two articles to legislators about Tylenol instead of opioids.

  1. Op-ed article in USA Today by Dr. Singer and Dr. Bloom - Bureaucrats are telling your doctor how to treat pain. And patients suffer needlessly.
  2. Article by Dr. Josh Bloom - Tylenol Isn't So Safe, But At Least It Works, Right?

Other article by Dr. Josh Bloom about Tylenol

  1. Is Tylenol 'By Far The Most Dangerous Drug Ever Made?
  2. IV Tylenol As Good As Moose Urine For Post-Op Pain Control
  3. Oral And IV Tylenol Work *Equally* Well For Hip Replacement Pain - But Do They Work At All?
  4. Tylenol After Surgery? Why The Feds Make Patients Suffer Needless Pain (USA Today)
  5. Oral Vs. IV Tylenol In The Elderly: The 'Let's Kick Granny Down The Stairs' Study
  6. IV Tylenol Bombs For Post-Op Pain Control, In Randomized Controlled Trial
  7. Dr. Aric Hausknecht Responds To SG Jerome Adams' Tylenol Recommendation

Head on over to our DPF Patreon page⁠. patreon.com/thedoctorpatientforum

Suicide hotline: 988 or 911

Disclaimer: The information that has been provided to you in this podcast is not to be considered legal or medical advice.



Jun 06, 202301:18:40
Dr. Josh Bloom Part 1- Gabapentin and fallout of the CDC Guidelines - Episode 22

Dr. Josh Bloom Part 1- Gabapentin and fallout of the CDC Guidelines - Episode 22

Listen to part 1 of DPF's interview with Dr. Josh Bloom. Why are so many pain patients put on Gabapentin? Does it work? Why are so many being prescribed Gabapentin all of a sudden? What are some of the possible side effects? Listen to some patient stories about Gabapentin. Stay tuned for Part 2 with Josh Bloom.

Josh Bloom's bio:
"Director of Chemical and Pharmaceutical Sciences
Dr. Josh Bloom earned a Ph.D. in organic chemistry from the University of Virginia, followed by postdoctoral training at the University of Pennsylvania.He worked for more than two decades as a research chemist for Lederle Laboratories, which was acquired by Wyeth in 1994, which itself was acquired by Pfizer in 2009.
During this time he worked in a number of therapeutic areas, including diabetes and obesity, antimicrobial agents, HIV/AIDS, hepatitis C, and oncology. His group discovered the novel antibiotic Tygacil®, which was approved by the FDA for use against resistant bacterial infections in 2005.
He is the author of 25 patents, and 35 academic papers, including a chapter on new therapies for hepatitis C in Burger s Medicinal Chemistry, Drug Discovery and Development, 7th Edition (Wiley, 2010), and has given numerous public lectures on how the pharmaceutical industry really works.
Dr. Bloom joined the American Council on Science and Health in 2010 as ACSH s Director of Chemical and Pharmaceutical Sciences, and has written more than 20 op-eds, which have appeared in major publications, including The Wall Street Journal, Forbes, The New York Post, National Review Online and Medical Progress Today. Dr. Bloom is a regular contributor to Science 2.0, where he writes on topics related to the pharmaceutical industry, medicine and junk science.

In this episode, we included quotes from two ACSH podcasts. They are:

Podcast: Neurontin — The Lousy Opioid Alternative; Twitter Censors ACSH
Podcast: Tylenol After Surgery is Useless


Dr. Josh Bloom's articles about Gabapentin:

The Devil You Know - Neurontin's Massive Flop As An Opioid Alternative
Neurontin: The Darling Of The Anti-Opioid Crowd. But Does It Work?
Neurontin: Over-Hyped And Underwhelming


Source of graph showing opioid prescribing is down to 1992 level
Other patient comments about Gabapentin experiences. Please join this FB group in order to view this post, since it is a closed group.


DPF's Patreon page announcement!

Disclaimer: The information that has been provided to you in this podcast is not to be considered legal or medical advice.








May 08, 202344:54
DPF will be launching a Patreon page soon!

DPF will be launching a Patreon page soon!

We are very excited to announce that DPF will be launching a Patreon page very soon!


What does this mean for everything we have offered like our website, podcast, and social media pages?

Everything will stay the same! We will continue to publish our regular DPF podcasts, our FB groups will all remain the same, and we are working on an updated website as we speak. Patreon will be an addition to what DPF offers.


What will be on the DPF Patreon page?

Some of the items you will get on Patreon are extra content - such as video podcasts, behind the scenes content, and coaching calls. You'll see daily posts of important studies, articles, podcasts, etc. There will also be monthly blog posts with important information that affects pain patients and providers.


What will Patreon allow DPF to do?

We recently had to turn down a speaking engagement due to lack of funding. Funding will allow us to take our org to the next level so we can continue to effect change for pain patients and providers.


How many tiers will DPF Patreon page have?

We are starting out with 3 affordable tiers.


When is it being launched?

June 1st is the official launch date, but we are hoping to launch even earlier!

May 02, 202305:22
Dr. Sarah discusses the updated CDC Guidelines- Episode 21
Apr 06, 202301:10:27
Mini-podcast - How PDMP affects your prescriber and you - Episode 19
Mar 13, 202314:54
Freedom Model of Addiction - Episode 18
Mar 03, 202301:06:51
Dr Jeffrey Singer - A Surgeon's view on untreated/undertreated pain and Cops Practicing Medicine - Episode 17

Dr Jeffrey Singer - A Surgeon's view on untreated/undertreated pain and Cops Practicing Medicine - Episode 17

"Jeffrey A. Singer is a senior fellow at the Cato Institute and works in the Department of Health Policy Studies. He is President Emeritus and founder of Valley Surgical Clinics Ltd., the largest and oldest group private surgical practice in Arizona and has been in private practice as a general surgeon for more than 35 years.

He is also a visiting fellow at the Goldwater Institute in Phoenix. Singer is a member of the Board of Scientific Advisors of the American Council on Science and Health. From 1994 to 2016, he was a regular contributor to Arizona Medicine, the journal of the Arizona Medical Association. He served on the Advisory Board Council of the Center for Political Thought and Leadership at Arizona State University from 2014 to 2018 and is an adjunct instructor in the Program on Political History and Leadership at ASU. He writes and speaks extensively on regional and national public policy, with a specific focus on the areas of health care policy and the harmful effects of drug prohibition.

He received his BA from Brooklyn College (City University of New York) and his MD from New York Medical College. He is a fellow of the American College of Surgeons."


Links to articles discussed in this podcast episode:

Nitazenes

Cops Practicing Medicine

Dr. Singer's Twitter 

Dr. Josh Bloom's article about the Dr. Singer vs. Dr. Fugh-Berman debate

Dr. Singer vs. Dr. Fugh-Berman debate

Dr. Singer and Dr. Bloom's article discussing pain and tylenol


Disclaimer: The information that has been provided to you in this podcast is not to be considered legal or medical advice.

Feb 02, 202301:07:07
Suicide due to pain and DEA action against a doctor. Jim Elliot discusses Danny and Gretchen- Episode 16

Suicide due to pain and DEA action against a doctor. Jim Elliot discusses Danny and Gretchen- Episode 16

On November 7, 2022 chronic pain patient, Danny Elliot and his wife Gretchen, tragically took their lives after the DEA shut down Danny's doctor. Listen to our podcast from November 13, 2022 discussing Danny and Gretchen's suicides.

We interview Danny's brother, Jim Elliot. Jim talks about Danny's life, his accident that caused his severe intractable pain, and what Danny was like when he had adequate pain medication compared to when he didn't.

Here are Danny and Gretchen's obituaries.

Jim's comment to us and the chronic pain community: "I'd like to add  how appreciative our family is of the chronic pain patient community which was so supportive and helpful during Danny's struggle; after he lost his Georgia doctor, the others he saw were all referrals from friends he made through social media. He was articulate and knowledgeable and tried to help others even when he wasn't getting much help himself. As I said in our interview, all we want is for Danny and Gretchen's story to help others and to expose how apathetic the federal government is toward people in need. Thank you ladies for this opportunity."

This is the second suicide to to pain we've covered on our podcast. The first was Sonya Slone discussing the death of her husband, Brent.

Unfortunately, nobody is measuring patient outcome and the consequences of the crackdown on opioid prescribing. Nobody records what happens to the patients after a doctor is shut down by the DEA, or if a doctor retires. Danny's wife had contacted 17 doctors to try to find continuity of care, and couldn't even get an appointment. This was the third time Danny had lost a doctor due to DEA action.

We, at the Doctor Patient Forum, created a Google Document to attempt to collect stories of patient outcome from forced tapers and abandoned chronic pain patients. Please share the following:

Patient Abandonment and Forced Opioid Taper Questionnaire

If you have any questions about this form, please email Bev at bev@thedoctorpatientforum.com

For a list of studies showing accurate statistics including the tapering studies mentioned, please visit thedoctorpatientforum.com

Suicide hotline: 988 or 911

Disclaimer: The information that has been provided to you in this podcast is not to be considered legal or medical advice.




Jan 05, 202343:27
Dr. Carl Hart's opinion on the untreated pain crisis. Where do we go from here? - Episode 15

Dr. Carl Hart's opinion on the untreated pain crisis. Where do we go from here? - Episode 15

Claudia and Bev interview Dr. Carl Hart. We discuss how pain patients are being harmed by horrible drug policy. Dr. Hart discusses his view of anti-opioid zealots like Dr. Andrew Kolodny and offers to use his platform to help us fight for pain patients.

 I took this bio from his website, drcarlhart.com

"Carl Hart is the Chair of the Department of Psychology at Columbia University. He is also the Ziff Professor of Psychology in the Departments of Psychology and Psychiatry. Professor Hart has published numerous scientific and popular articles in the area of neuropsychopharmacology and is co-author of the textbook Drugs, Society and Human Behavior (with Charles Ksir). His most recent book, “High Price: A Neuroscientist’s Journey of Self-Discovery That Challenges Everything You Know About Drugs and Society,” was the 2014 winner of the PEN/E.O. Wilson Literary Science Writing Award. Professor Hart has appeared on multiple podcasts, radio and television shows including Real Time with Bill Maher and The O’Reilly Factor. He has also appeared in several documentary films including the award-winning “The House I Live In.” His essays have been published in several popular publications including The New York Times, Scientific American, The Nation, Ebony, The Root, and O Globo (Brazil’s leading newspaper)."

Check out Dr. Carl Hart's Twitter account

Here is a link to our survey for pain patients who have lost their pain doctor or are being force tapered.

Disclaimer: The information provided to you in this podcast is not to be considered medical or legal advice.


Dec 09, 202201:03:04
Danny and Gretchen Elliot's Double Suicide - Due to DEA shutting down a doctor's office - Leaving Abandoned Patients - Episode 14

Danny and Gretchen Elliot's Double Suicide - Due to DEA shutting down a doctor's office - Leaving Abandoned Patients - Episode 14

Danny Elliot was a chronic pain patient who has been vocal on Twitter about what it was like for him after he lost his doctor because of actions of the DEA.

Danny lost his doctor a few weeks ago for the third time due to the DEA. Where was the CDC's Opioid Rapid Response Program?

The following article in Pain News Network gives a bit more detail.

DEA Suspension of Doctor's License Leads to Double Suicide


Please go to the following sources to hear/read them in their entirety. 

  1. Journalist Barry Meier at Stanford Medicine's Health Policy Forum
  2. Roger Chou's interview - PCSS Episode 5 - Applications of the CDC Guidelines
  3. Kolodny's quote about suicide due to pain being bogus
  4. Adriane Fugh-Berman pushes back against Dr. Kertesz about the need to study suicide due to pain or stopping pain medication
  5. Danny's Podcast on Painkiller


Links mentioned in this podcast episode:

Opioid Rapid Response Program (ORRP) Information

Dr. Kertesz's Tweet about California Doctor

CDC's recent tweet about ORRP


Suicide hotline: 988 or 911


Disclaimer: The information that has been provided to you in this podcast is not to be considered legal or medical advice.





Nov 13, 202255:13
Part 4 - PDMP/NarxCare - Jacob James Rich - PDMP and Law Enforcement - Episode 13

Part 4 - PDMP/NarxCare - Jacob James Rich - PDMP and Law Enforcement - Episode 13

This is part 4 in our NarxCare/PDMP series. We interview Jacob James Rich. This episode focuses on PDMP harms, law enforcement's access to the PDMP, and whether HIPAA protects patients from PDMP data being shared.

Jacob James Rich is a researcher at the Cleveland Clinic Center for Evidence-Based Care Research, studying epidemiology and biostatistics at the Case Western Reserve University School of Medicine. Jacob also works as an analyst for Reason Foundation, focusing on healthcare policy. He has written extensively on drug policy topics, such as the consequences of prescription drug monitoring programs (PDMPs) on patient access and overdose mortality. Jacob is currently researching racial disparities in drug enforcement with CWRU Graduate Student Council's DEI Award.

Brief: https://reason.org/policy-study/prescription-drug-monitoring-programs-effects-on-opioid-prescribing-and-drug-overdose-mortality/

Reason bio page: https://reason.org/author/jacob-rich/

Twitter: @jacobjamesrich

Attorney Jennifer Oliva's article on PDMP and law enforcement in Duke Law Review - Prescription Drug Policing: The Right to Health Information privacy Pre- and post-Carpenter 

Links to topics mentioned:

  1. Opioid Rapid Response Program content on The Doctor Patient Forum Website
  2. OIG Toolkit


Links to podcasts or presentations in their entirety that were shared in this podcast - 

  1. NASCA - "State PDMP vs National PDMP"
  2. Cover 2 Resources - "Strike Force Stops Flow of Illicit Opioids"
  3. Cato Institute - "Patients, Privacy, and PDMP's"
  4. NPR show 1A - "Against the Pain - The Opioid Crisis and Medication Access"


Kate Nicholson's bio - "Kate Nicholson, JD, is a civil rights attorney and a nationally-recognized expert on the Americans with Disabilities Act (ADA). She served in the U.S. Department of Justice for 18 years, where she litigated and managed cases, coordinated federal disability policy, and drafted the current ADA regulations." - Executive Director at NPAC

Kate developed intractable pain after a surgical mishap left her unable to sit or stand and severely limited in walking for many years. She gave the TEDx talk, What We Lose When We Undertreat Pain, and speaks widely at universities and conferences and to medical groups."


Disclaimer: The information provided to you in this podcast is not to be considered medical or legal advice.

Nov 01, 202201:12:33
Part 3 - PDMP/NarxCare with Atty. Jennifer D. Oliva - Episode 12

Part 3 - PDMP/NarxCare with Atty. Jennifer D. Oliva - Episode 12

Claudia and Bev discuss PDMP's (Prescription Drug Monitoring Programs) and NarxCare with Atty. Jennifer Oliva. 

"Professor Oliva’s research and teaching interests include health law and policy, privacy law, evidence, torts, and complex litigation. She has served as an invited peer reviewer for the American Journal of Public Health, Yale Journal of Health Policy, Law, and Ethics, American Journal of Law & Medicine, Journal of Law and the Biosciences, and Big Data & Society and her scholarship has been published by or is forthcoming in, among other publications, the California Law ReviewDuke Law JournalNorthwestern University Law ReviewUCLA Law ReviewNorth Carolina Law Review, Ohio State Law Journal, George Mason Law Review, and online companions to the University of Chicago Law Review and New York University Law Review."

Jenn is on the Science and Policy Advisory Council for NPAC (National Pain Advocacy Center)

Excerpts were played on this podcast that can be found in their entirety in the following links:

NPR show 1A - "Against the Pain: The Opioid Crisis and Medication Access"

"Patients, Privacy, and PDMP's" - Cato with Dr. Jeffrey Singer and Kate Nicholson

Duke Margolis - "Strategies for Promoting the Safe Use of Prescription Opioids"

NPR - "To End Addiction Epidemic" - Kolodny quote

Cover 2 Resources - Gary Mendell


Jennifer Oliva can be contacted on Twitter @jenndoliva

Learn more about Jennifer on her website at uchastings


Jennifer D. Oliva's paper:  "Dosing Discrimination: Regulating PDMP Risk Scores"


Thank you to my co-researcher, Carrie Judy, for her tireless research and advocacy about NarxCare and PDMP.


Disclaimer: The information provided to you in this podcast is not to be considered medical or legal advice



Oct 25, 202201:22:45
Part 3 - Tips from a pharmacist with Pharmacist Matt-Episode 11

Part 3 - Tips from a pharmacist with Pharmacist Matt-Episode 11

Claudia and Bev interview Pharmacist Matt from Tik Tok 

Matt is a community pharmacist who works at a local independent pharmacy.

 His goal with Tik Tok is to basically give a virtual consultation. A window to the world bringing pharmacy specific information to the world. Along with Tik Tok you, can also tune in to his podcast - the two druggists. It is an entertaining and insightful program with drug information and stories. You can also find Pharmacist Matt on Instagram.

Walgreens good faith prescribing checklist

Information about Walgreen's good faith prescribing checklist

Blog about Walgreen's good faith prescribing checklist

 Listen in as Matt gives tips to pain patients for when they go to the pharmacy. He explains what to do if the pharmacist gives you a hard time. He says what the pharmacist is having to deal with.  Disclaimer: The information that has been provided to you in this podcast is not to be considered medical or legal advice.

Disclaimer: The information provided to you in this podcast is not to be considered medical or legal advice

Oct 11, 202240:29
We need your help with this survey! Interview with Dr. Jay Joshi - Episode 10

We need your help with this survey! Interview with Dr. Jay Joshi - Episode 10

Bev interviews Dr. Jay Joshi (from Daily Remedy) about an extremely important survey and we need your help!
The opioid epidemic has incurred significant clinical and economic toll on the United States. The human impact of the epidemic has adversely affected communities and many employers. We see the impact on the data. Opioid overdoses continue to rise and more potent forms of illicit heroin and fentanyl flood the streets. The trends affect all aspects of healthcare, including the patient-physician encounter, a microcosm of the social ramifications of the epidemic.
But data alone does not capture the perceptions that arise between physicians and patients during a clinic visit. Physicians are concerned about clinical and legal consequences that may arise if they prescribe controlled substances such as opioids to patients. Patients are concerned that their physicians will unnecessarily reduce or outright discontinue their medication, affecting their quality of life and their activities or daily living. As a result, there is an inherent lack of trust that builds between the physician and patient.
These are major concerns. But they are lacking in the health data. To evaluate the impact these perceptions have on broader data trends, we propose a series of short one to two question surveys that glean specific patient perceptions that arise during the patient encounter when discussing opioids and pain management.
How will we do this?
Every week we will release a survey asking one or two pertinent questions on the perceptions patient experience during the patient encounter.
We will stratify the responses per county and state and cross-reference them with existing data to evaluate how clinical perceptions affect or are affected by trends in clinical data.
When will the questions be released?
We will release each question on a Sunday starting October 9th. After that a new question will appear every Sunday for the next 10-12 weeks, excluding holiday weekends.
How can we get involved?
Foremost, take part in the survey. What you think matters. How you feel during a patient encounter is important. Your perceptions determine clinical outcomes.
Once you answer the questions, please share the survey link and repost it across your social media feeds. The more responses we get, the stronger the survey response data.
What’s the first question?
Does your provider trust you?
www.daily-remedy.com/survey/how-strongly-do-you-believe-that-you-can-tell-when-your-provider-does-not-trust-you/
Oct 09, 202214:47
Part 2 - PDMP/NarxCare - NarxCare used to deny medical care - Episode 9

Part 2 - PDMP/NarxCare - NarxCare used to deny medical care - Episode 9

This is part 2 of our NarxCare podcast series.  

Part 1

We play portions of the radio show 1A of NPR that Maia Szalavitz and Bev Schechtman were on. 

They covered the article Maia wrote in Wired about NarxCare called "The Pain Was Unbearable. So Why Did Doctors Turn Her Away?"

Full recording of the radio show 1A

Watch Dr. Ibsen do a running commentary on the radio show as it happened 

Link to NarxCare information on our website

Contact us at: bev@thedoctorpatientforum.com claudia@thedoctorpatientforum.com 

Disclaimer: This information that has been provided to you in this podcast is not to be considered medical advice

Oct 04, 202248:55
Part 1 - PDMP/NarxCare - What’s my NarxCare score and what does it mean? Episode 8

Part 1 - PDMP/NarxCare - What’s my NarxCare score and what does it mean? Episode 8

In this episode Claudia Merandi and Bev Schechtman interview Dr. Neil.

 He has put a tremendous amount of work into researching and analyzing NarxCare.  Part 1 of NarxCare includes an introduction to NarxCare and an interview with Dr. Neil. 

 Part 2 will come out next week and will have interviews with three women affected by NarxCare, and also portions of a talk show Bev and Maia Szalavitz were on called 1A with NPR. 

 The following information can be found on our website under FAQ's/What is NarxCare.  

Please check out that link for more links including the article in Wired by Maia, the patent for NarxCare, and the Ohio Study the ORS was based on. 

From The Doctor Patient Forum website: NarxCare, a product of a company called Bamboo Health, is a proprietary data analytics program. It uses up to 70 data points (that only Bamboo Health knows) and mixes them with your PDMP (prescription history) to assign four 3-digit scores letting your doctor or pharmacy know if you have a high risk of abuse or overdose. There is a Narcotic Score, a Stimulant Score, and a Sedative Score, and an Overdose Risk Score (ORS). According to Bamboo Health, "NarxCare aids care teams in clinical decision making, provides support to help prevent or manage substance use disorder, and empowers states with the comprehensive platform they need to take the next step in the battle against prescription drug addiction." Essentially, NarxCare pulls data from multiple state registries looking for red flags of drug seeking behavior. The three categories of prescription medication it looks at are narcotics (opioids), stimulants (ADHD meds) and sedatives (benzos, sleeping meds, etc.).

 "The NarxCare report identifies risk factors with interactive visualizations, as well as an Rx Graph, and a set of scores that numerically correspond to the patient’s PDMP data." Although Appriss states on their website that their product shouldn't be used by itself to make medical decisions, that's not what's actually happening. As shown in this NarxCare article, patients are being denied medication or even being dismissed from a medical practice based on a NarxCare score alone. 

Some of the risk factors used in the proprietary algorithm are: 

  1. The number of prescribers a patient has had in a two-year period. 
  2. The number of pharmacies a patient used in a two-year period. 
  3. The dosage (MME-Milligram Morphine Equivalent).
  4.  Amount of other medications that may increase potency of other medications. 
  5. Number of times prescriptions overlap with prescriptions from other providers.
  6.  Any Mental Health Diagnosis Distance from patient to doctor 

Disclaimer: The information in this podcast is not to be considered medical or legal advice.

Sep 27, 202240:21
Part 2 - Tips for your pain dr. appt. from a provider’s point of view - Episode 7
Sep 19, 202242:33
Part 1 - Tips for preparing for an appt. with a new pain doctor - Episode 6
Sep 13, 202250:03
Suicide due to untreated pain. CaSonya Richardson-Slone bravely speaks about her husband, Brent - Episode 5

Suicide due to untreated pain. CaSonya Richardson-Slone bravely speaks about her husband, Brent - Episode 5

Brent Slone had been in a horrific car accident where he became paralyzed. He was receiving pain management. In 2017, his clinic cut his pain medicine by more than half at one time. Although both Brent and Sonya did everything they could to fix the situation, they repeatedly were met with no help. Sonya knew Brent was waiting to hear from his pharmacy about a new prescription. Sadly, when she left work and looked at her phone, she saw this text from Brent - "they denied script im done love you."  He died by suicide. Sonya successfully sued the doctors and the clinic, and was awarded seven million dollars.  Sonya is using her voice to tell Brent's powerful story and plans to open a non profit in his name to bring awareness to the plight of chronic pain patients. We will update the notes here to include the information of the organization when we have it.  

From the show: 

Kolodny's quote about suicide due to pain being bogus

 Maia Szalavitz's article about Brent 

Link to the article about Brent Slone on our website

Alabama suicide study

Physician Liability for Suicide after Negligent Tapering of Opioids | Journal of Law, Medicine & Ethics | Cambridge Core


The following is link to a Fundraiser created by Casonya Richardson-Slone : People with chronic pain need your support! 

As Sonya stated in the podcast, her hope is to set up a non profit to bring awareness to this cause. From Sonya's fundraiser: "Moving forward...it’s my honor to share Brent’s story, and it’s my mission to make sure that those that need it most get the help, love, and support they need and deserve. This is Brent’s story. We finally have justice for Brent!!!"   

Disclaimer: The donations to this fundraiser will go to Sonya and not to The Doctor Patient Forum. Thank you for supporting Sonya and helping her honor Brent's life!


Suicide hotline: 988 or 911

Disclaimer: The information that has been provided to you in this podcast is not to be considered legal or medical advice.

Sep 05, 202257:24
Predators in the pain community - how to protect yourself - Episode 4

Predators in the pain community - how to protect yourself - Episode 4

Many are well aware of "drama" in the pain community. What we are addressing isn't drama. It is predators preying on vulnerable people. If you think you have been a victim of the same individuals or organizations we have, please contact your local authorities.

Sep 01, 202207:53
Interview with attorney Ron Chapman about the targeting of doctors by the DEA - Episode 3

Interview with attorney Ron Chapman about the targeting of doctors by the DEA - Episode 3

Listen to Ron Chapman discuss how prescribers and pharmacists are being targeted by the DEA. He explains how they do it and what a doctor should do if the DEA shows up at their office. He talks about whether or not CPP's can sue the DEA or the CDC. He discusses what the pain community can do to fight back. He explains the RUAN SCOTUS ruling and what it means for prescribers and patients. Also, he touches on whether or not a patient can sue a doctor. Ron has successfully defended many doctors including a recent case, which he mentions. He also runs a compliance company that can protect doctors and pharmacists. This episode is a great resource for prescribers and pharmacists to learn how to protect themselves from being the DEA's next target. 

 Ron has achieved more acquittals of physicians facing federal indictment than any other lawyer in the country. Recently his client was acquitted of a $540 million healthcare fraud indictment in the Eastern District of Michigan. He also achieved a trial acquittal on behalf of a prominent Mayo Clinic physician and secured the return of $6 million in assets. In West Virginia he secured the acquittal of an addiction medicine provider in a federal indictment against a suboxone clinic. Ron has also achieved great success as an appellate litigator, the United States Supreme Court recently granted certiorari and vacated the conviction of his client, a physician accused of unlawfully dispensing opioid medications in Naum v. United States. 

Here are some links of things mentioned in this episode: 

Ron Chapman's compliance firm, www.CCGhealthcare.com

The Suntree Petition 

Disclaimer: The information that has been provided to you in this podcast is not to be considered medical advice.

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